I'm vain, insane, and want to complain!!!

Yup, I read the title to the post and said to myself, someone is on prednisone! I just saw a picture of me with predface and said ewww. But, you know, others don't care about it as much as you do, so try not to let it bug you, enjoy your buddies.
I broke two bowls and two mugs doing dishes when I was on pred.I didn't get brain fog, though, but I know it's common.
It will pass!!!!!!
Luck, Merry

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uc since feb '05

colazol 9 day, calcium, multivitamin, fishoil

atenolol, bc pills, b-2, b-6 ( for migraine relief)

stonyfield farm yogurt

in remission

UGH. I am visiting my family in San Francisco for three weeks on Prednisone, I've been yelling at everyone in my family, my husband is about to kill me, and starting conversations with total strangers on the street. I just went down from 40mg to 30mg and now I have this constant headache/muscle pain thing going on.

I pretty much preface any conversation with "I'm on crazy drugs, so excuse me if I babble, interrupt you, act like a ***** etc..."

I can't wait for the dinner party I'm hosting this weekend!!

---

31 year old female

diagnosed 2007

currently on 40 mg Prednisone, 12 Asacol tabs for UC

also take Probiotics, Multivitamin, Effexor, Claritin, Albuterol, Advair. . . . . 

Superdeejayanna,
Sure wish I was nearby! We have family in Palo Alto and San Jose. We could hang out at the mall and talk to people! My husband makes apologies for me to others saying, "You have to forgive her...........she's on drugs........" I too get soooooo angry at the littlest things.........and let me clarify, I graduated from high school in 1980 so in addition to everything else, I'm OLD! :0(

Sigh..............
Hang in there!!!

Stacey

Hi there. So sorry your having difficulty. I was on on prednisone for a year! So, I can feel your challenges. Yes, the brain works in weird and mysterious ways on Pred. I was promoted into a new job last year and managed to get an amazing performance review and compensation despite my brain! LOL! The other physical stuff is tough too. Unfortunately, for the benefit of Pred, we need to suffer some consquences. However, generally, the powers of Pred, outweigh the consequences most times. I don't consider myself vain, but I am one who takes care of my appearance. It's tough when we don't look like ourselves. I didn't get the moonface last time (lucky me) but the time before I had total facial distortion. I kept photos and I look like a funhouse mirror reflection of me. The hardest part for me now, is dealing with the weight gain. I am now - after 3 month off of Pred - tackling what Pred added on. My butt, tummy and upper legs got quite large this time around. I've started to lose some of the upper body stuff already, and my face is pretty much back to normal. Friends and family and co-workers who love or care about us don't judge us for what we are going through. Trust in the people around you. Explain what is going on and ask for their support. It's tough. I know. I've been there. Keep well. Judy February 04: Rushed to hospital with severe blood haemorrhage. Diagnosed with indeterminate UC in 2/3 of my bowel. Treated with heavy doses of Pred; started Salofalk tabs and sups.   April 06 : First major flare – more haemorrhaging. Colonoscopy once against confirmed indeterminate UC.   May 06: Started 40 mg Pred. Weaned down to 10mg by July 8, held at 10mg until December 20, tapering 1mg every 2 weeks, 5mg a day as of February 14. All this plus 10 Salofalk tabs daily.   Jan through May 2007: Suffering from severe headaches and vomiting likely caused by prednisone.   Feb 26 07: Started Imuran with continued success.   May 12 07: Final dose of prednisone!

OK so my biggest prednisone brain fog came last week. This is emabarrasing but soo funny! Last week I couldn't figure out what the strange pains I was having were and why I was bleeding. It took me a half hour to realize I had my period!!! I'm on the pill! It happens exactly the same way every month for the past 18 year! I just could not figure it out!

I am on pred for a few more months. I am waiting for my prometheus test to come back to start immuran. Until then I feel like the jolly white giant with a giant moon face and an extra xxlbs. Luckily my husband finds tha crazy things i say and do somewhat amusing.

---

Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, Rowasa every other night, back to 30 mg pred.
Waiting for prometheus test to start Immuran
Prontonix once daily for acid reflux, zofran twice daily for nausea

UGHHH i feel your pain sweety! My last four visits to the GI started with i will do anything just not pred again! I am still trying to loose the 40lbs i put on from the first two rounds. Plus it only puts me in remission for a few months and then back to the same old stuff. 2 months of regularity is not worth 20lbs and 3 chins and feeling like i want to kill everyone. My joints would hurt so bad i would just lay there all day trying not to move (except to eat of course, bc i got really mean if i did not eat :)

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TamTam10

Diagnosed with Pan Colitis 2004 (age 23).

Asacol 12 per day

Prednisone, off 2006

6mp 75mg per day (got off becuase I am starting Remicade)

Canasa when needed

Remicade second infusion Aug 21st

Stacey, yes, I did buy myself two nice new polish pottery bowls, and a mug and a plate But not until I was done with the pred!
I graduated in 1975, you aren't old, I'm not old, anyone older than me is older than dirt.
Kelly, I enjoyed a good laugh, too.
Merry

---

uc since feb '05

colazol 9 day, calcium, multivitamin, fishoil

atenolol, bc pills, b-2, b-6 ( for migraine relief)

stonyfield farm yogurt

in remission

:0) TGIF EVERYONE!!!

flchurchlady - Thank Goodness I haven't speed mopped/vacuumed at 4 a.m.! But I was using my "Swiffer" and must have pressed down so hard it broke in half! My son said, "Gee mom, who are you mad at?" HA HA!

CityWoman - Wow, I cannot cannot cannot imagine being on Pred for a year! I am so glad you are off of it now, thank you for sharing your experiences - you have been through a lot, and I wish you all the best for continued recovery.

Licho - A person of few words, but thank you for understanding. I hope you are well.

Kelly - Your story still makes me laugh! HA!

Tamtam10 - Sigh.............same here, can't stop eating right now............so glad you are OFF this nasty stuff! I'm crossing fingers and toes that Remicade is the answer you've been waiting for!!!

Perach - Yeah, I was down to 5 mg. last week and feeling GOOD (re: Pred taper) when my GI pushed me back up to 30 mg. again due to this ongoing flare..... ugh...... Hey, hope you have a great time at that wedding next month!

Merry - Ooooh! Your new dishes sound pretty! :0) Actually "retail therapy" really DOES make me feel better when on Pred! Hey my hubby is Class of '71 so he's older than dirt! :0)

Superdeejayanna - Are you tapering the pred or ? School starts for our kids on 8/27 - too soon if ya ask me! Maybe your students will think you're much more "fun" this year?! :0) Hang in there!

HUGS to everyone!!

Stacey
dx w/UC (pancolitis) March '06
Colazal 750 mg x 9 capsules daily
now on Prednisone, 30 mg. daily
just started 6-MP this week (50 mg. daily)
Rowasa enema nightly, Probiotics (Primadophilus Reuteri)
dx w/Type 2 Diabetes Nov. 2002
Metformin 500 mg. x 2 daily,Caduet 5/10 mg. daily, Micardis 80 mg. daily, multivitamin + calcium daily and one baby aspirin, CinndromeX (4 daily)