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IBD and Kidney Stones

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Ulcerative Colitis
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clo2014
Veteran Member
Joined : Feb 2015
Posts : 1848
Posted 2/6/2023 5:38 PM (GMT -8)
FlowersGal,

I ordered your supplements online. What a price difference!!! Thanks so much for sharing. I've been taking 2 a day for about two and a half weeks..... So far so good.

Estrogen cream still at 1/2 to 3/4 and Dmannose is at 6 grams a day..... So things are holding steady on holding off UTIs.... Thank God.

Today I finally went in to see the pain management doctor. The paperwork frustrated me. She wanted me to sign a form stating she was my primary care physician and that she would be able to call me and request a urine test whenever she felt it was necessary and that I'd have to deliver it to LabCorp that day to retain her as my doctor... before she would prescribe any medications today. (I was also there about the knee ablation) I explained that I have a team of doctors and my current PCP and GI work together, so I didn't feel comfortable signing the form. She said she'd review my images and decide if she could help me with the ablation. I didn't feel comfortable with her. She didn't know what PG was and she stated that if she had any Crohn's patients at the Mayo Clinic she wasn't aware of it??? (Where she worked previously) That really confused me. I thought their IBD department worked closely with Pain Management department. She didn't seem to be aware or show concern for how medication's or procedures can impact IBD warriors. (But her PA that I spoke to first was very aware--but she had just started working for this doctor.) I asked her for the number of procedures she has done--and she said she does them every day so it was hard to know. Same thing about her success rate. She wasn't able to tell me any of her statistics. Is it just me...or should a doctor know what her statistics are??? She was recommended by my knee surgeon. I left. (Now I'm wondering if I should find a new knee surgeon guy,)

I went home and Called the pain management doctor my PCP recommended and he immediately knew what PG was, knew his office vs national averages... stated that he currently does not have any IBD patients that he is working with. He usually works with knee surgeons and IBD is not something he sees frequently--but he is going to call my doctors and discuss a plan with them. I'm going to go see him--

Is it just me... Or do you all interview your doctor's and ask these types of questions too? The first doctor acted offended.... Or "put out" like I was already a difficult patient.... Maybe I am.... Hmmmmm

Clo
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straydog
Forum Moderator
Joined : Feb 2003
Posts : 19353
Posted 2/7/2023 12:08 AM (GMT -8)
Clo, I've been with many different pain mgt drs since 1995! This is when they first started out, lol. None of them has ever told me or said they would become my primary physician. They are not trained to do that & their practices are so busy they wouldn't have the time.

Many years ago they started having patients sign a form that states they will only obtain pain medication from the dr, unless someone ends up in ER. Of course chances these days of ER giving someone pain medication is like winning the lottery.

about the urine tests, pain mgt drs do random UA's it's in the guidelines set out by feds. You would be surprised at how many people fail those UA tests. I use to get offended at first but got over it, I only the meds the dr gives me.

At least she was honest about not knowing about PG. She may have worked at the Mayo Clinic but very few pain mgt drs took care of IBD patients. Pain mgt at the Mayo is obsolete now, they are doing joint replacements without any post op pain medications. I've read several of their articles about this & they are very proud that they can send patients home from surgery without pain medication. Their big claim is the patient heals faster & they don't have to worry about addiction issues. The Mayo is on the bottom rung with me as far as pain goes.

Good luck with the next dr.
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CCinPA
Veteran Member
Joined : Dec 2014
Posts : 2535
Posted 2/7/2023 4:06 AM (GMT -8)
A few years ago my PCP sent an email to all patients saying they would require urine analysis at each appt for all patients on long term pain or certain other meds. It didn't apply to short term meds given for say a pinched sciatic nerve. But there weren't any "random" drug tests. That becomes policing and I wouldn't go to a doc that said they did something like you described. What would she do if you were out of town when she wanted to do a random test and you missed the test? Would she refer you to law enforcement? And her requirement of being your primary care physician is very strange. If she going to treat all the kinds of things PCPs do ... sore throats, flu, hypertension, high cholesterol, rashes, etc etc etc? I think you made the right decision to leave.
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