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Foods while transitioning to remission

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Ulcerative Colitis
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Midge22
Regular Member
Joined : Jun 2022
Posts : 32
Posted 6/24/2022 12:33 PM (GMT -8)
Hi, I’m new in the forum and have been reading and appreciating all the info. I have several questions but the first one relates to eating (a favourite activity). I have noticed that there are very few food related posts so if I’m in some way out of line asking, apologies.
Background - I’m 60ish, diagnosed with mild UC 25 years ago and on maintenance dose of Asacol (recently changed to Mezavant). After the good luck of being generally problem free all those years, this last winter I had a flare, and colonoscopy (in May) showed I’m now progressed to med to severe. My symptoms are still very mild though - at worst 5 or 6 trips to the bathroom, always with some blood but never a scary amount. My Mezavant was upped, and a nightly skaofalk enema was added. Within a week of starting the enema the blood disappeared and I generally feel better. (I’ve been on nightly for 5 weeks now). In the last weeks, poops reduced to a very normal 2 - 3 per day, but still loose (but not watery). Finally — to the question: I’ve been eating low residue since about February and I’ve been gradually increasing fibre and food variety in the last week or so. I see no change in my poops, which I was expecting to possibly increase again and/ or firm up. Neither has happened (although I do get more gurgling smile. Am I doing the right thing by returning to a more normal (but still careful and UC informed) diet? The 'as tolerated' thing confuses me because nothing has changed poop-wise so am I tolerating or not? Should I have waited to 'firm up' before going to a more interesting diet? (These are probably dietician questions but I don’t have one, and my gastro doctor doesn’t really talk food). Thanks for any advice!
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poopydoop
Veteran Member
Joined : Dec 2018
Posts : 1962
Posted 6/24/2022 12:38 PM (GMT -8)
Re the "as tolerated" thing - the only way to know if i food is problematic is to try it and see if you feel worse afterwards. A food diary can be helpful (personally I could never be bothered with a diary and if a food was problematic I'd know about it pretty soon, but then again i was testing/introducing new foods very gradually)
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quincy
Elite Member
Joined : May 2003
Posts : 33635
Posted 6/24/2022 7:35 PM (GMT -8)
I didnt change my diet except to not eat high fibrous foods when I was at my worst...the first and second years.

What is your diet exactly at this point.

What are the directions re the enemas?

q
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Midge22
Regular Member
Joined : Jun 2022
Posts : 32
Posted 6/25/2022 7:11 AM (GMT -8)
Thanks for the responses Poopydoop and Quincy. I do keep a diary but I’m never sure of the transit time, so not sure which food may be the culprit, in causing or helping with the diarrhea. I don’t usually have much belly discomfort but did recently introduce almond flour biscuits and ended up with left side pain and worse diarrhea the next day, which I’m taking as a sign not to eat two when testing a new food.
To answer Quincy's questions - re diet- During the worst part of the flare I was eating mostly smoothies (soy or almond milk and bananas) and blended veg soups, ground chicken, noodles and the occasional toasted white bread toast with smooth peanut butter. Once I had begun to do better (a few days after starting the enemas) I started adding some foods from the IBD-Aid diet (U Massachusetts med school). I started gradually with roasted veg, fish, chicken, oatmeal. That diet also avoids grains (except oats) hence the almond flour biscuits. I have had good results with eating flatbreads made with garbanzo flour though. I continue with smoothies, applesauce, no sugar, and now no grain breads or noodles. We'll see how long that lasts, but I though it would provide me with some direction to follow a set diet.

Re: the meds - The instructions from the doc with the enemas were to use them for 4 weeks, and if no improvement by then, switch to cortiment. I consider the blood disappearing and the reduction in bathroom trips a significant improvement so I didn’t fill the cortiment prescription. (Never been on any steroid yet and hoping to avoid). I’m seeing my doc on Monday so hopefully she’ll agree. Her notes post colonoscopy said she though I’d have to go to biologics which I’m hoping also to defer as long as I can, given the mildness of my symptoms. I’m beginning to understand through that symptoms don’t seem to tell the whole story.
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