Posted 10/7/2022 9:21 PM (GMT -8)
I can only speak for myself. I developed bloody, mucus diarrhea in 2012 after food poisening. I had Colonoscopies in 2012, 2013, 2014 and 2015. They ALL showed little inflammation, no UC or Crohns. My blood work was normal during that time period also. I was going to the rest room 20 to 30 times a day. Nothing would stop it.
In mid 2015 I was standing there when a fistula broke thru on my abdomen and waste started pouring out like a fire hose. I went to a little country hospital by my house, who sent me back to the the same ER and doctors that had previously told me "nothing was wrong with me". They suddenly got serious. I was transferred to yet another hospital where I was diagnosed with UC and Crohn's. I was septic and almost died. My blood pressure plummeted and I coded out after one of my surgeries. It took from 2012 to late 2015 for my intestines to show slight inflammation, my blood work was just alittle off, yet I was pooping blood 20 times a day, vomiting, had multiple fistulas develop plus the extra intestinal symptoms. The learning hospital was flummoxed but they all agreed that I was in dire shape, I showed all the symptoms of UC/Crohn's but the scopes and blood work were pretty much normal--even after the fistulas started breaking thru. I was just grateful to finally have someone look at my like I was an ill patient...and not a hypochondriac.... and give me a diagnosis. My blood work and scopes did not change until late 2016 or early 2017. Then suddenly everything came together and definitely said UC and Crohn's. It was one hot mess.
So yes. You absolutely can have your scopes and your blood work come back normal and still have IBD symptoms. It's only after your IBD gets the upper hand that changes start to take place for some people. It took me 3 and a half years and 4 doctors before I was finally diagnosed.... Then another year or 2 for my scopes and blood work to change.
Most of my journey from 2015 onwards has been followed and documented by a learning hospital team of doctors who are the head of their departments AND they still have calls with other specialists trying to understand what's going on. So your journey, your experiences, may be different from others on here.
Based on my experiences, I'd find another doctor that listened to me and erred in the side of caution.
I hope you can find a better doctor and that you feel better soon.