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functional large bowel obstruction

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Ulcerative Colitis
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Kevin_H
Regular Member
Joined : Feb 2022
Posts : 24
Posted 3/13/2022 10:57 AM (GMT -8)
I'm in remission from UC with good CRP numbers and scopes which show no active disease. However I have significant scarring in the left side. In the last year I've been suffering from left sided bloatedness, pain and distension but again with no blood, no D or no mucus. If anything I am constipated.

My GI nurse was suggesting this ay be the result of a functional blockage in the large bowel on the left side, i.e. no active diseases but the accumulation of scar tissue meaning the bowel there can no longer work efficiently causing all all of these issues.

Has anyone experienced this? Is this a form of IBS now? Would biologics still help? If they did not is surgery a solution here?
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quincy
Elite Member
Joined : May 2003
Posts : 33632
Posted 3/13/2022 11:48 AM (GMT -8)
Hi...IBS doesn't cause scarring, but it's possible signals are skewed.
Re left sided...where exactly is scarring? When was the last visual?
Have you been constipated over the last year, or just recently?
q
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poopydoop
Veteran Member
Joined : Dec 2018
Posts : 1957
Posted 3/13/2022 12:33 PM (GMT -8)
CRP is not a good marker for UC (in many people it will show normal values even while flaring) but if your scopes are clean then one can assume you're not flaring (depending on when you last had a scope). Have they measured your fecal calprotectin?

If you're worried I would discuss it with the doctor.
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Kevin_H
Regular Member
Joined : Feb 2022
Posts : 24
Posted 3/13/2022 12:38 PM (GMT -8)
No my point here is nothing to do with flaring....lets leave that one aside...my point here is the functional affect on the colon from years of chronic inflammation even in a state of remission....so im wondering can large bowel obstruction result due to this non - mechanical modality....have people experienced such and what was the resolution they were suggested of used
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quincy
Elite Member
Joined : May 2003
Posts : 33632
Posted 3/13/2022 1:57 PM (GMT -8)
It would be helpful if you answered my question re location of said scarring and when was your last visual via scope...🙂
q
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VanJordan
Veteran Member
Joined : Dec 2019
Posts : 566
Posted 3/13/2022 1:58 PM (GMT -8)

Kevin_H said...
No my point here is nothing to do with flaring....lets leave that one aside...my point here is the functional affect on the colon from years of chronic inflammation even in a state of remission....so im wondering can large bowel obstruction result due to this non - mechanical modality....have people experienced such and what was the resolution they were suggested of used

Yes, scar tissue can definitely do this. I have that problem in my rectum. The scarring makes it hard for solid, fully formed stool to be carried forward through the scarred areas. However, your GI team really needs to confirm this, rather than the nurse just guessing at it. What it "could be" is irrelevant to proving what it actually is.

When did you enter remission? If it was recently, scar tissue in the bowel can soften over time. It never fully goes away, but it can become more flexible and you'll regain functionality. When I'm newly in remission, I still experience discomfort as hard stool passes through the areas that recently recovered from UC. The nervous system in the bowel is extremely sensitive, which is why UC is so painful. Even in remission, the nerves can remain system, causing an IBS sort of situation.

A formula that I used in the past to heal some scar tissue is called Hydraplenish. Don't know if it's made anymore. It softens scar tissue throughout the body. Old scars turn pink and start to heal. But if you're recently in remission, maybe don't rock the boat yet.

CRP and ESR are actually reasonably useful for diagnosing moderate to extreme UC. If markers are above normal, then it means the flare is pretty bad. CRP isn't great at detecting low level UC, and obviously without a scope you can't know the specifics of your disease. There can be "simmering" inflammation that CRP doesn't detect. If your symptoms are otherwise normal, then you're probably good. I am not someone who promotes scoping all the time to get confirmation. Colonoscopies cause bowel trauma and some of us don't need anymore of that.
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poopydoop
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Joined : Dec 2018
Posts : 1957
Posted 3/13/2022 2:09 PM (GMT -8)
I have had severe inflammation in my rectum while CRP was 0.7 (normal range <10). It has always been a useless marker in my case.
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Sultan
Regular Member
Joined : Jan 2006
Posts : 250
Posted 3/13/2022 2:10 PM (GMT -8)
I think I have it as per my understanding from the doctor, she told me to lose weight because fat is making this blockage
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Kevin_H
Regular Member
Joined : Feb 2022
Posts : 24
Posted 3/13/2022 7:43 PM (GMT -8)
Thanks sultan , poppydoop and VJ. Ur replies have been extremely helpful.
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CCinPA
Veteran Member
Joined : Dec 2014
Posts : 2716
Posted 3/14/2022 4:23 AM (GMT -8)
I doubt that biologics would help unless you have some active inflammation that doesn't show up on blood tests (blood tests aren't reliable in some people). Probably best to discuss with your doc rather than the nurse. The other symptoms you describe -- bloating, pain, distention -- could be IBS, but in my opinion I think docs throw that term at IBD patients too easily. You don't have to have diarrhea or blood to have inflammation. I have read that there are devices that can be used to stretch scar tissue if the bowel has been narrowed. Don't know much about it though. Might be a good idea to get another scope to see what is going on. Inflammation can cause a narrowing of the colon that can seem like constipation.
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Kevin_H
Regular Member
Joined : Feb 2022
Posts : 24
Posted 3/14/2022 6:00 AM (GMT -8)
Thanks CCPA. I came across that as well...i think it is called stenting....i will definitely be following up with my GI
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quincy
Elite Member
Joined : May 2003
Posts : 33632
Posted 3/14/2022 6:53 AM (GMT -8)
Kevin...So...you really dont know where the scarring exactly is?
q
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