RemiStart Program

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Regular Member

Date Joined May 2006
Total Posts : 36
   Posted 8/17/2007 2:13 PM (GMT -6)   
Just curious of how many people have enrolled and are eligible for the RemiStart program that is offered for Remicade users.  I just sent in my Expanation of Benefits and was wondering how long it takes for them to send out reimbursment.  I also found it strange that the program did not even have a web site.  In this day and age everyone does.

Happy Dad
New Member

Date Joined Aug 2007
Total Posts : 3
   Posted 8/17/2007 3:44 PM (GMT -6)   
I only found out about it by calling Centocor at a general number on their website, and asking for financial assistance. The guy who answered the phone seemed surprised. For those who don't know, Centocor offers financial assistance with out of pocket costs for the first year of treatment with Remicade. Your doctor is supposed ot have the sign up form, or can get it from the Centocor drug rep. I have just signed up, so I don't know how long reimbursement will take.

Veteran Member

Date Joined Jan 2007
Total Posts : 1015
   Posted 8/17/2007 4:03 PM (GMT -6)   
I'm not on remicade but my GI is considering it and I can't afford it. I looked up remicade finacial assitance and found this site. It's a seniors magazine but the info looks like it is good for everyone.
Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, Rowasa every other night, back to 30 mg pred.
Waiting for prometheus test to start Immuran
Prontonix once daily for acid reflux, zofran twice daily for nausea

Regular Member

Date Joined Jan 2008
Total Posts : 154
   Posted 4/4/2008 12:40 PM (GMT -6)   
I just found out I'm going to have to kick out nearly $2000 before my insurance fully kicks in for remicade
Does this assistance program have finanacial strings attached?
I have a feeling I'll get denied because of how much I make.
Diagnosed in spring 2005 at age 28
Currently on 12 asacol pills a day + Entocort
40 MG Pred cycle stating 3/26

Regular Member

Date Joined Jan 2008
Total Posts : 154
   Posted 4/4/2008 1:53 PM (GMT -6)   
SHould I talk to my doctor about about alt. treatments before I kick out $2000?

What if it doesn't work?

Diagnosed in spring 2005 at age 28
Currently on 12 asacol pills a day + Entocort
40 MG Pred cycle stating 3/26

Regular Member

Date Joined Jun 2005
Total Posts : 133
   Posted 4/4/2008 2:34 PM (GMT -6)   
no financial strings attached at all. it takes about a week once they process your EOB. they send out a credit card that you can use anywhere mastercard (i think) is accepted. i just gave the # to the DR. to go toward my portion.
Diagnosed in 1999, hospitalized once.  Not responsive to meds.  Currently on 12 Asacol, , 8 ampules of Gastrocrom, 6 grams Colestid, flagyl, remicade for my UC.  Also have migraines and take B-4, B-2, for the prevention of them.
Deciding whether or not to have surgery at this time.

Regular Member

Date Joined Jan 2008
Total Posts : 154
   Posted 4/4/2008 3:33 PM (GMT -6)   
Is is only for the 1st year you take it?

My concern is I'll be able to cover the 1st year but than i'll be screwed the 2nd year or further down the line.
Diagnosed in spring 2005 at age 28
Currently on 12 asacol pills a day + Entocort
40 MG Pred cycle stating 3/26

Veteran Member

Date Joined Jan 2006
Total Posts : 616
   Posted 4/4/2008 7:18 PM (GMT -6)   
Dang! That could have saved me a pile of money in my first year!!!
Asacol 4 tabs 2x daily
Forvia once a day
Probiotic twice daily
Methotrexate 3 pills once a week
Actonel once a week
Calcium supp.
1 mg Folic Acid daily
Omega-3 once daily
12th Remicade infusion End of March

Scrap Girl
Veteran Member

Date Joined Jan 2007
Total Posts : 653
   Posted 4/4/2008 8:23 PM (GMT -6)   
I don't remember where I heard/read this but for some reason I think your out-of-pocket has to be at least $100 per treatment. Don't quote me on this one.
Diagnosed with UC in Feb. 2005
Colazal (9 a day)
Folic Acid

Regular Member

Date Joined Sep 2007
Total Posts : 113
   Posted 4/4/2008 11:06 PM (GMT -6)   
From what I remember, the program covers the first year of treatment or your first 8 infusions. Kind of like changing your car's oil, every 3 months or 3,000 miles etc. I had a hard time getting them to reload my card sometimes, requiring several phone calls a week at one point. Good luck, I hope it works better for you than it did me.
Diagnosed Fall of 2004
(Scheduled for Stage 1 of IPAA in late February:Complete!)

Prednisone (5mg taper)
Coumadin (6mg)

Regular Member

Date Joined Jan 2008
Total Posts : 154
   Posted 4/5/2008 3:00 PM (GMT -6)   
my understanding is once your on remicade you can't get off.  Is that correct?
Even if Remistart covers alot of it in year 1 what about year 2?
Are there any possible problems with suddenly stopping remicade infusions?
Diagnosed in spring 2005 at age 28
Currently on 12 asacol pills a day + Entocort
40 MG Pred cycle stating 3/26

Veteran Member

Date Joined Apr 2006
Total Posts : 3402
   Posted 4/5/2008 7:48 PM (GMT -6)   
Very interesting. Good to know there is some support if I have to go this route.
Pan-colitis and GERD diagnosed May 2003
Osteopenia diagnosed Feb 2006
Status:  Flaring :(
40mg pred, Asacol 12 per day,  Azathioprine 75mg, Rowasa, Canasa, Aciphex, Forvia, and Pro-Bio
Co-Mod for the UC forum:  Keep HealingWell running smoothly:

New Member

Date Joined Dec 2008
Total Posts : 1
   Posted 12/8/2008 1:28 PM (GMT -6)   

Hi, I was told I was ineligible for remistart because I work for the Department of Veterans Affairs and any government employee with health insurance through their employer, the federal government, is ineligible.

Unfortunately my out of pocket expenses are somewhere around $800 per treatment. Having a family of 7, some of my children have chronic medical conditions with ongoing treatment, $800 every 6 weeks becomes a hardship. I was told there was no appeal.

Because both my wife and I are employed we are not qualified for the other remicade assistance programs.

I am very grateful that I have a job and health insurance but I was wondering if anyone had any ideas. Thanks 

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