Returning symptoms

Wow, um....I haven't heard of anyone starting the remicade so slowly. Most of us have one infusion, then the second one 2 weeks later, then the 3rd 4 weeks after the 2nd, then every 8 weeks.
Perhaps that's the problem?
James

I had my first treatment last thursday and go for my second next tuesday. That is strange that they are having you wait so long inbetween the first few treatments. I hope they work for you. my first treatment was fine but i am still having a lot of my symptoms.

Yeah, I was surprised when he told me 8 weeks rather than 2 and for the life of me I cannot recall his reasoning.

This morning wasn't too bad, and no blood, not much uurgency, just a couple of bathroom trips. I am holding at 10/5 mg of Prednisone and not tapering any further for the time being.

I believe a lot of the symptoms returning has to do with an incredibly stressful week. My daughter, 17 yrs, ran off last Tuesday rather then be taken to a dual assessment (mental health/substance buse) appointment that was recommended by her psychiatrist and therapist. The Detective I was working with advised my husband and me to file a CHINS Petition and seek a Shelter Care Order for her so that when she came home she would be taken to the Less Secure Shelter. She had been out of control for quite some time, coming and going as she pleased and doing a lot of risk taking behaviors and we could not stop her. He told me the CHINS would get the County behind us to re-establish our parental authority over her, and show her, "yes, we are your parents and you cannot sneak out at all hours and smoke and drink and take drugs, we CAN stop you."

So when she finally returned home Saturday night and went straight to bed to sleep off her bender, I called the police and they came and took her to he Shelter, where she has been ever since. That call was the hardest call I have ever made in my life, but she is now getting help and while the weekend was Hell for her, I slept peacefully for the first time in months knowing she wa safe and being taken care of. She is getting better every day, the drugs leaving her system helps, as is the counseling she is receiving at the Shelter.

Today we did the assessment and she will start Day Treatment tomorrow. My husband will pick her up at the Less Secure Shelter (odd name, but that's what it's called) and take her to the program and I will pick her up in the afternoon and return her. I think doing it this way she will be more successful. All she wants now is to come home, while all she wanted before was to leave home. Guess it takes something like this to show a kid just what she had and get her to appreciate it all. Also she's away from her pothhead friends and won't be home until school starts and there's more structure to her days.

Anyway, while we're still in the thick of things, I can see the light at the end of the tunnel and my stomache seems to be settling down, although I am definitely going on Sat for the Remi.

I know I have to figure out ways of coping with stressors before it affects my gut, but it's really tough ... it kind of just happens.

Meesh

Aw Meesh, it sounds like you have a lifeful right now. I can relate, except mine was spousal problems, and even though I was having such tough times, the Remi helped keep my symptoms in check. I hope this is the case for you too, and that the next treatment helps. I'm glad that your daughter is safe and that you are able to get some rest. Take care, and I'm sending all my good thoughts your way for you and your family.