Twisted J-Pouch

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New Member

Date Joined Aug 2007
Total Posts : 2
   Posted 8/17/2007 2:49 PM (GMT -6)   
Hi Canadian,
I was very interested to read about your situation with twisted pouch and that you were able to sucessfully have your pouch reconstructed.  I hope you have been very well since. 
I am currently in similar situation with a severly twisted pouch which is increasingly painful with all of the symptoms that I am sure you are fully familiar with.  I am living in Ireland and have had previous surgeries both here and under a very experienced surgeon in the UK, who is currently being updated on my situation.  Unfortunately he is semi-retired and I may therefore be looking for an alternative surgeon with experience in this area.  I would be willing to travel to wherever necessary and hope that you can let me know the details of your surgeon.
Thank you for any information you can give me.

Veteran Member

Date Joined Feb 2006
Total Posts : 5698
   Posted 8/17/2007 3:02 PM (GMT -6)   
You might want to check for successful twisted j-pouch stories.

dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free

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