I have a colostomy. They did not remove all of my colon/large intestine. The portion right above the sigmoid and then down to the anus had severe scar tissue which caused obstructions. They removed the worse portions, left some of the sigmoid in the Hartman's pouch and left the rest of the colon alone. They thought that with Crohn's disease our wisest course of action was to save as much colon as possible. I still have a build up of scar tissue intermittently throughout my large intestines.... But so far... Knock on wood... I am doing ok as long as I am careful. I still have symptoms and health issues but... They are better than being septic and in the hospital. (My expectations are pretty low and fluid because I always want to be able to know that things could always be worse. Its my coping strategy.)
When they remove your colon completely I believe that's an ileostomy. Individuals with an ileostomy usually have to have a higher liquid intake, they have a smaller opportunity to absorb nutrients because of the shorter intestine length, and a more liquid "output" than individuals with a colostomy.
Please correct me if I am wrong about
the ileostomy people.
It's sort of confusing.... Even for me. After my colostomy they scheduled a APR to remove the sigmoid section in the Hartman's pouch---but we couldn't do that so it evolved into a "modified APR". I coded on the operating table so they couldn't remove that sigmoid portion which is/has been evaluated as active with severe Crohn's....
But from the colostomy up... My colon (large and small intestines) look great--even with the build up of scar tissue and narrowing. My CRS thinks that little portion of my remaining sigmoid is what is causing the majority of the Crohn's extra intestinal symptoms.
I'm just frustrated. I had hoped that one day all of my symptoms would be gone... But I guess that this is as good as it's gonna get. I am grateful though because it... Knock on wood..... Could always be worse... Lol...
Hope this explained it.
Post Edited (clo2014) : 1/3/2023 6:40:21 PM (GMT-8)