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I'm vain, insane, and want to complain!!!

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HIT4NOW
Regular Member
Joined : Jul 2007
Posts : 160
Posted 8/15/2007 4:12 PM (GMT -7)
So I have this love/hate relationship with Prednisone.  I mostly hate it, but I can't deny that it DOES make me feel better.  I've been on it now for 8 weeks and was tapering, but when I saw my GI on Monday he upped my daily dose back to 30 mg. and added 6 more weeks on it because I am still flaring and he started me on 6-MP, which of course, takes awhile to kick in.

In the mean time I have not one, but two different friends and their families traveling from another state to visit us next week - we are all high school friends that haven't seen one another in 4+ years.  I am so upset that after so many years they are seeing a big fat sweaty moon faced hungry sleep deprived irritable ME! mad

Also, is anyone else transposing words/numbers when writing while on Pred?  It's like I'm dyslexic - I can't copy down a phone number or address correctly!! And I keep dropping things!!  Like I'm super clumsy!!!

Okay..............thanks for listening, you guys/gals are GR-8!!!

Stacey
dx w/UC (pancolitis) March '06
Colazal 750 mg x 9 capsules daily
now on Prednisone, 30 mg. daily
just started 6-MP this week (50 mg. daily)
Rowasa enema nightly, Probiotics (Primadophilus Reuteri)
dx w/Type 2 Diabetes Nov. 2002
Metformin 500 mg. x 2 daily,Caduet 5/10 mg. daily, Micardis 80 mg. daily, multivitamin + calcium daily and one baby aspirin, CinndromeX (4 daily)

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lil slowpoke
Regular Member
Joined : Sep 2006
Posts : 290
Posted 8/15/2007 4:32 PM (GMT -7)
Yup, I read the title to the post and said to myself, someone is on prednisone! I just saw a picture of me with predface and said ewww. But, you know, others don't care about it as much as you do, so try not to let it bug you, enjoy your buddies.
I broke two bowls and two mugs doing dishes when I was on pred.I didn't get brain fog, though, but I know it's common.
It will pass!!!!!!
Luck, Merry
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HIT4NOW
Regular Member
Joined : Jul 2007
Posts : 160
Posted 8/15/2007 4:38 PM (GMT -7)
Merry!
Brain Fog!! I "fog-ot" to write that one down! Yes, I have that one too, sigh. I'm so glad you are in remission! So did you splurge on a new set of dishes? :0)

Thanks,
Stacey
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superdeejayanna
Regular Member
Joined : Jul 2007
Posts : 77
Posted 8/15/2007 9:35 PM (GMT -7)
UGH. I am visiting my family in San Francisco for three weeks on Prednisone, I've been yelling at everyone in my family, my husband is about to kill me, and starting conversations with total strangers on the street. I just went down from 40mg to 30mg and now I have this constant headache/muscle pain thing going on.

I pretty much preface any conversation with "I'm on crazy drugs, so excuse me if I babble, interrupt you, act like a ***** etc..."

I can't wait for the dinner party I'm hosting this weekend!!

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quincy
Elite Member
Joined : May 2003
Posts : 32548
Posted 8/15/2007 10:45 PM (GMT -7)
LOL...although I can't relate...the title is priceless.

q
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HIT4NOW
Regular Member
Joined : Jul 2007
Posts : 160
Posted 8/16/2007 12:02 AM (GMT -7)
Superdeejayanna,
Sure wish I was nearby! We have family in Palo Alto and San Jose. We could hang out at the mall and talk to people! My husband makes apologies for me to others saying, "You have to forgive her...........she's on drugs........" I too get soooooo angry at the littlest things.........and let me clarify, I graduated from high school in 1980 so in addition to everything else, I'm OLD! :0(

Sigh..............
Hang in there!!!

Stacey
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flchurchlady
Veteran Member
Joined : Jul 2007
Posts : 2765
Posted 8/16/2007 2:56 AM (GMT -7)
I can completely relate. I felt like I was on speed and would vacuum and mop my floors at 4:00 in the morning! My house has never been SO clean!
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CityWoman
Regular Member
Joined : Jun 2004
Posts : 123
Posted 8/16/2007 4:26 AM (GMT -7)
Hi there. So sorry your having difficulty. I was on on prednisone for a year! So, I can feel your challenges. Yes, the brain works in weird and mysterious ways on Pred. I was promoted into a new job last year and managed to get an amazing performance review and compensation despite my brain! LOL! The other physical stuff is tough too. Unfortunately, for the benefit of Pred, we need to suffer some consquences. However, generally, the powers of Pred, outweigh the consequences most times. I don't consider myself vain, but I am one who takes care of my appearance. It's tough when we don't look like ourselves. I didn't get the moonface last time (lucky me) but the time before I had total facial distortion. I kept photos and I look like a funhouse mirror reflection of me. The hardest part for me now, is dealing with the weight gain. I am now - after 3 month off of Pred - tackling what Pred added on. My butt, tummy and upper legs got quite large this time around. I've started to lose some of the upper body stuff already, and my face is pretty much back to normal. Friends and family and co-workers who love or care about us don't judge us for what we are going through. Trust in the people around you. Explain what is going on and ask for their support. It's tough. I know. I've been there. Keep well. Judy
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Licho
Regular Member
Joined : Jun 2007
Posts : 98
Posted 8/16/2007 4:41 AM (GMT -7)
Well, I'm able to console you. But I'll admit as well, that the period of taking these steroids can be a bit unpleasant thing. I used to have some kind of the mood fluctuations whern on them (fortunately, not very big and not really often).

Cheers

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kb5
Veteran Member
Joined : Jan 2007
Posts : 1015
Posted 8/16/2007 6:27 AM (GMT -7)
OK so my biggest prednisone brain fog came last week. This is emabarrasing but soo funny! Last week I couldn't figure out what the strange pains I was having were and why I was bleeding. It took me a half hour to realize I had my period!!! I'm on the pill! It happens exactly the same way every month for the past 18 year! I just could not figure it out!

I am on pred for a few more months. I am waiting for my prometheus test to come back to start immuran. Until then I feel like the jolly white giant with a giant moon face and an extra xxlbs. Luckily my husband finds tha crazy things i say and do somewhat amusing.
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HIT4NOW
Regular Member
Joined : Jul 2007
Posts : 160
Posted 8/16/2007 7:22 AM (GMT -7)
I want to respond to everyone but hang on.............I'M TOO BUSY LAUGHING AT KELLY!!!!!!!!
AHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHA

Stacey
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tamtam10
Regular Member
Joined : Aug 2007
Posts : 78
Posted 8/16/2007 7:55 AM (GMT -7)
UGHHH i feel your pain sweety! My last four visits to the GI started with i will do anything just not pred again! I am still trying to loose the 40lbs i put on from the first two rounds. Plus it only puts me in remission for a few months and then back to the same old stuff. 2 months of regularity is not worth 20lbs and 3 chins and feeling like i want to kill everyone. My joints would hurt so bad i would just lay there all day trying not to move (except to eat of course, bc i got really mean if i did not eat :)
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perach
Regular Member
Joined : Apr 2007
Posts : 116
Posted 8/16/2007 12:46 PM (GMT -7)
If it give you any hope, I am tapered down to 12.5 mg now and my moon face is fading and I am sleeping a little better. But when I was on higher doses I was moon faced, sweaty and looking exhausted because I hardly slept. I'm still not back to myself but it gets better, don't lose hope! I am just praying I look better by the time I have to go to wedding in Sept. with lots of people I haven't seen in awhile. Good luck.
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lil slowpoke
Regular Member
Joined : Sep 2006
Posts : 290
Posted 8/16/2007 4:43 PM (GMT -7)
Stacey, yes, I did buy myself two nice new polish pottery bowls, and a mug and a plate But not until I was done with the pred!
I graduated in 1975, you aren't old, I'm not old, anyone older than me is older than dirt.
Kelly, I enjoyed a good laugh, too.
Merry
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superdeejayanna
Regular Member
Joined : Jul 2007
Posts : 77
Posted 8/16/2007 4:51 PM (GMT -7)
I'm doing my best to combat the weight gain, but I'm "thick" to begin with, I feel like my face is getting fat, but everyone swears it's not, so I may be imagining things. But the sweating is ridiculous!

Luckily I am on summer break right now, so I don't start work again for a couple weeks- I'm a teacher- so hopefully I will be slightly more normal when I get back to school. I work with teens with Emotional Disturbance, and I'm afraid I'm going to be throwing tantrums right alongside them!
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HIT4NOW
Regular Member
Joined : Jul 2007
Posts : 160
Posted 8/17/2007 5:36 PM (GMT -7)
:0) TGIF EVERYONE!!!

flchurchlady - Thank Goodness I haven't speed mopped/vacuumed at 4 a.m.! But I was using my "Swiffer" and must have pressed down so hard it broke in half! My son said, "Gee mom, who are you mad at?" HA HA!

CityWoman - Wow, I cannot cannot cannot imagine being on Pred for a year! I am so glad you are off of it now, thank you for sharing your experiences - you have been through a lot, and I wish you all the best for continued recovery.

Licho - A person of few words, but thank you for understanding. I hope you are well.

Kelly - Your story still makes me laugh! HA!

Tamtam10 - Sigh.............same here, can't stop eating right now............so glad you are OFF this nasty stuff! I'm crossing fingers and toes that Remicade is the answer you've been waiting for!!!

Perach - Yeah, I was down to 5 mg. last week and feeling GOOD (re: Pred taper) when my GI pushed me back up to 30 mg. again due to this ongoing flare..... ugh...... Hey, hope you have a great time at that wedding next month!

Merry - Ooooh! Your new dishes sound pretty! :0) Actually "retail therapy" really DOES make me feel better when on Pred! Hey my hubby is Class of '71 so he's older than dirt! :0)

Superdeejayanna - Are you tapering the pred or ? School starts for our kids on 8/27 - too soon if ya ask me! Maybe your students will think you're much more "fun" this year?! :0) Hang in there!

HUGS to everyone!!

Stacey
dx w/UC (pancolitis) March '06
Colazal 750 mg x 9 capsules daily
now on Prednisone, 30 mg. daily
just started 6-MP this week (50 mg. daily)
Rowasa enema nightly, Probiotics (Primadophilus Reuteri)
dx w/Type 2 Diabetes Nov. 2002
Metformin 500 mg. x 2 daily,Caduet 5/10 mg. daily, Micardis 80 mg. daily, multivitamin + calcium daily and one baby aspirin, CinndromeX (4 daily)
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