Good luck Lew -- let's hope the next treatment works and helps. It is so especially unfair for young kids to have this. I know how you feel - it is so tough to watch someone go through this and as much as you want to help there is so little that can be done to help.
The surgery route I know sounds scary but there are some great people here as you know sharing their honest insight. It has definitely given us information that we are considering if this keeps going on with no relief in sight. When it becomes the right decision to make I'm sure each individual reaches that understanding based on nothing working anymore, tired of all the meds, side effects or maybe even a medical necessity. Surgery was something we never even wanted to hear about
actually until we read some very personal honest posts that gave us a better understanding.
May that not have to be something your son has to deal with. I pray he gets into a remission and can keep it that way for a long time.
60 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 ... left sided ulcerative colitis now & fully involved and trying to get in remission. Acute inflammation-pancolitis-tenesmus rectal pain-granulation is showing some healing started. Osteopena of spine from prednisone DX 8/07 July 07 starting to feel somewhat normal 75mg Imuran 40 mg prednisone (tapering 8/07) 12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 3X day, DanActive, chewable calcium, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 20 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs Morphine Sulf 15 mg twice daily)Colocourt enemas at night.