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Van Jordan/Dr. Pravda (antioxidant method

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Ulcerative Colitis
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greenuc
Regular Member
Joined : Sep 2011
Posts : 287
Posted 8/17/2022 4:40 PM (GMT -8)
That said, I also agree with you that until RDLA becomes widely available, we should look at other alternative antioxidants with similar mechanisms of action.
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VanJordan
Veteran Member
Joined : Dec 2019
Posts : 566
Posted 8/17/2022 5:18 PM (GMT -8)
Sorry greenuc, I misread what you said. It does seem that one master antioxidant can replace all others, but until (if/when) it becomes available, we have to take a combo.
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CCinPA
Veteran Member
Joined : Dec 2014
Posts : 2518
Posted 8/17/2022 5:33 PM (GMT -8)
As I said before, I do plan to read the entire paper ... there only so many hours in the day so this will likely be weekend reading. I have an appt with my GI next week so I sent him the link today to get his thoughts on it and did not indicate in any way what my initial thoughts on it have been.

It does baffle me that anyone feels as though I am personally attacking or bullying them when I express my opinions or that I am being in any way vile or hostile. That is not who I am at all. I am not in love with needing an infusion once a month. But neither am I willing to go back to how sick I was prior to that. I won't say that I tried everything because I didn't. I tried enough to know that if I want to live my life and be able to function at a high level in business I need medicine not experiments. That is my experience. If someone can find other treatments that work for them I am happy for you. I am not just saying that or trying to gas light someone (what does that even mean?) ... I really mean it.

I well remember when I was first diagnosed how confusing everything was and how much I learned on this forum. Now I like to share the knowledge I have gained. I certainly don't know everything. If you don't like the things I say just ignore me. I won't be offended. But don't act as though I am not allowed to express an opinion or ask questions. We are all allowed to have a say in an open forum.

I will ask this question again because I haven't seen anyone answer this ... has anyone used Pravda's enema? I know you have to get it compounded at a specialty pharmacy, but that seems to be a big part of his protocol so I am curious about it. Mesalamine enemas never really worked for me, but steroid enemas did provide some relief when I was flaring and had horrible tenesmus so I am curious about any experiences you may have had with Pravda's enema.
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Theanxiousaries
Regular Member
Joined : May 2021
Posts : 424
Posted 8/17/2022 6:11 PM (GMT -8)

VanJordan said...
Sorry greenuc, I misread what you said. It does seem that one master antioxidant can replace all others, but until (if/when) it becomes available, we have to take a combo.


Has anyone asked Dr Pravda where we can source it
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greenuc
Regular Member
Joined : Sep 2011
Posts : 287
Posted 8/17/2022 6:26 PM (GMT -8)

Theanxiousaries said...

Has anyone asked Dr Pravda where we can source it

I don't believe so. The paper said its only available in Europe with a perscription as part of a treatment for some neuropathic condition.

There are supplement companies that are in the process of launching it in the states. They've responded to my inquiry (and others on this forum) that a launch is expected late this year.
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greenuc
Regular Member
Joined : Sep 2011
Posts : 287
Posted 8/17/2022 6:36 PM (GMT -8)

CCinPA said...
I will ask this question again because I haven't seen anyone answer this ... has anyone used Pravda's enema? I know you have to get it compounded at a specialty pharmacy, but that seems to be a big part of his protocol so I am curious about it. Mesalamine enemas never really worked for me, but steroid enemas did provide some relief when I was flaring and had horrible tenesmus so I am curious about any experiences you may have had with Pravda's enema.

Probably not simply because while some of the ingredients had leaked in the past, the full details of proportions and exact mixing instructions were not released until yesterday. So outside of patients he's treated, I doubt anyone has tried it. I will certainly be talking with my GI and already sent her the paper. If she will prescribe it, I will work with a compounding pharmacy...that said, RDLA is a pretty important component of the protocol and as of now is unavailable...but per my previous post, maybe by the end of this year.
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NiceCupOfTea
Elite Member
Joined : Jan 2010
Posts : 11145
Posted 8/17/2022 7:59 PM (GMT -8)

VanJordan said...

NiceCupOfTea said...
There's probably hundreds, if not thousands, of "root causes."

What evidence do you have to support this claim?

Missed this. None whatsoever. It's just my personal opinion based on the complexity of UC/Crohn's and the fact that everybody has such an individualistic response to meds, diets, supplements, etc. On the other hand there could be a breakthrough in the future which proves me wrong and IBD turns out to be much simpler than we think. I'd actually be really happy if that was the case: I just don't see it right now.

Edit: Eh, the quote box got messed up. Never mind :p
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Theanxiousaries
Regular Member
Joined : May 2021
Posts : 424
Posted 8/17/2022 8:04 PM (GMT -8)

greenuc said...

Theanxiousaries said...

Has anyone asked Dr Pravda where we can source it

I don't believe so. The paper said its only available in Europe with a perscription as part of a treatment for some neuropathic condition.

There are supplement companies that are in the process of launching it in the states. They've responded to my inquiry (and others on this forum) that a launch is expected late this year.

I might email him. He does respond to emails. Sometimes takes a while but he emailed me the papers yesterday
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greenuc
Regular Member
Joined : Sep 2011
Posts : 287
Posted 8/17/2022 8:10 PM (GMT -8)
Please let us know if you hear back from him!
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Mark4623
Regular Member
Joined : Jun 2022
Posts : 56
Posted 8/18/2022 3:53 AM (GMT -8)
There is a company that will have it by the end of the year in soft gel form. I got an email from the company yesterday stating so. If interested, look at my profile, and contact me, and I will give you the company name so that you can keep an eye out for it.
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Michelejc
Forum Moderator
Joined : Jan 2011
Posts : 2844
Posted 8/18/2022 5:57 AM (GMT -8)

VanJordan said...
There is no point in talking about mesalamine or other 5-ASAs. Although they have a mild antioxidant function, it is insufficient for a lot of UC sufferers because the action is topical. 5-ASAs do not interact with the intracellular machinery that regulate H2O2. It can only possibly neutralize some topical H2O2. And because they are derivatives of salicylic acid, they cause similar side effects for some people in terms of disturbance to the GI lining. When I took 5-ASAs orally, I had stomach bleeding. When I took them rectally, my rectum became so inflamed that I had a rectal prolapse. I realize they work for some people but for those of us who are highly refractory, there is literally no point.

Again, the usual suspects can't seem to understand what is making people upset. They think it's that we don't want Pravda criticized whatsoever, when actually it's that you're vile, vicious bullies who are personally attacking posters on this forum for simply saying that modern medicine has a poor track record -- because it does. But the responses to simple discussion have been sociopathic. They are vicious bullies who attack your humanity rather than discuss ideas, and then when you call them on it, they attack you more.

If you weren't so defensive and personally attacking people, there would not have been hostilities. You started it. So you can stop at any time and we can resume our adult conversation about treatment alternatives. Seriously, just stop.

Conventional medicine does not work on my UC. I literally have zero interest in talking about it. It's useless and holds no interest for me. I have been researching alternatives for years now. That's where my interest lies. Not because I'm "anti-modern medicine" but because it doesn't work. I will not continue to waste my life looking at what conventional medicine does. If it works for you, great. All the power to you. I am here to discuss alternatives, which is why it's offensive when the usual suspects show up to change the goal posts and start personally attacking me, calling me a "quack" and accusing me of thinking HW is my little kingdom just because I want one thread dedicated to discussing an alternative without a bunch of karens showing up to try and persuade people to talk about conventional medicine. I am innocent of wrongdoing. I am simply a patient looking for alternatives for my disease. I do not want a colectomy. I want to live, I don't want to die.

Now go away. Seriously... leave me alone. You are irrelevant.

You are calling people a bunch of "Karens" and "irrelevant" This will be your second warning. The owner of this forum already gave you one warning.
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Mark4623
Regular Member
Joined : Jun 2022
Posts : 56
Posted 8/18/2022 6:00 AM (GMT -8)
Is Van Jordan banned??
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Hambo88
Regular Member
Joined : Feb 2018
Posts : 257
Posted 8/18/2022 6:42 AM (GMT -8)
i think not yet smile his profile seem to be living..

Please finish on both side this sheety talking..
Discuss only study, pravda,antioxidant.
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Mark4623
Regular Member
Joined : Jun 2022
Posts : 56
Posted 8/18/2022 6:45 AM (GMT -8)
Hey Hambo88. Please send me an email so we can talk. Thanks
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Mark4623
Regular Member
Joined : Jun 2022
Posts : 56
Posted 8/18/2022 6:47 AM (GMT -8)
the address is in my profile
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Hambo88
Regular Member
Joined : Feb 2018
Posts : 257
Posted 8/18/2022 8:11 AM (GMT -8)

Michelejc said...

VanJordan said...
There is no point in talking about mesalamine or other 5-ASAs. Although they have a mild antioxidant function, it is insufficient for a lot of UC sufferers because the action is topical. 5-ASAs do not interact with the intracellular machinery that regulate H2O2. It can only possibly neutralize some topical H2O2. And because they are derivatives of salicylic acid, they cause similar side effects for some people in terms of disturbance to the GI lining. When I took 5-ASAs orally, I had stomach bleeding. When I took them rectally, my rectum became so inflamed that I had a rectal prolapse. I realize they work for some people but for those of us who are highly refractory, there is literally no point.

Again, the usual suspects can't seem to understand what is making people upset. They think it's that we don't want Pravda criticized whatsoever, when actually it's that you're vile, vicious bullies who are personally attacking posters on this forum for simply saying that modern medicine has a poor track record -- because it does. But the responses to simple discussion have been sociopathic. They are vicious bullies who attack your humanity rather than discuss ideas, and then when you call them on it, they attack you more.

If you weren't so defensive and personally attacking people, there would not have been hostilities. You started it. So you can stop at any time and we can resume our adult conversation about treatment alternatives. Seriously, just stop.

Conventional medicine does not work on my UC. I literally have zero interest in talking about it. It's useless and holds no interest for me. I have been researching alternatives for years now. That's where my interest lies. Not because I'm "anti-modern medicine" but because it doesn't work. I will not continue to waste my life looking at what conventional medicine does. If it works for you, great. All the power to you. I am here to discuss alternatives, which is why it's offensive when the usual suspects show up to change the goal posts and start personally attacking me, calling me a "quack" and accusing me of thinking HW is my little kingdom just because I want one thread dedicated to discussing an alternative without a bunch of karens showing up to try and persuade people to talk about conventional medicine. I am innocent of wrongdoing. I am simply a patient looking for alternatives for my disease. I do not want a colectomy. I want to live, I don't want to die.

Now go away. Seriously... leave me alone. You are irrelevant.

You are calling people a bunch of "Karens" and "irrelevant" This will be your second warning. The owner of this forum already gave you one warning.

if u warn Van Jordan please warn the other members on the other side. thank you
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Michelejc
Forum Moderator
Joined : Jan 2011
Posts : 2844
Posted 8/18/2022 8:16 AM (GMT -8)
ANYONE who is disrespectful will get warnings. Isn't it enough that we all are trying to deal with solutions to UC? It gets very stressful when people are not respectful of other people's opinions.
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Hambo88
Regular Member
Joined : Feb 2018
Posts : 257
Posted 8/18/2022 8:24 AM (GMT -8)
sorry i did not see any other warning

what is your problem with irrelevant?

Karens is also not too hard, but i dont understand why problem that sby's opinion is irrelevant...

we dont have to accept all the other members opinion..ergo more member opinions are irrelevant.

Post Edited (Hambo88) : 8/18/2022 9:31:02 AM (GMT-7)

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Michelejc
Forum Moderator
Joined : Jan 2011
Posts : 2844
Posted 8/18/2022 8:34 AM (GMT -8)

Hambo88 said...
sorry i did not see any other warning

what is your problem with irrelevant?

Karens is also not too hard, but i dont understand why problem that sby's opinion is irrelevant...

we dont have to accept all the other members opinion..ergo more member opinions are irrelevant.

"Irrelevant" is just another way to "dismiss" someone's opinion. It's disrespectful. As far as who else got a warning, the Mods do not need to explain who did and who did not. Just because you didn't see any other warnings, does not mean that one was not given.

So, get back to the thread topic please.
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cooper360
Regular Member
Joined : Jul 2010
Posts : 179
Posted 8/18/2022 8:37 AM (GMT -8)

Michelejc said...
ANYONE who is disrespectful will get warnings. Isn't it enough that we all are trying to deal with solutions to UC? It gets very stressful when people are not respectful of other people's opinions.

Yes it is stressful….I only saw VJ as helpful…with in depth research, never condescending,always with well researched information! Never pushing his agenda, only enthusiastically relaying his success with the hydrogen peroxide theory! A harder look needs to be applied to the other members…some worse than others! I feel for some reason, Van Jordan was targeted!
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Michelejc
Forum Moderator
Joined : Jan 2011
Posts : 2844
Posted 8/18/2022 8:43 AM (GMT -8)
Please get back to the thread topic. thank you.
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Mark4623
Regular Member
Joined : Jun 2022
Posts : 56
Posted 8/18/2022 8:48 AM (GMT -8)
This thread topic is dead. Just my opinion
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Mark4623
Regular Member
Joined : Jun 2022
Posts : 56
Posted 8/18/2022 8:49 AM (GMT -8)
Hambo88,

Shoot me an email. Thanks
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Hambo88
Regular Member
Joined : Feb 2018
Posts : 257
Posted 8/18/2022 9:06 AM (GMT -8)
i sent.
thx.
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Mark4623
Regular Member
Joined : Jun 2022
Posts : 56
Posted 8/18/2022 9:38 AM (GMT -8)
Replied already Hambo
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