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GardenerJames
Veteran Member


Date Joined Jan 2006
Total Posts : 616
   Posted 8/15/2007 10:07 AM (GMT -7)   
As many of you know I've been on Remicade for about 10 months and doing very well.
My Dr. took me off of Azathioprine because of the slight risk of lymphoma.
Well my neck has been itchy for the last couple weeks and I had read that that can be one of the symptoms of lymphoma and I started thinking about it last night and started FREAKING OUT!
I was sweating, my heart was pounding, I didn't sleep a wink confused
I'm going to try to see my GI today, couldn't get in to my GP. I'm really hoping this is just some sort of allergic reaction.
James
Current Meds www.myspace.com/gardenerjames

Asacol 4 tabs 2x daily
Forvia once a day
Probiotic twice daily
Methotrexate 3 pills once a week
Actonel once a week
Calcium supp.
Omega-3 once daily
Eighth Remicade infusion End of August


RyanF
Regular Member


Date Joined Jan 2006
Total Posts : 358
   Posted 8/15/2007 1:37 PM (GMT -7)   

You know I had the same reaction when I filed my taxes last year...I kid.

But seriously, what is the verdict?  Did your doc see you?  When I was on 6MP (are they similar?) I had terrible reactions-- ones I should have realized were signs my body was trying to get my attention.  Two occasions I remember clearly-- once I was on a road trip with my soon-to-be wife and I had this horribly high fever yet I was feeling soooo cold-- she woke up from a sweat and the car was roasting yet I was shivering.  The other time I was vomiting to the point of nearly passing out.  I guess I just didn't realize the severity at the time.  Thank God I'm off that stuff.  6MP is marketed and produced by the devil

GardenerJames said...
As many of you know I've been on Remicade for about 10 months and doing very well.
My Dr. took me off of Azathioprine because of the slight risk of lymphoma.
Well my neck has been itchy for the last couple weeks and I had read that that can be one of the symptoms of lymphoma and I started thinking about it last night and started FREAKING OUT!
I was sweating, my heart was pounding, I didn't sleep a wink confused
I'm going to try to see my GI today, couldn't get in to my GP. I'm really hoping this is just some sort of allergic reaction.
James


 
Ryan
 
Meds:
No Meds!
 
Running (Every other day)
Weight Room (Every other day)
 
 
 
"May you have the hindsight to know where you have been.  May you have the insight to know where you are.  And may you have the foresight to know when you have gone too far." 
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 29842
   Posted 8/15/2007 3:10 PM (GMT -7)   
I'd freak out too James....itching for me gets my mind going as well, and I run to check my eyes to make sure they're not yellow!!

What's the outcome of the GI appointment? It's great you got in so quickly.

q
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


GardenerJames
Veteran Member


Date Joined Jan 2006
Total Posts : 616
   Posted 8/15/2007 5:47 PM (GMT -7)   
Well I didn't get in to either dr today :(
I did put some benedryl cream on it and that seems to have helped, so hopefully that's the case.
I was able to sleep a bit this afternoon and will take some benedryl tonight to help me sleep.
I'm probably freaking out unnecessarily but it's hard not too.
I'll keep you posted
James
Current Meds www.myspace.com/gardenerjames

Asacol 4 tabs 2x daily
Forvia once a day
Probiotic twice daily
Methotrexate 3 pills once a week
Actonel once a week
Calcium supp.
Omega-3 once daily
Eighth Remicade infusion End of August


Lonie
Veteran Member


Date Joined Feb 2005
Total Posts : 6447
   Posted 8/15/2007 6:48 PM (GMT -7)   
Aw heck James! Let us know what the doc says, and I'm glad the cream is giving you a bit of relief.
Carol

Remicade - will have my 18th infusion on July 12.
Imuran - 100 mgs....taken before bedtime
Vitamin B-12/Biotin, Probiotics

"Life is short -- make fun of it"
 
Co-Moderator for the UC Forum
 
 


Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 8/17/2007 6:42 PM (GMT -7)   
Hi James! Just wondering if you are feeling better. Did you get to see a doctor?
Hope you are doing better.
--Mom of bratcat (16 years old)--
bratcat was diagnosed with pancolitis October 2006
Current meds:
Asacol - 4 pills/3Xday
Rowasa - 7/07 tapering slowly
hydrocortisone enema - alternating with Rowasa; 3/3 - began to taper off hydrocortisone sloowwly! No more hydrocortisone enemas!
11/14 - started prednisone; 1/28 - finished prednisone!
Keeping our fingers and toes crossed!!


GardenerJames
Veteran Member


Date Joined Jan 2006
Total Posts : 616
   Posted 8/17/2007 7:49 PM (GMT -7)   
Thanks everybody, I am feeling much better and calmed down. The itching has mostly gone away along with the anxiety.
I talked to my GI's assistant yesterday and she had talked to him and he said it was VERY doubtful that it was lymphoma but that I should come in anyway. I am due for an appt so I'll be seeing him in a week and a half.
I also finally found that the itching associated with lymphoma tends to be on the back of the legs.
So, I'm feeling relieved and hoping that all is well. :-)
James
Current Meds www.myspace.com/gardenerjames

Asacol 4 tabs 2x daily
Forvia once a day
Probiotic twice daily
Methotrexate 3 pills once a week
Actonel once a week
Calcium supp.
Omega-3 once daily
Eighth Remicade infusion End of August


Scrap Girl
Veteran Member


Date Joined Jan 2007
Total Posts : 653
   Posted 8/17/2007 8:23 PM (GMT -7)   
James, that is great news. Glad to hear you are doing better.

Diagnosed with UC in Feb. 2005
 
Colazal (9 a day)
Folic Acid
2nd Remicade infusion

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