I suggest you call and ask for a foam steroid enema initially to use during the day and the mesalamine at night. I understand the impatience. That's why I remain on maintenance and increase at first confirmed symptoms of flaring. Are you having cramping, etc...dicyclomine can help with that.
How many times a day are you having bms?
Since you have NO invaders as per stool testing, adding Imodium could be an option...I've not used it, but others do.
You could use fibre supplements to help bulk stool a bit. It can also help even peristalsis because flaring usually has the gut having some hissy fits.
How high is your inflammation?
Of course, adding the AZA is an option as well... it takes time for it to kick in as well.
Hang tough, and vent as much as you need.
Aw thank you <3 I really appreciate your response and help very much. Yeah I wasn't really proactive enough dealing with this until recently, but I feel really motivated right now to get on top of it which is good, and I think lessons have been learned from this. In particular I think what's more inconvenient, a few enemas and medicines, or being seriously ill in the worst scenario? The answer is obvious and something for me to remember.
I have been on prednisolone foam before a few years ago, I was on it for quite a long time actually (months, probably longer than is advisable XD), that does sound like it would be a good idea.
As for how many times, I haven't been counting which I probably should, it was definitely above 10, it may have dropped down a tiny bit actually but I'm not sure, maybe I'll start keeping a diary so I can keep track objectively over the weeks rather than just guessing with my memory
I haven't been eating enough fibre, thats a good idea and makes sense
my gut has definitely been having some hissy fits for sure XD my inflammation has been pancolitis unfortunately, so right the way round, I assume it's similar rn and I'm pretty sure that's what my last colonoscopy said
I think asking about
azathioprine is a no-brainer, I've never been on it before but as I read online it can come as an oral solution and I don't like tablets it just seems obvious to me to try something to add in to the mesalazines seeing as I am flaring, I can always try to come off it once I get into a remission right? I will also pick up the filgotinib tablets and have a go at taking them because like I said I actually had the bloodwork done for this, I have basically a phobia of taking tablets that means even stuff like this that I'd really like to try I can get very anxious about
and find myself not taking it, however, I will have a go with it and see how I get on because maybe there's a way I could take it. If not there's still the steroid foams, azathioprine, stuff like that that I have yet to add in and maybe over the weeks the mesalazine will actually come through and start improving symptoms noticeably which would be amazing. I am asking about
getting my appointment with doctor moved to be sooner as it was booked for a few months away, so that will be really great if I can talk to him about
all this. Sorry for long post, I'm sleep deprived so I'm just typing away lol, but this forum does help so much and discussing things with people like you is really fantastic, I'm really grateful for these amazing resources and thank you for your help
EDIT: I know I haven't tried these forms of mesalazine for a super long time so far, I haven't given up on it or anything, I just want to think about
being responsible and not letting it be a situation where the inflammation is out of control for a long time, I'm aware over the weeks there is a chance the mesalazines on its own could potentially improve everything, I just want to be ready for the possibility in case it doesn't. And I can probably always try tapering off some things once I get into a remission I'd imagine, but I don't think I ever want to come off mesalazine oral and rectal now. anyways ya I'm sleep deprived so typing tons XD
Post Edited (~ chicken wings ~) : 2/6/2023 11:09:03 AM (GMT-8)