Surgery is not a bad option if your medical choices have run out and it's a preferred option (in my opinion) than starting the cycle of prednisone again. No one can predict the future on one's health but over 95% of those who have opted for j-pouch surgery are very satisfied with the results. Is it perfect? No, but for me it's better than living on meds, not being able to keep commitments, and living with an unpredictable disease. Surgery will allow your son to be as normal as possible. You can visit www.j-pouch.org and visit with lots of teens who made this decision. They can share their experiences with you and your son. I am so sorry young people have to go through this, it's not fair.
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free