I'm vain, insane, and want to complain!!!

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HIT4NOW
Regular Member


Date Joined Jul 2007
Total Posts : 160
   Posted 8/15/2007 4:12 PM (GMT -7)   
So I have this love/hate relationship with Prednisone.  I mostly hate it, but I can't deny that it DOES make me feel better.  I've been on it now for 8 weeks and was tapering, but when I saw my GI on Monday he upped my daily dose back to 30 mg. and added 6 more weeks on it because I am still flaring and he started me on 6-MP, which of course, takes awhile to kick in.
In the mean time I have not one, but two different friends and their families traveling from another state to visit us next week - we are all high school friends that haven't seen one another in 4+ years.  I am so upset that after so many years they are seeing a big fat sweaty moon faced hungry sleep deprived irritable ME! mad
Also, is anyone else transposing words/numbers when writing while on Pred?  It's like I'm dyslexic - I can't copy down a phone number or address correctly!! And I keep dropping things!!  Like I'm super clumsy!!!
Okay..............thanks for listening, you guys/gals are GR-8!!!
 
 
Stacey
dx w/UC (pancolitis) March '06
Colazal 750 mg x 9 capsules daily
now on Prednisone, 30 mg. daily
just started 6-MP this week (50 mg. daily)
Rowasa enema nightly, Probiotics (Primadophilus Reuteri)
dx w/Type 2 Diabetes Nov. 2002
Metformin 500 mg. x 2 daily,Caduet 5/10 mg. daily, Micardis 80 mg. daily, multivitamin + calcium daily and one baby aspirin, CinndromeX (4 daily)

lil slowpoke
Regular Member


Date Joined Sep 2006
Total Posts : 290
   Posted 8/15/2007 4:32 PM (GMT -7)   
Yup, I read the title to the post and said to myself, someone is on prednisone! I just saw a picture of me with predface and said ewww. But, you know, others don't care about it as much as you do, so try not to let it bug you, enjoy your buddies.
I broke two bowls and two mugs doing dishes when I was on pred.I didn't get brain fog, though, but I know it's common.
It will pass!!!!!!
Luck, Merry
uc since feb '05
colazol 9 day, calcium, multivitamin, fishoil
atenolol, bc pills, b-2, b-6 ( for migraine relief)
stonyfield farm yogurt
in remission


HIT4NOW
Regular Member


Date Joined Jul 2007
Total Posts : 160
   Posted 8/15/2007 4:38 PM (GMT -7)   
Merry!
Brain Fog!! I "fog-ot" to write that one down! Yes, I have that one too, sigh. I'm so glad you are in remission! So did you splurge on a new set of dishes? :0)

Thanks,
Stacey

superdeejayanna
Regular Member


Date Joined Jul 2007
Total Posts : 77
   Posted 8/15/2007 9:35 PM (GMT -7)   
UGH. I am visiting my family in San Francisco for three weeks on Prednisone, I've been yelling at everyone in my family, my husband is about to kill me, and starting conversations with total strangers on the street. I just went down from 40mg to 30mg and now I have this constant headache/muscle pain thing going on.
 
I pretty much preface any conversation with "I'm on crazy drugs, so excuse me if I babble, interrupt you, act like a ***** etc..."
I can't wait for the dinner party I'm hosting this weekend!!
31 year old female
diagnosed 2007
currently on 40 mg Prednisone, 12 Asacol tabs for UC
also take Probiotics, Multivitamin, Effexor, Claritin, Albuterol, Advair. . . . . 


quincy
Elite Member


Date Joined May 2003
Total Posts : 29860
   Posted 8/15/2007 10:45 PM (GMT -7)   
LOL...although I can't relate...the title is priceless.

q
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


HIT4NOW
Regular Member


Date Joined Jul 2007
Total Posts : 160
   Posted 8/16/2007 12:02 AM (GMT -7)   
Superdeejayanna,
Sure wish I was nearby! We have family in Palo Alto and San Jose. We could hang out at the mall and talk to people! My husband makes apologies for me to others saying, "You have to forgive her...........she's on drugs........" I too get soooooo angry at the littlest things.........and let me clarify, I graduated from high school in 1980 so in addition to everything else, I'm OLD! :0(

Sigh..............
Hang in there!!!

Stacey

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 8/16/2007 2:56 AM (GMT -7)   
I can completely relate. I felt like I was on speed and would vacuum and mop my floors at 4:00 in the morning! My house has never been SO clean!
"Courage is fear that has said its prayers." -Anonymous


CityWoman
Regular Member


Date Joined Jun 2004
Total Posts : 123
   Posted 8/16/2007 4:26 AM (GMT -7)   
Hi there.
 
So sorry your having difficulty. I was on on prednisone for a year! So, I can feel your challenges.
 
Yes, the brain works in weird and mysterious ways on Pred. I was promoted into a new job last year and managed to get an amazing performance review and compensation despite my brain! LOL!
 
The other physical stuff is tough too. Unfortunately, for the benefit of Pred, we need to suffer some consquences. However, generally, the powers of Pred, outweigh the consequences most times.
 
I don't consider myself vain, but I am one who takes care of my appearance. It's tough when we don't look like ourselves. I didn't get the moonface last time (lucky me) but the time before I had total facial distortion. I kept photos and I look like a funhouse mirror reflection of me.
 
The hardest part for me now, is dealing with the weight gain. I am now - after 3 month off of Pred - tackling what Pred added on. My butt, tummy and upper legs got quite large this time around. I've started to lose some of the upper body stuff already, and my face is pretty much back to normal.
 
Friends and family and co-workers who love or care about us don't judge us for what we are going through. Trust in the people around you. Explain what is going on and ask for their support.
 
It's tough. I know. I've been there.
 
Keep well.
 
Judy

February 04: Rushed to hospital with severe blood haemorrhage. Diagnosed with indeterminate UC in 2/3 of my bowel. Treated with heavy doses of Pred; started Salofalk tabs and sups.

 

April 06: First major flare – more haemorrhaging. Colonoscopy once against confirmed indeterminate UC.

 

May 06: Started 40 mg Pred. Weaned down to 10mg by July 8, held at 10mg until December 20, tapering 1mg every 2 weeks, 5mg a day as of February 14. All this plus 10 Salofalk tabs daily.

 

Jan through May 2007: Suffering from severe headaches and vomiting likely caused by prednisone.

 

Feb 26 07: Started Imuran with continued success.

 

May 12 07: Final dose of prednisone!


Licho
Regular Member


Date Joined Jun 2007
Total Posts : 98
   Posted 8/16/2007 4:41 AM (GMT -7)   
Well, I'm able to console you. But I'll admit as well, that the period of taking these steroids can be a bit unpleasant thing. I used to have some kind of the mood fluctuations whern on them (fortunately, not very big and not really often).
 
Cheers
My drugs (I've UC for a few years, if anybody was curious, and autodiagnosed SA): mesalazine, azathioprine, infliximab, iron meds, vitamins (sometimes) & probiotics; the methylprednisolone therapy of several months if needed (then, protectively, potassium meds and omeprazole as well).
I worry about my liver and kidneys for the reasons above, I hope that unnecessarily.
I worry if anxiety problems (SA) could impact on the UC as well.
I have nothing more to say at the moment (I've already said very much for me...).


kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 8/16/2007 6:27 AM (GMT -7)   
OK so my biggest prednisone brain fog came last week. This is emabarrasing but soo funny! Last week I couldn't figure out what the strange pains I was having were and why I was bleeding. It took me a half hour to realize I had my period!!! I'm on the pill! It happens exactly the same way every month for the past 18 year! I just could not figure it out!

I am on pred for a few more months. I am waiting for my prometheus test to come back to start immuran. Until then I feel like the jolly white giant with a giant moon face and an extra xxlbs. Luckily my husband finds tha crazy things i say and do somewhat amusing.
Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, Rowasa every other night, back to 30 mg pred.
Waiting for prometheus test to start Immuran
Prontonix once daily for acid reflux, zofran twice daily for nausea


HIT4NOW
Regular Member


Date Joined Jul 2007
Total Posts : 160
   Posted 8/16/2007 7:22 AM (GMT -7)   
I want to respond to everyone but hang on.............I'M TOO BUSY LAUGHING AT KELLY!!!!!!!!
AHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHAHA

Stacey

tamtam10
Regular Member


Date Joined Aug 2007
Total Posts : 78
   Posted 8/16/2007 7:55 AM (GMT -7)   
UGHHH i feel your pain sweety! My last four visits to the GI started with i will do anything just not pred again! I am still trying to loose the 40lbs i put on from the first two rounds. Plus it only puts me in remission for a few months and then back to the same old stuff. 2 months of regularity is not worth 20lbs and 3 chins and feeling like i want to kill everyone. My joints would hurt so bad i would just lay there all day trying not to move (except to eat of course, bc i got really mean if i did not eat :)
TamTam10
 
Diagnosed with Pan Colitis 2004 (age 23).
Asacol 12 per day
Prednisone, off 2006
6mp 75mg per day (got off becuase I am starting Remicade)
Canasa when needed
Remicade second infusion Aug 21st


perach
Regular Member


Date Joined Apr 2007
Total Posts : 116
   Posted 8/16/2007 12:46 PM (GMT -7)   
If it give you any hope, I am tapered down to 12.5 mg now and my moon face is fading and I am sleeping a little better. But when I was on higher doses I was moon faced, sweaty and looking exhausted because I hardly slept. I'm still not back to myself but it gets better, don't lose hope! I am just praying I look better by the time I have to go to wedding in Sept. with lots of people I haven't seen in awhile. Good luck.
-currently having a flare
-prednisone (tapering), rowasa enema, Lialda (4 pills 1 time a day), canasa, probiotic, multivitamin, calcium with vitamin d, iron


lil slowpoke
Regular Member


Date Joined Sep 2006
Total Posts : 290
   Posted 8/16/2007 4:43 PM (GMT -7)   
Stacey, yes, I did buy myself two nice new polish pottery bowls, and a mug and a plate But not until I was done with the pred!
I graduated in 1975, you aren't old, I'm not old, anyone older than me is older than dirt.
Kelly, I enjoyed a good laugh, too.
Merry
uc since feb '05
colazol 9 day, calcium, multivitamin, fishoil
atenolol, bc pills, b-2, b-6 ( for migraine relief)
stonyfield farm yogurt
in remission


superdeejayanna
Regular Member


Date Joined Jul 2007
Total Posts : 77
   Posted 8/16/2007 4:51 PM (GMT -7)   
I'm doing my best to combat the weight gain, but I'm "thick" to begin with, I feel like my face is getting fat, but everyone swears it's not, so I may be imagining things. But the sweating is ridiculous!

Luckily I am on summer break right now, so I don't start work again for a couple weeks- I'm a teacher- so hopefully I will be slightly more normal when I get back to school. I work with teens with Emotional Disturbance, and I'm afraid I'm going to be throwing tantrums right alongside them!
31 year old female
diagnosed 2007
currently on 40 mg Prednisone, 12 Asacol tabs for UC
also take Probiotics, Multivitamin, Effexor, Claritin, Albuterol, Advair. . . . . 


HIT4NOW
Regular Member


Date Joined Jul 2007
Total Posts : 160
   Posted 8/17/2007 5:36 PM (GMT -7)   
:0) TGIF EVERYONE!!!

flchurchlady - Thank Goodness I haven't speed mopped/vacuumed at 4 a.m.! But I was using my "Swiffer" and must have pressed down so hard it broke in half! My son said, "Gee mom, who are you mad at?" HA HA!

CityWoman - Wow, I cannot cannot cannot imagine being on Pred for a year! I am so glad you are off of it now, thank you for sharing your experiences - you have been through a lot, and I wish you all the best for continued recovery.

Licho - A person of few words, but thank you for understanding. I hope you are well.

Kelly - Your story still makes me laugh! HA!

Tamtam10 - Sigh.............same here, can't stop eating right now............so glad you are OFF this nasty stuff! I'm crossing fingers and toes that Remicade is the answer you've been waiting for!!!

Perach - Yeah, I was down to 5 mg. last week and feeling GOOD (re: Pred taper) when my GI pushed me back up to 30 mg. again due to this ongoing flare..... ugh...... Hey, hope you have a great time at that wedding next month!

Merry - Ooooh! Your new dishes sound pretty! :0) Actually "retail therapy" really DOES make me feel better when on Pred! Hey my hubby is Class of '71 so he's older than dirt! :0)

Superdeejayanna - Are you tapering the pred or ? School starts for our kids on 8/27 - too soon if ya ask me! Maybe your students will think you're much more "fun" this year?! :0) Hang in there!

HUGS to everyone!!

Stacey
dx w/UC (pancolitis) March '06
Colazal 750 mg x 9 capsules daily
now on Prednisone, 30 mg. daily
just started 6-MP this week (50 mg. daily)
Rowasa enema nightly, Probiotics (Primadophilus Reuteri)
dx w/Type 2 Diabetes Nov. 2002
Metformin 500 mg. x 2 daily,Caduet 5/10 mg. daily, Micardis 80 mg. daily, multivitamin + calcium daily and one baby aspirin, CinndromeX (4 daily)
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