Update on Son

Hi...i was thinking about your son yesterday. I didnt realise you were in Scotland.
Is he still on oral mesalamine? And are the enemas 1, 2 or 4g?
It's possible his hormones are playing some part in his issues at this point.

Let us know the outcome of the calprotectin.
Re his weight...if he's growing in height, still active, and not lost weight, it seems not extreme. He could consider additional supplementation of proteins and vitamins. Someone just mentioned Modulen IBD powder...wonder if that would help?

q

I completely understand your concerns regarding aza and other meds for your son and I am happy to hear he is growing if not gaining weight. Hopefully these new test results will shed some light on the next move for him and remember long term inflammation may be worse for him than moving up the ladder. I am a wreck when we have to adjust meds for my almost 13 year old (not IBD) and tend to over think things. Hope you find a solution for him that works soon.

Hi all,

Thanks a lot for the responses. This place helps through the journey.

Quincy,

Yes Scotland, for our sins lol. He still takes the oral stuff and is still very active, very normal kid but 6 months ago calprotectin was 1800! Hopefully it’s came right down. Only went twice today, only blood present once so he is definitely flaring. It’s 1g enemas they always give him, I didn’t even realise there was stronger ones. That’s maybe worth a shout, he does his enema himself now and it don’t seem to bother him at all. He does it right before he goes to sleep and usually poops it out before school in the morning.

The aza does not scare me to be honest, a couple of years ago I was unstable and struggling to understand my son having a chronic condition but as time passes it’s not so bad. Certainly not for him as he handles like a champion. Only bad thing recently is he’s researched a bit himself and read some of the risk factors etc online.

I am at the stage also we’re i believe he has a good gastro. He’s really wanted to stay on mesalamine and is big on the oral and rectal regime however, has reassured me he has lots of success stories for kids on aza and biological meds even local in our area.

Hi, so good to see an update on your son. I wish you had nothing to report, but I am happy you're feeling less stressed about the options. Realistically, he has a ton of options, so try not to stress. This illness is such a whirlwind. Please keep in touch.

Hi,

My son is also suffering from hemmies/piles - one of them comes out when hes straining to do the toilet, and is bleeding.

He showed me and I was really quite shocked at the size of it. Anyone any tips to shrink this or heal quick?

This is rough the now, seems like one thing after another.

I would go to the pharmacy & speak with the pharmacist about getting something that does not require a prescription until you can discuss this with his doctor. If he is having constipation issues this will need to be addressed, otherwise the hemorrhoids will be an additional problem to deal with.

I hope you can get him some relief.