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Does being around people-since Covid-bother you?

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clo2014
Veteran Member
Joined : Feb 2015
Posts : 1508
Posted 4/30/2022 8:33 PM (GMT -7)
I have noticed that I have become a person that sorta freaks out if someone that's not in my household gets closer than 6 feet to me. AND if they don't have a mask on I literally run away from them.... AND if I am on an elevator and a mask less person gets in talking about not being vaccinated I have a panic attack and have to get out right then.

I don't expect "normal healthy" people to wear a mask when they go out to most public places...like the grocery store or out to eat....but a healthcare place just seems like it should be different. I self isolate unless I can't....ie hospital Remicade infusion. There's a big ol sign stating "mask required" and over half the people were maskless. I had a hissy fit when some woman got in the elevator with her 2 maskless companions and they started talking about "why should they have to wear a mask". So instead of just getting off the darn elevator and keeping my mouth shut... I told them why. I didn't scream or shout. I just told them if they caught it they'd probably survive, but someone with health issues would have different odds--and that I have to go to the hospital for infusions so I don't have a choice. I don't go out for drinks, dinner, movies or shopping--so wouldn't it be the pits if I caught it at the 1 place I am forced to go for medical treatment. Then I pointed to my "immune compromised" t shirt and almost ran over them with my walker to get off the elevator.

Now I am embarrassed and sorta ashamed that I was so upset. I wonder what has happened to me--and if my thoughts and feelings are not normal. I have thought about it and realized that I still refuse to go around extended family unless we are masked and 6 feet apart. My niece even said that she wished that I would allow visitors or go visiting now that COVID is not as prevalent.

How are you all handling this situation with our disease, medication and expectations?

Clo
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ks1905
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Joined : Sep 2005
Posts : 6260
Posted 4/30/2022 8:51 PM (GMT -7)
Maybe try again to get the Evusheld infusion.

I’d try starting at places that are small and outdoors like Texas BBQ. Do it gradually until you are more comfortable and then work your way up to indoors and around more people.

It’s unfortunate that the FreeDumb crowd doesn’t care about science or other peoples’ health. Wear a mask, try to get antibodies and practice good hygiene, that’s about all you can do. There are some good anti-viral treatments now available.
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CCinPA
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Joined : Dec 2014
Posts : 2197
Posted 5/1/2022 5:13 AM (GMT -7)
I don't think you have anything to be embarrassed about. Those who are not high risk have no idea what it's like for someone who is. I had to go back to the office to work last week because we were cyber attacked and they have stopped VPN access for the time being. Due to the work I do I can do lots of things without the network so I only have to go in for 3 hours/day to do the things I need to access. That's 3 very high stress hours for me. I wear my mask the entire time, but no one else does and they all act like I am being ridiculous. Most don't get close, but I have had some who do and when I take a step back, they step closer. Some are coughing and sniffling due to "allergies". Freaks me out.

I was able to get the Evusheld injections on Thursday so hopefully they will help. Everyone is acting as though Covid is over, but it's not for some. We're left on our own. I even had to research how and where to get Evusheld as my PCP had never heard of it. Turns out they give the shots at the same place I get my infusions. The nurses there told me they give lots of the shots ... probably because it's a cancer center and I think the cancer docs encourage their cancer patients to get them. You definitely meet the qualifications for the shots so if your doc doesn't know about them, do the research to find out where you can get them and get back to the doc with the info so he can place the order for you.

Cases and hospitalizations here are slowly creeping up again so looks like another wave is coming. Hopefully this one won't be as bad as the others.
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ks1905
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Joined : Sep 2005
Posts : 6260
Posted 5/1/2022 7:29 AM (GMT -7)

CCinPA said...

I was able to get the Evusheld injections on Thursday so hopefully they will help. Everyone is acting as though Covid is over, but it's not for some. We're left on our own. I even had to research how and where to get Evusheld as my PCP had never heard of it. Turns out they give the shots at the same place I get my infusions. The nurses there told me they give lots of the shots ... probably because it's a cancer center and I think the cancer docs encourage their cancer patients to get them.

Any GI or other side effects from the Evusheld? Your experience might make for a good thread, I’m sure others are interested.
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CCinPA
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Joined : Dec 2014
Posts : 2197
Posted 5/1/2022 11:10 AM (GMT -7)
Keith -- I had no side effects -- GI or otherwise. There are 2 shots -- one of each of the 2 types of monoclonal antibodies that are what Evusheld is. The injections are given in the gluteal muscles -- one shot in each buttock. The first shot I felt a bit of a burning sensation when the med was injected. The 2nd shot I didn't feel anything at all -- not even the needle. Found that a little odd. Hopefully they will help keep me from getting infected or very sick if I am exposed to Covid.

I am hoping that I will be able to work from home full time again after this week -- this weekend they were going to start reconnecting some VPN sites (we are a big company and have sites all around the country that talk to each other through VPN so it's a priority now to get it up and secure). If all goes well, they will start connecting work from home VPN sometime this week and I am near the top of the list to get connected. he sooner I can stop going to the office the better I will feel.
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momto2boys
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Joined : Jun 2013
Posts : 2535
Posted 5/2/2022 3:38 AM (GMT -7)
Clo-,
I have to work, so I am around college students every day, but my department has allowed me to mandate masks. If it weren’t for those masks I don’t think I would be so comfortable. I still keep my distance from people, have turned down a lot of jobs (I’m a classical musician) because I cannot play unmasked, and generally still do curb-side pick up for my groceries. If you can get Evu-shield that would be great, both for you physically and emotionally. Hang in there!
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Sara14
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Joined : Mar 2007
Posts : 7216
Posted 5/2/2022 4:45 AM (GMT -7)
I mean, being around people has always bothered me, ha... But due to covid--not anymore really. I don't even wear a mask anymore usually (unless I'm somewhere where it's required). I'm not around many people though (I work from home, live in the woods, and try to avoid people for the most part, other than my boyfriend, lol). My boyfriend works around a lot of people though (he's also on Xeljanz and has UC), and neither of us have gotten covid yet...knock on wood. Once I started dating him last August, I relaxed more about being around people (meaning, I'll go in a grocery store now and have been out to eat a few times in the past year...lol...I don't think I'm the typical person because all those things you listed--shopping, drinks, dinner, sounded very not fun to me and I don't miss any of that). Before that, I was hardcore avoidant, wore my mask everywhere despite being vaccinated, etc.
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Sara14
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Joined : Mar 2007
Posts : 7216
Posted 5/2/2022 4:57 AM (GMT -7)
P.S. Your feelings are valid. You have pretty unique and challenging health issues, so the fear is totally understandable. We have all been through health trauma with UC, too. Unfortunately, we can't control what other people do. You'll probably never see those elevator people again, so try not to worry about that, lol. I probably would've done the same thing. Oh, and I just re-read your post--yeah, if masks were required in there, that would've pissed me off too, even if I wasn't at higher risk.
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clo2014
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Joined : Feb 2015
Posts : 1508
Posted 5/2/2022 6:36 PM (GMT -7)
Thanks all for your responses! I was afraid I was totally losing it. I still can't believe I did that... Lol... Just thinking about it makes me cringe and chuckle at the same time.

I am trying to get the Evusheld. I have an appointment with 2 RA docs in June. I am hoping one of them will give it to me. My ID and PCP tested me for antibodies after the moderna... And I had some! Now they would prefer that I wait and get yet another booster and then see how it goes. So I have an appointment for the possible booster end of May. Can you even get a 5th shot? Sigh... I heard the Evusheld was better but..... Will have to be compliant with the med choices. ☹️.
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Faithmac
Veteran Member
Joined : Apr 2008
Posts : 1547
Posted 5/2/2022 7:26 PM (GMT -7)
I had the Evusheld quite a few weeks ago. No side effects at all. My infusion doctor ordered it. I receive my infusions in cancer facility. She ordered it and within that week I received it. Never had the Covid boosters so she was happy I agreed to take it.
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CCinPA
Veteran Member
Joined : Dec 2014
Posts : 2197
Posted 5/3/2022 2:50 AM (GMT -7)
Clo -- you should be able to get Evusheld even with some antibodies from the vaccine. The fact sheets on it encourage getting the vaccines if you are able. Evusheld us a pre-treatment ... instead of waiting to treat covid once you have it, this is a treatment before you get it. Not all docs know about it. I had to do my own research and educate my doc about it. My suggestion is not to wait for your next appt ... do the research yourself and then contact your doc and ask. You may want to check with your infusion center to see if they do the shots there.
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clo2014
Veteran Member
Joined : Feb 2015
Posts : 1508
Posted 5/13/2022 9:04 PM (GMT -7)
Thanks CCin PA,

I did reach out thru the portal. They want me to come in for an appointment. 1st one they had was in July. I took it. Crossing my fingers,!

Clo
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Michelejc
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Joined : Jan 2011
Posts : 2761
Posted 5/14/2022 5:13 AM (GMT -7)
I don't wear a mask anymore unless someone asks me to. I have no problems with that. I'm back commuting to work and we are still required to wear masks on public transportation. A few of the people I work closely with got Covid (they are vaccinated and got the booster). For all I know I might of had it without any symptoms.

I feel at this point you have to live your life. Whatever makes you comfortable is what you should do. This virus is not going to go away. It's here to stay.
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poopydoop
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Joined : Dec 2018
Posts : 1606
Posted 5/14/2022 11:00 AM (GMT -7)
I mostly don't wear a mask any more except on public transport and in the hospital, but I also avoid crowds and only go to restaurants and sports facilities etc with good ventilation, and i do freak out if anyone comes within a metre of me (including family).

I now have a 3rd friend with long covid. Like the other two they were age ~40 and extremely fit and healthy (as in doing triathlons). They've been on sick leave for over 2 months and are too fatigued to carry out basic tasks. For some reason long covid gets brushed under the carpet by policy makers. It definitely scares me.
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VanJordan
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Joined : Dec 2019
Posts : 507
Posted 5/14/2022 11:03 AM (GMT -7)
I am not afraid of covid and I'm not afraid of people. I never let the government or medical institutions divide me from my friends and loved ones. I think how the government has behaved has mostly been immoral, especially toward the elderly in long-term care. The chance of getting severe covid that requires hospitalization is extremely low, if you look at the data. Even people over 65 who are at highest risk have low chances. I only wore masks when it was legally required, but toward the last 8 months of the mandates, I stopped wearing them in defiance. Unless you're wearing an N95, they offer virtually no protection. Even N95s offer questionable protection. I know lots of healthcare workers who wear them who got covid anyway. If you can fog up a pair of glasses by breathing through a mask, then you are not stopping viral particles. In fact, I got covid while wearing a mask, around people who were also wearing masks. The only real protection against viruses is distancing yourself from sick people. Sick people should not be out in public.

That said, if you are immune compromised because of meds, then it's understandable that you'd want to avoid it. When I was on high dose prednisone, I hid indoors aside from getting groceries and essentials. People were not allowed in my home. But that wasn't just a covid thing. I do that whenever I have a severe flare and I'm on high dose pred, and have done so since 2015 when I first developed UC. The last thing I want during a 10/10 flare is to get a cold or flu.

For everyone else who is immune competent, including UCers, covid should be treated like a bad flu. Plenty of rest, nutrition, vitamin C, zinc, vitamin D, and analgesics.

The paranoia and division the government has caused will take years to recover from, if it ever happens.

Post Edited (VanJordan) : 5/14/2022 12:09:47 PM (GMT-6)

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poopydoop
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Joined : Dec 2018
Posts : 1606
Posted 5/14/2022 1:58 PM (GMT -7)
As posted above, long covid doesn't care how immunocompromised you are or how fit and healthy you are. I guess being 40 (the most likely age to be affected by long covid) I know more people who had it and am also more at risk. And again, it gets brushed under the carpet because as long as you're not dead then there isn't a problem right?
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island time
Veteran Member
Joined : Dec 2014
Posts : 2310
Posted 5/14/2022 2:48 PM (GMT -7)
Anyone closer than about 4 feet of me, I begin feeling as if they’re in my space anyway. COVID no COVID.

——

Humira
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ks1905
Veteran Member
Joined : Sep 2005
Posts : 6260
Posted 5/14/2022 6:00 PM (GMT -7)

VanJordan said...
I think how the government has behaved has mostly been immoral, especially toward the elderly in long-term care. The chance of getting severe covid that requires hospitalization is extremely low, if you look at the data. Even people over 65 who are at highest risk have low chances.

Speaking of immoral, your post is immoral. There are 1 million dead Americans who are no longer with us and are unable to comment on how stupid your post is; that’s 1 out of every 330 Americans - that’s not low risk, ask an insurance actuary. There were 14 million other people who died worldwide. This doesn’t take into account the number of hospitalization from Covid. The people who needed organ transplant, had strokes, or needed to learn how to walk again after being hospitalized for months.

Your post is so callous, how are people who read it supposed to feel that lost friends, family and loved ones to this virus?
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clo2014
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Joined : Feb 2015
Posts : 1508
Posted 5/14/2022 8:46 PM (GMT -7)
Well, even after this amount of time.... I still freak out if people get close to me. Getting IV antibiotics for 15 days aged me 20 years! People in there hacking and coughing and swearing they had allergies. Yikes. I was thrilled when that was over.

I still wear an N95 mask when I go out. I do wear my immune compromised t-shirt so people know why I am skittish. I have to say--those tshirts have helped me alot. People don't look at me like I'm crazy as much when I wear them.

As far as people getting severe COVID goes and the risk being low...we have lost 5 people in our family to this dreaded disease. This does not count my nephew's and nieces that have long COVID. (That's very frightening and I worry about how it's not even a blip on our radar anymore) Only 2 we're elderly....so Van Jordan-I respectfully disagree with you. This dreaded virus can strike people that are young and healthy... Suddenly they are gone. The number is much higher if I count Aunt's, Uncle's or cousins. I am glad that you do not have fear towards COVID or people. I hope that you never have to face the heartache my family has and that your lucky streak of avoiding COVID continues.

For me, it's amazing how quickly people forget what happened to others and want to return to "normal life" . It's disheartening. People not wanting to consider others is perplexing to me. Even pre UC/Crohn's I lived by the motto to do no harm to others. I believe in personal responsibility so of course I do all the things that I am supposed to. I just wonder how much personal responsibility others are taking when they don't respect others--or even concern themselves on if they are having a negative impact on others. If you are coughing or sneezing or feel unwell keep your butt at home. If your kid is sick--dont send them to school or over to play with the neighbors. If you walk into any health care facility put on a mask. You may be asymptomatic and standing beside a child that had a heart transplant. For some reason we, and I include myself in that we, we frequently fail to think of others, we have become selfish and intolerant.

When I consider Covid--I don't think it has brought everyone together fighting a common enemy. It's showed us our weaknesses and uglyness....hairy worts and all.

And then....I go to get gas and wear my tshirt and my mask...and a youngster tells me they are sorry I have to wear a mask, and they remind me to self isolate and stay at least 6 feet from people. And they then Thank me for wearing the immune compromised shirt so they know...and can do the right thing.

That youngster made me cry--because they gave me back alittle bit if hope.

Post Edited (clo2014) : 5/14/2022 9:57:36 PM (GMT-6)

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CCinPA
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Joined : Dec 2014
Posts : 2197
Posted 5/14/2022 9:09 PM (GMT -7)
I've been hearing good things about the anti viral Paxlovid. A co-worker's unvaccinated wife felt better within 24 hours of taking it and she was pretty sick. She said it was a game changer. Then the next day I heard a talking head on TV say he had recently been given that drug and used the same words -- "game changer". If you start having symptoms do a home test and if positive call your doc. The sooner you can take it the better. And since there is a big supply they aren't limiting it to high risk people. Co-worker has diabetes and his doc doesn't want him to take Paxlovid due to his diabetes meds (no idea why). He said he just feels a lot of fatigue and body aches -- he's fully vaxxed and boosted.

My boss got me an exemption to have VPN access so I have been back to working from home and wasn't exposed to the co-worker. I would have been freaking out.

It's kinda lonely now -- seems like very few people take precautions anymore. I'm nearly always the only one with a mask when I go anywhere. The state I live in is only reporting cases and hospitalizations once a week now even though when they do post the numbers are increasing fairly rapidly. Hospitalizations have significantly increased in the past month. Covid isn't gone and it's still killing people. Weird how how everyone acts like it's no big deal anymore. I do feel a bit safer since I got the Evusheld shots and know I can get Paxlovid if I ever need it. Still avoiding people for the most part though -- have come to enjoy the solace ... most of the time anyway.
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CCinPA
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Joined : Dec 2014
Posts : 2197
Posted 5/14/2022 9:14 PM (GMT -7)
I need to get some of those shirts, Clo. I think you said they were a gift. Any idea where they got them?
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clo2014
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Joined : Feb 2015
Posts : 1508
Posted 5/15/2022 2:03 AM (GMT -7)
CcinPA,

My nieces and nephews bought them online from some cheap site that will put what you want on t-shirts. Uberprints makes you order 11? At a time and they run about 20.00 per shirt I think. They are very thin and not something I wear alone--I wear them over my other shirt. But it's an explanation of sorts. My other niece went to a print store in Houston (that one's nice) and my nephew (he's refinishing his boat seats) actually embroidered it on a nice shirt after I told him how helpful the other shirts are. (Although his wife probably helped him alot). Those shirts started out as a joke, I was complaining about people looking at me crazy when I got gas or went out--because I wore a mask and was very skittish. I said I wish I could just tell them why without debating everything with them. I was sure the majority of people would do the right thing. They got together and got me the shirts. Sorta tongue in cheek. I visited some of my family members that are in the medical field when I had to go to the hospital for something--wearing the tshirts-sorta tongue in cheek--and was amazed by the difference it made. I don't know if it was me or them. I no longer care. I just keep one in my car and pop it on if I have to get gas or run into a store. The nice ones I wear when I have to go to a doctor's visit... There are some print shops in Dallas and Fort Worth I have been thinking of calling to get a price on. I have had people behind me at the grocery store actually take a few steps back when they read the shirt. LOL....

I actually asked my PCP if I could get the Paxlovid for a "just in case" scenario. He refused of course. But he too said that he has his patients telling him that it makes a huge difference. My nieces and nephews are in the medical field and they too have said it is a game changer. So that makes me feel alittle better.

Monday I am going to go in and try for yet another vaccine booster. It'll be my 5th. The evusheld... I have an appointment later on and will beg for that too.

I still isolate. It does get lonely. One of my nieces is frustrated with me. She cried the other day. She just wants to give me a hug..... So I told her to grow longer arms.... Lol...

Hang in there. I've heard there are yet other variants coming--but they are not a bad as some of the others.

Clo
We do travel alot. I have given some motivational talks since COVID. It's always very small groups, masks, outside and they stay away from me.... It is for friends that own small businesses. But hardly do that anymore. I am just too freaked out. Since we started opening up people seem to forget that there are others out there that are not like them--that need that extra personal space.

I am glad that your boss did get your VPN access back for you. Some bosses/businesses aren't that accommodating. I've retired so I don't have to worry about that as much.. I don't think I could work--I would be too concerned.

Good luck getting you tshirts. If you find a good place online please let me know. I'd like to get something alittle nicer.... And not hurt their feelings. LOL.
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FlowersGal
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Joined : Feb 2017
Posts : 1404
Posted 5/15/2022 8:00 AM (GMT -7)
Clo — remind me what your tshirts say!

I believe there are lots of imprint stores — both local and online. It might be pricey to only order 2-3 at a time but worth it!

I’ve become complacent — trusting in my vax and boosters I suppose. But a friend who I know is up to date with all shots and boosters just got covid. That got me scared! I’m lucky that I responded well with high antibodies. As an aside I have yet to figure out what the government’s supposed motive is in lying to us about covid. I’ve asked friends who feel that way and they have no answer for me beyond stumbling around. Please don’t reply to that — I don’t want to get this thread locked.

Anywho I think it’s human nature to become complacent and I thank you for reminding me that we do need to think of others and understand that we don’t usually know what’s going on under the surface
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poopydoop
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Joined : Dec 2018
Posts : 1606
Posted 5/15/2022 8:28 AM (GMT -7)
Loads of my fully vaccinated colleagues/friends have had covid, including two over 60s who had their 2nd booster and then got covid just a couple of weeks later (they both had mild symptoms and were back to normal after 2 weeks). I think I've come to accept that a vaccine doesn't stop you getting sick, just reduces the severity of symptoms.

I'm nervous now because it's 4 months since my last booster and apparently by 3 months the chance of preventing symptoms is already down to 50%. And also seeing my friend with long covid, fully vaxxed plus booster, go from a type A personality to needing bed rest after any exertion and unable to work, reminds me that covid is still a problem.

It's really hard to find the right balance between living life and being safe. I kind of swing between the two.
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VanJordan
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Joined : Dec 2019
Posts : 507
Posted 5/15/2022 4:03 PM (GMT -7)

ks1905 said...
Speaking of immoral, your post is immoral. There are 1 million dead Americans who are no longer with us and are unable to comment on how stupid your post is; that’s 1 out of every 330 Americans - that’s not low risk, ask an insurance actuary. There were 14 million other people who died worldwide. This doesn’t take into account the number of hospitalization from Covid. The people who needed organ transplant, had strokes, or needed to learn how to walk again after being hospitalized for months.

Your post is so callous, how are people who read it supposed to feel that lost friends, family and loved ones to this virus?

If you look at the breakdown of who mostly died among those 1 million dead Americans, it is the same demographic as people who tend to die from the flu. The draconian measures put into place were unacceptable and now, in hindsight, unscientific. I'm sorry for those who lost people during the pandemic. I too lost people. But the facts don't care about our feelings. And the fact is, distance is the only real protection during cold/flu season. Flimsy masks aren't going to stop viruses. I speak from personal experience on that one. And now we know from the Pfizer data that the vaccine offers extremely limited protection (12%) and only during the first few weeks:

https://www.forbes.com/sites/roberthart/2022/05/13/pfizers-covid-vaccine-protection-against-omicron-fades-just-weeks-after-second-and-third-doses-study-finds/?sh=2d07dc1932af

Unfortunately, the idiotic conclusion they draw is that people need more boosters. There is no talk about how the vaccine is virtually ineffective, similar to the flu shot.

14 million worldwide is not that significant, statistically. We lose that or more on an annual basis due to the flu and many other diseases. I won't be guilt tripped into an emotional argument. What the government did to all of society during this pandemic was immoral. History will look upon it unkindly.

On another note, I welcome disagreement, but please argue points and not my character. In the future, please respond to me without making personal attacks. I am asking nicely. Thank you.
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