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birdiem
Regular Member


Date Joined Aug 2007
Total Posts : 326
   Posted 8/16/2007 7:02 PM (GMT -7)   
EEEEE!!! I am so excited. i finally got all my test results for my GI doctor back and sat down and talked with the most kind, understanding doctor. it turns out in addition to colits, i have a malrotated colon and a buildup of bacteria (bad bacteria) in my small intestine. BUT I HAVE NEVER BEEN SO HAPPY. someone finally showed me visual proof of what i had--the CTs, the test results--i KNEW i wasn't making it up or crazy--but i often wondered about both. i any case, i have to take ten days of antibiotics (xifaxan/rifamin??) and obviously brobiotics. does anyone have experience with this antobiotic? or malrotation? mostly i am just happy--i feel so validated right now!! i want to hear other stories, if you guys would like to share...
thatnk goodness for doctors who take you seriously...
xoxoxo
~k
diagnosed with cecal volvulus, 2006; two colon resections in the same year
diagnosed with colitis 2007


superdeejayanna
Regular Member


Date Joined Jul 2007
Total Posts : 77
   Posted 8/16/2007 8:21 PM (GMT -7)   
Congrats on your diagnosis- I felt the same way when I got mine- now you can get better!
31 year old female
diagnosed 2007
currently on 40 mg Prednisone, 12 Asacol tabs for UC
also take Probiotics, Multivitamin, Effexor, Claritin, Albuterol, Advair. . . . . 


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 8/17/2007 5:04 AM (GMT -7)   
Isn't that sort of crazy? It's like yeah! I AM sick! Whoo hoo! :) But I know what you mean. It's always nice to be able to put a name to your illness and to validate that NO you are not going insane. And plus having a great doctor is what makes the difference.
 @--->--SHERRY--<---@
Left sided Uc since '92 - meds - Colazal, Canasa (when needed), 6MP (50-75mgs), Forvia, Biotin (IN REMISSION - sort of!)
Secondary Raynauds Syndrome '04  - meds - Norvasc
Fibromyalgia '06 - no meds
Severe seasonal allergies - meds - Allegra 
PLEASE HELP HEALINGWELL CONTINUE TO HELP OTHERS BY CLICKING HERE: DONATE
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@
 
 
 
 

 
 


ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 8/17/2007 6:01 AM (GMT -7)   
Red_34 said...
Isn't that sort of crazy? It's like yeah! I AM sick! Whoo hoo! :) But I know what you mean. It's always nice to be able to put a name to your illness and to validate that NO you are not going insane. And plus having a great doctor is what makes the difference.

I agree, I've actually been really disappointed before when I feel really sick and my test results come back perfectly normal. Everyone is like "Isn't that a GOOD thing?..." Well, I still feel sick and now I don't know why, so no! Haha.
 
Never heard of a malrotated colon, but that's interesting! I'll have to look it up now!
Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in hip & lumbar region of spine from long term prednisone use

Current Meds:
Primadophilus Reuteri
20 mg Citalopram (for depression/social anxiety)
125mg Imuran
10meq Potassium Cl
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 29842
   Posted 8/17/2007 10:06 AM (GMT -7)   
Wow...I know how you feel!

I'll have to the research on malrotated colon...sounds "cool"..lol!

What bacteria do you have in the small intestine? How did he do the test?

I've never been on those antibiotics, but I agree the probiotics are good to take.

quincy
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


birdiem
Regular Member


Date Joined Aug 2007
Total Posts : 326
   Posted 8/18/2007 6:57 AM (GMT -7)   
she did a breath hydrogen test--i fasted (boo!) drank a liquid and they tested by breath every 15 minutes over three hours. a pain in the YOU KNOW WHAT but totally worth it...apparently hydrogen only breaks down in the small intestine, so thats how they can test for it (to see if it comes back up in your breath). in any case, i'm glad i did the test! even if it was irritating--definitley better than a colonoscopy!!
diagnosed with cecal volvulus, 2006; two colon resections in the same year
diagnosed with colitis 2007

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