As I said in another post to your other thread...........I'm the spouse, I'm the secretary, I'm the PIA constantly telling him this and that from this forum. When he was flaring so badly and hospitalized I found this site and man oh man what a relief it was for me.
I had a husband who turned into magilla gorilla from the pain, prednisone and didn't even have the energy to talk. I would get yes and no answers and if I spoke with too many words he could not focus or comprehend what I was saying. It broke my heart to see him this way and so helpless and unable to make things better. I'm a person used to fixing things and making things "perfect" and this just threw me for a loop.
When this first manifested itself I was a basket case. We have been together for 39 years total and fortunately for us we have not had any real problems in all those years to affect our marriage. We had the usual problems dealing with aging and ill parents and their deaths and some occasional screwy problems we could always solve as a team with no arguments. So for him to even look at me cross eyed was enough to make me cry let alone yell or be short tempered with me.
I knew deep down this other personality that I was seeing for the first time was due to this and tried to overlook it and just go in another room or on the computer. He would apologize immediately thereafter and keep telling me he is not yelling at me but just so frustrated and angry at the UC.
Fortunately he is not in the kind of out of his mind pain any longer and showing signs of improving. It is a slow process. For many months he was housebound (toilet bound) and stayed in bed. He still requires a lot of rest like today. We went out and did a few things yesterday but it seems the next day he is wiped out. But that is ok - we do what we can when we can until such time things get even better.
You are a young couple with a young child so I am sure it is even tougher. Please have your wife spend a little time with this forum and even set up her own ID to post and ask questions. As I said before no question is too silly or embarrassing to ask here.
60 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 ... left sided ulcerative colitis now & fully involved and trying to get in remission. Acute inflammation-pancolitis-tenesmus rectal pain-granulation is showing some healing started. Osteopena of spine from prednisone DX 8/07 July 07 starting to feel somewhat normal 75mg Imuran 40 mg prednisone (tapering 8/07) 12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 3X day, DanActive, chewable calcium, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 20 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs Morphine Sulf 15 mg twice daily)Colocourt enemas at night.