Yes, he did that TMPT test first to make sure my body would be able to metabolize the 6MP, which it appears mine will. Based on my weight, he's put me on 100 mg a day, stay at 30 mgs of prednisone for a couple more weeks along with my asacol, and then we'll try to start tapering. I do the Canasa suppositories pretty much every night as they really help with the feeling of "urgency" when I'm in a flare. I started with a bad flare in January, started prednisone right away, it was helping, but then I got pancreatisis in February and had to have my gall-bladder removed. I recovered great from that, got off the prednisone for about a month, then flared again. Managed to get off again by the middle of July then flared again in August. No matter what we seem to do, I just can't seem to stay in remission so we're going to give the 6MP a try.
I've had this disease for 20+ years and I'm pretty much willing to try about anything. I feel like I've been on the prednisone all of this year and the side effects start to really kick my butt. I work full-time (manager of an insurance division) and have a husband and two boys, so my life is pretty crazy, but luckily, I won't let this problem beat me and I manage to keep pushing myself along, although some days are tougher than others. I never miss work because of it, I only have a 10 minute commute so when I'm having a flare, if I time things right I can make it without freaking out. I was about at the point to start thinking about surgery, but since I haven't tried all the meds available yet, surgery would be considered optional and my insurance wouldn't pay, so hopefully this med will help.
Let's say in touch for sure. I'd love to continue to hear how it's working for you. I'll keep looking for tips. The one I've heard over and over is to take the 6MP at night to help with some of the side-effects. Most people said they had headaches but if they took it at night it helped
Good luck Stacey, I'll keep my fingers crossed for both of us!
UC - 20+ years