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Do you take Nonsteroidal anti-inflammatory drug like Motrin or Advil

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Ulcerative Colitis
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Posted 1/26/2023 8:38 AM (GMT -8)
I am having nasty perichondritis infection and it is so painful and Tylenol didn't help. Plus I was taking Tylenol for so long and tired of pain. So decided to take Advil once in a while. I am aware, it is NO for us but pain was unbearable. Also I am mildly flaring with blood in stool and 1 or 2BM and am supposed to go on biologics but recently having so many infections so can't start.
My question is do you see increase in symptoms right away after NSAID? I have little blood most of the days but recently it's like really fresh. So wondering Advil caused it.
Also after so many infections in last 2-3 months, wondering if it's time for surgery? Symptoms are not bad but immune system is messed up taking 6MP for 10 years.
Posted 1/26/2023 9:04 AM (GMT -8)
I take Advil for dentist appointments. I would think that taking it "once in a while" would not immediately cause symptoms... but I don't know. Maybe if you are already flaring it can help to make things worse.
Posted 1/26/2023 10:33 AM (GMT -8)
"Once in a while" is different than "for a period of time". Were you also on antibiotics?

What has caused the perichondritis? Sounds terribly painful.

Re surgery...I suggest you venture to discuss your options with a surgeon. The determination is certainly quality of life.

Keep us updated...
q
Posted 1/26/2023 11:46 AM (GMT -8)
For the past several decades, the usual advice for IBD patients is to avoid all NSAIDs due to increased risk of flare or worsening of existing inflammation.

However, some recent studies have shown that the above advice may be unnecessarily strict.

The risk of occasional NSAID use was shown to be quite low for both UC and for Crohn's.

Even short term use was shown to be a low risk for UC and Crohn's.

Long term use is somewhat risky for Crohn's, and still fairly low risk for UC patients.

So, long story short, a few days of NSAID use for a UC patient is probably a low risk endeavor as far as exacerbating your UC is concerned.
Posted 1/26/2023 11:51 AM (GMT -8)
Pam, what antibiotic were you & for how long? Did you take any probiotics during this time?
Posted 1/26/2023 2:09 PM (GMT -8)
I don't know how I got it exactly and have some theories but not sure. I went right away to urgent care and started on Ciprofloxacin 500 mg/2 day for 10 days and had EMT appointment 2 days after and he didn't see any thing needs to be drained. He didn't give me any pain medicine and I kept taking Tylenol without help and there were days I just sat and did warm compress all night. Finally went back to EMT and he gave me MethylePrednisol 6 days pack. It made huge difference in pain but ear was swollen and I had my primary care appointment and he gave me Cephalexin500 mg for 7 days. My pain is very little but still swollen and tender. I wish EMT had given me IV antibiotics. I don't know how long it will take to resolve completely.EMT keeps saying it takes long time. Hoping it resolves soon and scared of other things pop up with it on google. Praying really hard.

I have been on 6mp for 10 years and recently stopped as those TPMG(?) levels were extremely high. I have never been sick like this while on it. I already have 5 rounds of antibiotics in last 5 months.

Meanwhile GI office called as I was set for entyvio. I explained to them and now meeting GI soon too. Definitely bringing conversation about surgery
Posted 1/26/2023 4:05 PM (GMT -8)
I avoid advil, aleve etc., but when I have really bad pain from my knees or a pinched nerve I take tylenol and regular coated aspirin at the same time. That would probably make a doctor's head spin, but it works for me and it's very rare that I have to resort to that.

There are lots of new meds and not all of them are biologics so you might have other options if you aren't sure you want surgery.
Posted 1/26/2023 4:15 PM (GMT -8)
Can you use rectal meds? They might help keep the flare from getting too bad until you can decide on the way forward.
Posted 1/26/2023 7:46 PM (GMT -8)
When I am really suffering I take Excedrin..extra strength. It's the only thing that can help the migraines I get from methotrexate. Even then it's 2 tablets limited to every other week if needed..

I already have a colostomy. I have noticed that after I take it my output is thinner.

On the infections.... I was having a terrible time with recurrent UTIs. Oral antibiotics were not working. My PCP recommended I see my infectious disease doctor.. who finally put me in IV antibiotics daily for 15 days. It did clear the infection. Perhaps that's something you could do???? Go see an ID doctor? Just a thought.

Clo
Posted 1/27/2023 5:46 AM (GMT -8)
When I have had bad pain (like a tooth that needs to get pulled) I take the arthritis version of Tylenol.
That has worked well for me.
Posted 1/27/2023 8:54 AM (GMT -8)
When my pain get bad I take the Tylenol 8 hour Arthritis strength it's extended release with a higher dose (650) of acetaminophen.

The massive amounts of antibiotics has destroyed the good flora in your gut. I' sorry that you have had to go through this ordeal.
Posted 1/29/2023 7:29 PM (GMT -8)
Thank you all. I know my gut is all messed up . I do take rectal medication and was all set to start on Entyvio but then had dry cough and Covid for weeks and now this. I am still having low grade fever. Not sure if it is infection or flare itself. Seeing ENT and GI both tomorrow. Let's see how it turns out. Scared and worried.
Posted 1/30/2023 10:41 AM (GMT -8)
Keep us updated...but both my husband and I ended up with an infection after Covid.
I had a continuing cough for months after Covid.


Hugs,
q
Posted 2/4/2023 6:28 PM (GMT -8)
My GI told me the same thing Beave said about newer studies showing nsaids are not that risky for UC. I had to take 800 mg advils after my brain surgery, and my GI just told me to stop as soon as I could handle it. I didn't notice any adverse GI affects during the 6 weeks or so that I used it daily. I wasn't really flaring at the time, though.
Posted 2/7/2023 11:38 AM (GMT -8)
My infection is still not gone. Had lymph node swollen, so another 14 days of levofloxacine 750 mg for 14 days. "Antibiotic resistance" is real thing. I have 7 days in and seems helping so praying this clears up else referral to infectious disease specialist and /or Rheumatologist . Just praying this one works. GI doctor can't start me on entyvio so will see don't know what to do. Also blood has increased little bit so I am little worry about colitis too. My GI suggest another scope since last scope was in June but I don't want to do it because my GI track is messed up and worried about infection in GI track.
Do you think asking for Uceris is good idea to bridge the time? Even my infection perichondritis is cleared, I want to wait few weeks to know for sure, its gone for good. I didn't know it takes 6 to 12 weeks to completely heal cartilage. Thanks.
Posted 2/18/2023 11:42 AM (GMT -8)
It's not necessarily a "no" for us although people here like to say that. I take Aleve for headaches/migraines (although it stopped working after I took Humira for some odd reason...worked my entire life until then). My GI said it's fine if I don't notice anything, which I never have.
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