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kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 8/16/2007 6:36 AM (GMT -7)   
Hi all! I had a flex sig the other day and my doc seemed a bit concerned over the amount of scarring in my intestines. It was a lot of scarring. He was pointing it out on the moniter. Has anyone had experience with this? I am not sure what he is concerned about. I was more focused on talking about the drugs he wants me on (waiting for prometheus test to come back though he wants remicade). I thought i remember something about scarring and a narrowing of the intestine. How does it affect flares? Do those areas not flare because of the scars or is it worse becuase it's flaring under the scar? I'm just a bit confused. Thanks for any info!
Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, Rowasa every other night, back to 30 mg pred.
Waiting for prometheus test to start Immuran
Prontonix once daily for acid reflux, zofran twice daily for nausea


kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 8/17/2007 6:38 AM (GMT -7)   
bump
Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, Rowasa every other night, back to 30 mg pred.
Waiting for prometheus test to start Immuran
Prontonix once daily for acid reflux, zofran twice daily for nausea


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 8/17/2007 6:53 AM (GMT -7)   
I too have significant scarring throughout my large intestine. No one ever explained to me the reason for concern, but I assume scarring can lead to strictures can lead to obstructions. I'm sure it still flares even though it is scarred, which maybe can make the scarring worse? I'm sorry I can't offer more insight. I will have to try and research this today, I'm interested now as well.
Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in hip & lumbar region of spine from long term prednisone use

Current Meds:
Primadophilus Reuteri
20 mg Citalopram (for depression/social anxiety)
125mg Imuran
10meq Potassium Cl
 

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