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Medicare & medical & prescription costs

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Ulcerative Colitis
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FlowersGal
Veteran Member
Joined : Feb 2017
Posts : 1633
Posted 12/4/2022 8:43 PM (GMT -8)
I am by no means an expert but have been on Medicare for several years now. The question was raised in another thread and I didn’t want to hijack it so thought I would start a new topic.

Medicare will pay 80% of most medical costs. For the other 20% you will need a supplemental insurance. There are several different plans all paying different levels and some with deductibles and copays. The monthly costs differ depending on which plan you choose. My advice is to get the one that pays the most with no copays or deductibles. For me that was plan F. It picks up the whole 20% with no deductibles or copays. It’s monthly cost is probably the most expensive $190/month) but well worth it in the long run and compared to what private insurance would cost. For instance I pay $0 for my entyvio infusions. I think plan F is no longer available but if not then plan G is pretty close.

Then in addition you need a plan D for your prescription medications. These are the real issue because as of now there’s no yearly cap and UC medications are enormously expensive for the most part. I’ve been using GoodRX a lot. But mark Cuban’s Cost Plus Drugs is a good choice. They only sell generics but they just added a generic for Lialda that they sell for about $40 for a month supply. I think the cost on my plan is around $250. Criminal isn’t it but that’s another topic.

Another option is to contact the drug manufacturers and ask if they have another assistance program for those who don’t qualify for the copay program (Medicare patients do not) and can’t afford their medications. They don’t really advertise these so you have to call and ask.

I was told the Medicare advantage plans don’t pencil out that well and have a lot of hidden costs but I don’t know anything about them personally.

It’s well worth your time to talk to a Medicare specialist before you sign up. There’s no cost to you and they get paid by the government and not by the insurance companies so are impartial to the different companies.
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Old Hat
Veteran Member
Joined : Feb 2007
Posts : 5854
Posted 12/4/2022 10:53 PM (GMT -8)
There was a helpful discussion about Medicare + retiree Rx coverage here about a month ago in a thread started by EnjoyGolf. He had raised the issue of an employer's retiree health insurance offering vs. Medicare supplement plans & Advantage programs. As I recall, Straydog made an excellent statement (with caveats) about IBDers' need for retirement health insurance that is the most flexible, which rules out Advantage programs. Maybe we'll hear more from EnjoyGolf after he weighs his choices and decides what likely applies best to his situation, with biologic Rx probable in his future. / Old Hat (40+ yrs with left-sided UC; in remission taking Colazal, also a veteran of 2012 struggle to keep Colazal in production)
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enjoygolf
Regular Member
Joined : Jan 2012
Posts : 230
Posted 12/5/2022 9:43 AM (GMT -8)
I did a lot of research and stayed with Regular Medicare with a Supplemental Plan for 2023. Here is some of the information that I found out about the Advantage Plan that is now offered through the Company I retired from.

I checked with a Friend/Golfing Buddy who is a broker for senior insurance and he looked at all the information I had on the Plan being offered. He said this plan is not available on the open market and he had not seen one this good. He said it had the lowest MOOP (max out of pocket) he had seen for Medical A & B (C on Advantage Plan). He said the issue becomes what is required for Part B services (Biologic Drug )approval.

As far as prescription drugs the Advantage plan offered has no deductible and all my drugs were covered. Also the Cap was also below most plan before 100% coverage. This issue may go away in 2025 if the Cap of $2,000 for drugs takes place in 2025.

I will check with some of my Retiree friends that opted for this plan to see what their experience was to help me make my decision next year.

Just my experience. I think getting help from an advisor could be beneficial when choosing which options for Medicare or Advantage plans.

Sorry to ramble on.
Golfing Bob
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straydog
Forum Moderator
Joined : Feb 2003
Posts : 19339
Posted 12/5/2022 9:57 AM (GMT -8)
My husband & I have regular Medicare along with supplemental plans. We both are grandfathered in on our supplemental plans. I have plan F which is no longer available, plan G is currently a good one unless they have changed things. Once we turned 65 our supplemental picks up the deductibles for A&B. As it stands now, infusion medications are covered by Medicare. United HealthCare is who our supplemental with.

Plan C is basically the Advantage Plans. Those you really need to understand the coverage. Some of these plans will only cover you for in state care only. Meaning if you get sick out of state & need treatment the plan will not pay for it. Personally, I will never switch to one because they can be limiting & I can see any dr I want without a referral. I always make sure they accept Medicare assignments. Every year you have to check & see if your dr is on the plan & your medications, just like with private insurance. I've had Medicare since 2006, not one claim has been denied, same with my husband.

Plan D is the prescription coverage & there are lots of different plans available.

When I first went on Medicare my husband was still working & we had great insurance. I chose to stay on his insurance as my supplemental because of the prescription coverage. We had great coverage. However, as far as what it paid drs & hospitals after the deductible was met, it was pennies on the dollar & I had to pay out of pocket. It was worth it because I was on some expensive meds at the time.

If anyone is unsure what to do by all means visit with a broker they are free of charge.
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CCinPA
Veteran Member
Joined : Dec 2014
Posts : 2524
Posted 12/5/2022 11:43 AM (GMT -8)
This is helpful. Question: do the Advantage plans completely replace Medicare -- it's not just a supplement to Medicare, correct?
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Lka58
Regular Member
Joined : Nov 2018
Posts : 60
Posted 12/5/2022 11:58 AM (GMT -8)
Thanks everyone!
Very helpful information. Still lots to learn.
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enjoygolf
Regular Member
Joined : Jan 2012
Posts : 230
Posted 12/5/2022 12:24 PM (GMT -8)

CCinPA said...
This is helpful. Question: do the Advantage plans completely replace Medicare -- it's not just a supplement to Medicare, correct?

That is correct. Advantage Plans replace Medicare Part A and B.
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straydog
Forum Moderator
Joined : Feb 2003
Posts : 19339
Posted 12/5/2022 12:27 PM (GMT -8)
@Enjoygolf, when discussing this with your friends, please keep in mind your health conditions will be completely different than theirs.

@CCinPA, the Advantage Plans are completely separate from Medicare & a supplemental, you select one or the other only. I will also put this out there, when going to an Advantage Plan it can be very difficult switching to regular Medicare the following year.

I always see signs in my drs offices stating "we no longer see patients with ______insurance effective______. My pcp & 2 specialists has said Advantage Plans are great for people that are healthy overall. A couple of or friends have had lots of issues with their plans.
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enjoygolf
Regular Member
Joined : Jan 2012
Posts : 230
Posted 12/12/2022 8:13 PM (GMT -8)
I plan to use a broker to help with the decision along with actual feedback on the new plan. Now that the plan is available in 2023 will be able to check coverage for Entyvio compared to Part B Medicare plus Supplemental Plan cost compared to MOOP deductible.
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CCinPA
Veteran Member
Joined : Dec 2014
Posts : 2524
Posted 12/13/2022 5:27 AM (GMT -8)
EnjoyGolf ... The open enrollment deadline may have ended for this year. I don't know if you can still make any changes for 2023 coverage.
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enjoygolf
Regular Member
Joined : Jan 2012
Posts : 230
Posted 12/13/2022 8:39 AM (GMT -8)
I stayed on Regular Medicare for 2023. Just looking ahead to 2024 since my Retiree Insurance will no longer help with Gap Plan coverage-just offering Advantage plan for 2024.
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geezernow
Regular Member
Joined : Nov 2017
Posts : 313
Posted 12/13/2022 9:04 AM (GMT -8)
Oh man!! A person needs a dang lawyer to buy the proper health insurance now days. Thank you for all the info. If ya don't know what questions to ask, you don't get the answers!
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Sara14
Veteran Member
Joined : Mar 2007
Posts : 7646
Posted 12/13/2022 4:15 PM (GMT -8)
I don't understand this. So, once I get older and retire, then I can no longer get my Xeljanz (or whatever I'm on then) for free/super cheap because I will no longer be eligible for the co-pay assistance plans. That's absolutely ridiculous and horrible.
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CCinPA
Veteran Member
Joined : Dec 2014
Posts : 2524
Posted 12/13/2022 4:23 PM (GMT -8)
I agree, Sarah. It's blowing my mind. I turn 65 in Jan 2024 so next year I have to really dig into all of this

Anyone you is on Medicare and gets infused med like remicade or entvio -- am I correct that Medicare only covers 80% of the cost and I would need to have a supplement for the other 20%?
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enjoygolf
Regular Member
Joined : Jan 2012
Posts : 230
Posted 12/13/2022 4:53 PM (GMT -8)
You are correct. You need a Supplemental (Gap) Plan to Bridge the 20% Gap from regular Medicare coverage..
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Old Hat
Veteran Member
Joined : Feb 2007
Posts : 5854
Posted 12/13/2022 8:35 PM (GMT -8)
Geezer and CC, have a look at Website of the Alliance for Retired Americans. They offer a free e-newsletter that one can sign up for online, which is useful because they keep up-to-date on govt. changes to Medicare & Social Security policies. They will be covering the possibilities for improved health insurance coverage that are supposed to take effect in 2025, such as the annual cap on out-of-pocket Rx charges. Their information is geared to moderate-income folks. / Old Hat (40+ yrs with left-sided UC; in remission taking Colazal)
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geezernow
Regular Member
Joined : Nov 2017
Posts : 313
Posted 12/14/2022 6:45 AM (GMT -8)
Thank you Old Hat!
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FlowersGal
Veteran Member
Joined : Feb 2017
Posts : 1633
Posted 12/14/2022 3:41 PM (GMT -8)
Yes … there’s supposed to be a yearly cap on out of pocket expenses (I heard $2k which will help tremendously! Also I heard they will allow Medicare to negotiate prices, which I am assuming (and hoping) it may then allow us to qualify for copay assistance.

Regardless, if you go with regular Medicare (and I strongly suggest you do) you NEED a supplemental policy to cover the 20% that Medicare doesn’t. Because for those of us with chronic disease, that 20% can add up in the long run, and unlike most private insurance, there’s no yearly cap on out of pocket expense.
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Old Hat
Veteran Member
Joined : Feb 2007
Posts : 5854
Posted 12/14/2022 5:58 PM (GMT -8)
With private insurance they can change their Rx drug formularies pretty arbitrarily, a valid reason to opt for original Medicare over the Advantage plans. The Alliance for Retired Americans is one of the seniors' organizations that has been watchdogging Advantage plans in recent years, and reporting to Congress on harmful aspects of their management practices affecting policy changes. (Meaning: Advantage plans can mislead and cheat seniors out of some needed care coverage.) / Old Hat (40+ yrs with left-sided UC; in remission taking Colazal)
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CCinPA
Veteran Member
Joined : Dec 2014
Posts : 2524
Posted 12/17/2022 11:29 PM (GMT -8)
Thanks, Old Hat! It's good to know I will be guaranteed at least basic insurance once I am on Medicare, but it's a real bummer to know I will be have to pay more than I do now because I won't be able to get co pay assistance. Why in the world does congress think this is in anyway ok???
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Old Mike
Veteran Member
Joined : Jan 2007
Posts : 4074
Posted 12/18/2022 8:49 AM (GMT -8)
Advantage plans are not medicare,they are insurance.
Anyway I have been on Plan F HD for the past 9 years about 65/month so in round numbers
between me and the wife save about 300/month over regular plan F. Wife been on longer,so just go with 10 years. That is like 36,000 savings. Last years surgery was about, 180,000 I paid about
2400. But had to put up with the billing paper work.which is ok if you can function.
Of course now evey year they keep raising the deductable,and of course medicare cost more every year.
Then of course I can get screwed with higher rate increases since no one else can get plan F,and those who
can switch to G without underwritting may do so. Therefore plan F is left with old sick people.
Medicare is a minefield for old folks to figure out,research well. Lots of good youtube videos
on pitfalls. Community rated supplement plans might be best if you can find one.

Oldmike
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CCinPA
Veteran Member
Joined : Dec 2014
Posts : 2524
Posted 12/18/2022 11:28 AM (GMT -8)
Does anyone know if you can just keep your employer insurance and skip medicare as long as you are working? And if you do that will you keep the copay assistance programs? I work from home and have no plans to retire as long I am able to do my job (financial/computer coding).
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straydog
Forum Moderator
Joined : Feb 2003
Posts : 19339
Posted 12/18/2022 11:57 AM (GMT -8)
@CCinPA, as long as your employer has no clauses on active working employees turning 65 you can continue to use private insurance. You can verify this with HR. Also, check at SSA.gov it will also give you info.
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FlowersGal
Veteran Member
Joined : Feb 2017
Posts : 1633
Posted 12/19/2022 10:35 AM (GMT -8)
I have to say Medicare is sooooo much better for me than private insurance was. The prescription plans are way confusing — they are the big drawback. There are new rules going into effect so hoping that will be a big help. I paid so much in insurance costs and copays my last year on private insurance! If I remember right is was almost 20k. That was the year I was diagnosed and spent 18 days in the hospital.
My entyvio infusions alone would cost me about 7k a year without my supplemental so the $185 /month I’m paying is well worth it — not to mention no copays for dr or hospital visits.

My sister-in-law is still working and turned 65 last year. I think you still need to sign up for Medicare even if you are sticking with employer insurance?

But each employer has different rules. I think her employer’s insurance is acting as her supplemental with Medicare as primary.
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Lynnwood
Forum Moderator
Joined : May 2005
Posts : 8110
Posted 12/19/2022 12:00 PM (GMT -8)
I thought if you didn't sign up for Medicare within a few months of your 65th birthday either you could NEVER signup later or there is a big penalty for signing up later. I forget which.
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