Beave--you made me laugh out loud.
Hi. I have both UC and Severe Fistulizing Crohn's. I had very fast healing with Remicade which led to scar tissue, obstructions and a colostomy. My Colorectal surgeon left my anus and the Hartman's pouch (part of my sigmoid) in case we wanted to try to hook me back up. Once I had surgery I felt so much better. From my colostomy up I feel pretty good. I still have issues with narrowing because of the scar tissue.... But I feel much better from my colostomy on up. I am not going to be reattached and will have my anus removed probably next year.
I still have issues with the anus/rectum and remaining sigmoid area. I think that portion of my colon causes me to have many of the symptoms of Crohn's...(nausea, night sweats, fatigue, psoriasis... Etc. ) plus that's the portion of my colon that is fistulizing.
Wearing a colostomy bag is what you make it. I don't have any problems with it. I never forget it's there....because I am just so grateful for it. My colostomy saved my life and gave it back to me at the same time. My Colorectal surgeon once told me that the individuals that were the sickest with the poorest quality of life usually adjust and appreciate their ostomy much faster than someone that was not as sick. I can understand that. My quality of life was awful. I could not control anything and I could barely leave the house. (I carted a port a potty around in my back seat it was so bad) There is a learning curve that can be frustrating. There are challenges with it at times.... But my life is absolutely better since I was given an ostomy.
On the complementary medicine--nothing I tried put me in complete remission. I wish I had had the surgery sooner and utilized "complementary medicine" to complement my colostomy surgery, Remicade and Methotrexate. The SCD diet and supplements I utilize help keep my symptoms under control along with my prescribed meds.
If you have any questions I will gladly answer them.
Post Edited (clo2014) : 8/15/2022 9:11:10 AM (GMT-7)