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Ulcerative Colitis
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tonito
Regular Member
Joined : Jul 2011
Posts : 49
Posted 5/5/2022 2:04 PM (GMT -7)
God's richest blessings to you, Songlady. Don't give up.
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straydog
Forum Moderator
Joined : Feb 2003
Posts : 18981
Posted 5/5/2022 7:58 PM (GMT -7)
Wishing you the very best outcome with the plan in place. Keep laughing about the 5 F U canister contents.
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clo2014
Veteran Member
Joined : Feb 2015
Posts : 1533
Posted 5/5/2022 8:52 PM (GMT -7)
Crossing my fingers and saying lots of prayers for you and your family.

Hang in there.

Clo
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Old Hat
Veteran Member
Joined : Feb 2007
Posts : 5750
Posted 5/5/2022 10:57 PM (GMT -7)
Relieved that you found time to update us, Songlady, thank you. Keeping you in my thoughts daily! FU is definitely appropriate to malignancy. Did you keep your original port, or need to get a new one? / Old Hat (Sending cyberhugs!)
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songlady
Veteran Member
Joined : Aug 2009
Posts : 3824
Posted 5/6/2022 9:37 AM (GMT -7)
Thanks, everyone! I am trying to keep a positive attitude.
OH - Thanks for your thoughts! Ugh, I'd had my old port removed 3 years ago when I had a minor lumpectomy for a Stage Zero DCIS. So... had to get a new one.
So it is still sore and healing, which adds insult to injury. But on the positive side, I went 3 years without needing to go get it flushed......
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Old Hat
Veteran Member
Joined : Feb 2007
Posts : 5750
Posted 5/6/2022 11:46 AM (GMT -7)
Did any oncologist ever mention the so-called "pencil-beam" radiation to you, Songlady? I believe that standard radiation to torso is especially risky for IBDers, but have wondered in recent years whether the pencil-beam could work when malignancy is limited to a small internal area. It seems to be a huge blessing to early prostate cancer patients, and I've heard about a retinal cancer victim being helped by it, too. / Old Hat
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quincy
Elite Member
Joined : May 2003
Posts : 33341
Posted 5/6/2022 10:08 PM (GMT -7)
I admire your strength and courage for all you've endured and having to go through again.
Hugs,
q
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3timechamp
Veteran Member
Joined : Oct 2009
Posts : 1757
Posted 5/7/2022 3:44 PM (GMT -7)
Alright Song another pothole for one of our class of 2018 mates. We're a positive group of patch me up and get me better because we have a life to lead. You put one foot in front of the other each moment. Vent here as much as needed. Keep us updated. Prayers and love going your way. Happy Mothers Day. Be well-Steve

Post Edited (3timechamp) : 5/7/2022 4:47:13 PM (GMT-6)

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valli1234
Regular Member
Joined : Aug 2017
Posts : 446
Posted 5/7/2022 8:36 PM (GMT -7)
Thinking of you often Songlady. Stay strong and positive and all will be well.
We are all here for you . ๐Ÿ™๐Ÿฅฐ
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Serenity Now
Veteran Member
Joined : Jan 2009
Posts : 2505
Posted 5/8/2022 7:37 AM (GMT -7)
Songlady, also thinking of you and wishing you the best. Will be hoping for updates from you.
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3timechamp
Veteran Member
Joined : Oct 2009
Posts : 1757
Posted 5/19/2022 9:20 AM (GMT -7)
Song how are you doing ??
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songlady
Veteran Member
Joined : Aug 2009
Posts : 3824
Posted 5/19/2022 2:11 PM (GMT -7)
Hi All -
So far, so good. I've had my first two sessions of chemo. Some side effects, but since I know what to expect, they're not scary. Sessions are every 2 weeks, so the second week, just before the next onslaught, I feel fine!

I keep visualizing and talking to the mass: "SHRINK!!! SHRINK!!" I'm gonna beat this thing! I've got plans, things to do - I'll get through it!
A nurse friend explained to me that the chemo is like this: it's like the cancer cells are leaves in the yard, and the chemo is shrinking them and raking them into a pile so they're easier to remove. I find that easier to understand.

I've decided to return to home base here to continue chemo sessions and evaluations, at least for now. That will buy me some time to get settled in the new house and also to Doc Shop in that area.

I've been happily busy packing and cleaning - sorry to not have given an update earlier. It all should start to calm down now!
Moving truck came a few days ago and we head off to our new home this weekend. Best Husband In The World drove up there after the truck and directed everything, so the whole first floor looks perfect, and our bedroom is set up. Our "offices" (my craft and sewing room, whatever) are still a mess of boxes, but we'll get to that.

Post Edited (songlady) : 5/24/2022 7:29:10 AM (GMT-6)

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ewafromwarsaw
Veteran Member
Joined : Jun 2013
Posts : 1423
Posted 5/21/2022 3:34 AM (GMT -7)
I'm happy to hear you are in the healing phase and I keep my fingers crossed that you are healthy and free from any cancer cell. Sending you much love and greetings from Warsaw <3
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3timechamp
Veteran Member
Joined : Oct 2009
Posts : 1757
Posted 5/21/2022 2:21 PM (GMT -7)
Stay positive Song even on the bad days/moments
One day at a time and sometimes one moment at a time. Glad you have a great guy by your side. Lots going on with you guys. Good luck with new house and be well๐Ÿ˜Š
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Old Hat
Veteran Member
Joined : Feb 2007
Posts : 5750
Posted 5/21/2022 6:57 PM (GMT -7)
Great that your husband is such a big help with household re-establishment! You are pretty amazing yourself. I think you're wise to pursue the chemo where you started it, and hope it totally eradicates that blasted malignancy. Am definitely watching for your updates! / Old Hat
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