Posted 2/11/2023 8:19 AM (GMT -8)
I was on Humira for 4 years and it worked great. Then I got pneumonia and I came off it per the ER doctors instructions. After I got over the pneumonia I was still in remission with my IBD. I asked my (then) GI if I could just stay off it, and that maybe I was in complete remission and didn’t need to be on any drug any more. He said, ok, I don’t recommend it, but let’s give it a go.
about 8 months later I started to flare. He put me back on it. It didn’t work. I had built up antibodies to it.
He said, oh yeah, that can happen if you stay off it a long time.
I was not happy! Had he told me this when I first asked about staying off it I might have went right back on it.
Knowing how well it worked for me, and knowing that IBD is a chronic life long illness.
Anyway. Moral of the story and why I am posting in this thread….
If you go on it and it works…stay on it