Posted 3/16/2023 10:54 AM (GMT -8)
Just venting here. I've been flaring badly for the past month. My gastro listened to my symptoms and then asked: What questions do you have for me? And I asked: What can I do about the flare?
He went through my chart and noticed that my Fecal Calprotectin level dramatically decreased between March and August of last year, but he didn't ask what I did to accomplish this (I took Vitamin D, got a lot of sun, was intermittent fasting, started taking CBD oil, and was also smoking spliffs every day LOL).
I told him about the severe joint pain and muscle stiffness that drove me to pause taking Humira, and he said: Get a primary care physician for that.
I feel so sad after this doctor's appointment. I feel like there is really no one in my corner when it comes to this disease. My doctor has the demeanor of poorly-programmed AI chatbot, and has made me feel like there is nothing at all he can do for me. Which is... probably true.
I've got LDN on order. Maybe that will help.
I'm about *this* close to smoking ganja again, even though I am not very responsible with it... Pray for me, y'all.