Posted 4/30/2022 7:54 AM (GMT -8)
Does anyone else with UC get ptosis / a drooping eyelid sometimes? Since switching to Stelara I've been waking up with ptosis now and then. Each time it lasts for several days, and there's not much I can do about it other than wait for it to heal. I'm going to get it checked next time it happens, but I was wondering if this happens to other UCers, and whether it might relate to the Stelara.
My 'fear' is probably that it's myasthenia gravis, but someone I know with a family member with MG says ptosis would tend to get worse with fatigue, and as the day goes on, rather than waking up with it.