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birdiem Regular Member Date Joined Aug 2007 Total Posts : 326	Posted 8/16/2007 8:02 PM (GMT -6)
	EEEEE!!! I am so excited. i finally got all my test results for my GI doctor back and sat down and talked with the most kind, understanding doctor. it turns out in addition to colits, i have a malrotated colon and a buildup of bacteria (bad bacteria) in my small intestine. BUT I HAVE NEVER BEEN SO HAPPY. someone finally showed me visual proof of what i had--the CTs, the test results--i KNEW i wasn't making it up or crazy--but i often wondered about both. i any case, i have to take ten days of antibiotics (xifaxan/rifamin??) and obviously brobiotics. does anyone have experience with this antobiotic? or malrotation? mostly i am just happy--i feel so validated right now!! i want to hear other stories, if you guys would like to share... thatnk goodness for doctors who take you seriously... xoxoxo ~k diagnosed with cecal volvulus, 2006; two colon resections in the same year diagnosed with colitis 2007 Back to Top

superdeejayanna Regular Member Date Joined Jul 2007 Total Posts : 77	Posted 8/16/2007 9:21 PM (GMT -6)
	Congrats on your diagnosis- I felt the same way when I got mine- now you can get better! 31 year old female diagnosed 2007 currently on 40 mg Prednisone, 12 Asacol tabs for UC also take Probiotics, Multivitamin, Effexor, Claritin, Albuterol, Advair. . . . . Back to Top

Red_34 Forum Moderator Date Joined Apr 2004 Total Posts : 23551	Posted 8/17/2007 6:04 AM (GMT -6)
	Isn't that sort of crazy? It's like yeah! I AM sick! Whoo hoo! :) But I know what you mean. It's always nice to be able to put a name to your illness and to validate that NO you are not going insane. And plus having a great doctor is what makes the difference. ^{@--->--SHERRY--<---@} ^{Left sided Uc since '92 - meds - Colazal, Canasa (when needed), 6MP (50-75mgs), Forvia, Biotin (IN REMISSION - sort of!)} ^{Secondary Raynauds Syndrome '04 - meds - Norvasc} ^{Fibromyalgia '06 - no meds} ^{Severe seasonal allergies - meds - Allegra} ^{PLEASE HELP HEALINGWELL CONTINUE TO HELP OTHERS BY CLICKING HERE: DONATE} ^{@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@} http://www.myspace.com/82595818 Back to Top

ediekristen Veteran Member Date Joined Apr 2007 Total Posts : 1366	Posted 8/17/2007 7:01 AM (GMT -6)
	Red_34 said... Isn't that sort of crazy? It's like yeah! I AM sick! Whoo hoo! :) But I know what you mean. It's always nice to be able to put a name to your illness and to validate that NO you are not going insane. And plus having a great doctor is what makes the difference. I agree, I've actually been really disappointed before when I feel really sick and my test results come back perfectly normal. Everyone is like "Isn't that a GOOD thing?..." Well, I still feel sick and now I don't know why, so no! Haha. Never heard of a malrotated colon, but that's interesting! I'll have to look it up now! Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in hip & lumbar region of spine from long term prednisone use Current Meds: Primadophilus Reuteri 20 mg Citalopram (for depression/social anxiety) 125mg Imuran 10meq Potassium Cl Back to Top

quincy Elite Member Date Joined May 2003 Total Posts : 30596	Posted 8/17/2007 11:06 AM (GMT -6)
	Wow...I know how you feel! I'll have to the research on malrotated colon...sounds "cool"..lol! What bacteria do you have in the small intestine? How did he do the test? I've never been on those antibiotics, but I agree the probiotics are good to take. quincy HeatherStatus:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night) ~diagnosed January 1989 UC (proctosigmoiditis) ~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance) ~Bentylol (dicyclomine) 20mg as needed ~vitamins/minerals ~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime ~Natural Factors Multi Digestive Enzymes with supper ~Ranitidine,Pariet (reflux) Effexor XR 75mg; Pulmicort/Airomir (asthma) ~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!) My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!! Back to Top

birdiem Regular Member Date Joined Aug 2007 Total Posts : 326	Posted 8/18/2007 7:57 AM (GMT -6)
	she did a breath hydrogen test--i fasted (boo!) drank a liquid and they tested by breath every 15 minutes over three hours. a pain in the YOU KNOW WHAT but totally worth it...apparently hydrogen only breaks down in the small intestine, so thats how they can test for it (to see if it comes back up in your breath). in any case, i'm glad i did the test! even if it was irritating--definitley better than a colonoscopy!! diagnosed with cecal volvulus, 2006; two colon resections in the same year diagnosed with colitis 2007 Back to Top

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