I’m amazed at the huge difference for me (where I am at right now) between 6 mg of budesonide and 9 mg of budesonide. (With The the 14 to 20 (I am guessing) of trough of Inflectra in me and the 4 tablets a day of welchol).
On 6 mg I go 3 or 4 more times a day …and often with “running to the toilet” urgency. 8 or 9 times in a 24 hour period.
On 9 mg a day the past several days I’m averaging 5 times in a 24 hour period, only 1 of those in the middle of the night…and the “running to the bathroom” urgency is gone. I still get some urgency at times, but I can hold it and make it to the toilet “reasonably”. I also get the feeling off and on throughout the day….Maybe every couple of hours, like, maybe, I need to go. I ignore these “maybes” and the feeling goes away. I’m hoping the longer I’m on the 9mg of budesonide and the 4 tablets of welchol, this “maybe” feeling thing will go away. Maybe that part of it is in my mind. Sigh.
I’m thinking the early January 2023 colonoscopy will give the new GI the data he feels he needs to switch me to a new biologic. Justifying the switch to the Insurance company. I’m sure he also wants to go in and see exactly what my inflammation looks like and anything else going on. The colonoscopy of March 2021 was done by old GI who was tied to a different hospital. New GI specifically said, last appointment, he’s confident he’s not going to see cancer. That gives me some peace of mind until I get to the procedure. I’m by nature, a worry wort.
I have read worry worts are more prone to get bowel disease.
No question I feel, I need a new biologic. I can stay on the welchol forever, but I can’t on the budesonide, and it’s obvious there’s enough Inflectra in my system, and no antibodies, and it ain’t doing it. So to me, this yells, “it’s time for a new maintenance drug”
Humira worked great for me for four years. 2016 to 2020. I should’ve never come off it for six months even though I was in full remission. So dumb. Then I go back on it, antibodies. Dah.
I’ve been struggling pretty much off and on non stop since. And that was the spring of 2021. It could be a lot worse no doubt, but it sure is depressing.
Post Edited (Rusty Barr) : 11/11/2022 12:48:01 PM (GMT-8)