It’s looking like UC

Sja13, when will you be seeing your dr again? If you are not seeing any improvement perhaps send your dr a note through the patient portal. No question about it now, you have UC.

I hope you get to feeling better.

Welcome to the club! Sorry you had to join tho! 😉

Also found VSL#3 beneficial but the dose needed (3600 billion cfu's/day for adults from trials) is very expensive if, as in my case, GP's or GI's, refuse to prescribe. There is a coupon scheme from the manufacturers in the US and It's possibly more readily prescribed there?

I will be seeing my GI doctor on Friday to get a game plan in place. Starting my list of questions now. So any advice on what I should be discussing with him would be helpful. I have been on mesalamine oral and budesonide. I do feel as though my bleeding has decreased a little so hoping that means something is going in the right direction. I am taking probiotics but not the ones you have listed, so pricey!

Align probiotic for women’s health…probably need to do more research on my options but I made a quick decision at the pharmacy when this was all starting 🤷🏻‍♀️

Wow...why stop the suppositories... it's a both-end approach. And...UC starts at the rectum! Anyway...request the enemas.

And just a reminder...he just might say that they won't help because you have pancolitis....not true. Treat the areas of rectum, sigmoid and into the descending. The suppositories are limited in dosage and action, but they are better than nothing.
Make a list of questions, etc, and be armed with information.

Re probiotics...Align is only one strain, low dosage and cost is high for just that. When you're done with that, venture into others.
I take mine at bedtime, no discomfort from gas, and good when the digestive tract is not as active.

Let us know how your appt goes. It's good you're starting to feel better.

q

Good idea on the suppositories. Looking forward to your update with the GI.

q