I guess I have to stop the 6MP

gdfairy

Regular Member

Joined : Jun 2007

Posts : 89

Posted 8/17/2007 10:22 AM (GMT -7)

I've been on the 6MP for just a few weeks-blood work was okay the last time (although I'm still showing inflammation markers), but for the past few days, I've been experiencing flu-like symptoms usually at night. It's pretty severe joint and muscle pain, chills (have to go under the covers with my teeth chattering), alternating with sweats, headache, increased heart rate and fatigue. I'm in such pain I can't sleep.

At first I thought I actually caught and infection of some sort, but why would the symptoms come and go? I'm pretty much okay during the day. It seems like it creeps up on me after a certain amount of hours after taking a dose. I tried taking it at night and just the schedule of the pain changed. Anyway, I put a message into the doctor's that I'm going to stop it. Going to Hawaii on Sunday, and no way do I want to feel like this. Has anyone else experienced anything like this?

Left sided UC 3 years

Current Meds: Dipentum 1000mg (2-250 2x a day), 6MP 50mg 1x a day

Cortenema when needed

Hair vitamin Multi

Fish oil, folic acid

kb5

Veteran Member

Joined : Jan 2007

Posts : 1015

Posted 8/17/2007 10:25 AM (GMT -7)

I haven't started it yet (waiting for prometheus) but my GI said that flu like symptoms were something to watch out for when I start it. Sounds to me like you are doing the right thing though it may just need to be adjusted. I'd keep trying to reach your GI.

Have fun in Hawaii!!!

Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, Rowasa every other night, back to 30 mg pred.
Waiting for prometheus test to start Immuran
Prontonix once daily for acid reflux, zofran twice daily for nausea

Another UC wife

Veteran Member

Joined : Jun 2007

Posts : 2111

Posted 8/17/2007 10:27 AM (GMT -7)

Too bad - I really hope you can get a good vacation in Hawaii. It's tough to have a trip planned and not be feeling good. Let us all know how you made out. (I can't offer any 6MP advice but wanted to wish you well.)

60 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 ... left sided ulcerative colitis now & fully involved and trying to get in remission. Acute inflammation-pancolitis-tenesmus rectal pain-granulation is showing some healing started. Osteopena of spine from prednisone DX 8/07 July 07 starting to feel somewhat normal 75mg Imuran 40 mg prednisone (tapering 8/07) 12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 3X day, DanActive, chewable calcium, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 20 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs Morphine Sulf 15 mg twice daily)Colocourt enemas at night.

HIT4NOW

Regular Member

Joined : Jul 2007

Posts : 160

Posted 8/17/2007 8:38 PM (GMT -7)

Hi,
I'm so sorry you are feeling bad!
I started the 6-MP on Mon. so I don't think any side effects have kicked in yet - although now that you mention it, I got cold cold cold in the middle of the night and went under the covers (we live in Vegas where I am NEVER cold) last night. I'm on pred too, sorry for the run-on sentence. My dr.did not mention any flu-like symptoms at all - I'm sort of relying on other people's first hand experiences here. Have fun in Hawaii - we were there last month!! :0)
I hope you and your GI can figure something out. Will you let us know?
Good Luck and Aloha,

Stacey
dx w/UC (pancolitis) March '06
Colazal 750 mg x 9 capsules daily
now on Prednisone, 30 mg. daily
just started 6-MP this week (50 mg. daily)
Rowasa enema nightly, Probiotics (Primadophilus Reuteri)
dx w/Type 2 Diabetes Nov. 2002
Metformin 500 mg. x 2 daily,Caduet 5/10 mg. daily, Micardis 80 mg. daily, multivitamin + calcium daily and one baby aspirin, CinndromeX (4 daily)

gdfairy

Regular Member

Joined : Jun 2007

Posts : 89

Posted 8/18/2007 9:15 AM (GMT -7)

My symptoms started to continue into the day yesterday even though I had stopped the 6MP Thursday night, so maybe it's not a side effect, but I caught something. I talked with my doctor. He obviously agreed for me to stop the 6MP, and he did seem to think it wasn't a side effect, but I caught an infection. He was surprised though, because this not the season for catching the flu and I didn't have a sore throat or a cough or pain when I urinate. He said if it was a side effect I would feel better after 48 hours of taking the last pill, it should have been out of my system by then, but he had a lot of his patients on this medicine and never heard of them mention having this side effect--they did catch infections though. I guess I'll know tonight. I am feeling a little better today--no pain or chills so far, but I have no energy. Hope I can pull it together by tomorrow.

Left sided UC 3 years

Current Meds: Dipentum 1000mg (2-250 2x a day)

Cortenema when needed

Hair vitamin Multi

Fish oil, folic acid

Penngurl75

Regular Member

Joined : Nov 2011

Posts : 266

Posted 11/23/2011 3:08 PM (GMT -7)

Yea i started it 2wks ago and i am experiencing chills and headache i am taking tylenol that seems to help but i feel little weak.

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