Spouses/significant others

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FosterDad
Regular Member


Date Joined Aug 2007
Total Posts : 97
   Posted 8/17/2007 1:44 PM (GMT -7)   
Is this an appropriate site for Spouses/significant others to post questions about this disease, or is there another site for them?  I know my wife is having a bit of stress about this whole thing and would probably appreciate someone to talk with.

kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 8/17/2007 1:46 PM (GMT -7)   
Absolutely! She is welcome here. There are several spouses, significant others, parents, and children. She will be strewn with praise here. We all realize we couldn't make it through this without the ones who love us and have to go through this with us!
Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, Rowasa every other night, back to 30 mg pred.
Waiting for prometheus test to start Immuran
Prontonix once daily for acid reflux, zofran twice daily for nausea


Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 8/17/2007 5:09 PM (GMT -7)   
As I said in another post to your other thread...........I'm the spouse, I'm the secretary, I'm the PIA constantly telling him this and that from this forum. When he was flaring so badly and hospitalized I found this site and man oh man what a relief it was for me.

I had a husband who turned into magilla gorilla from the pain, prednisone and didn't even have the energy to talk. I would get yes and no answers and if I spoke with too many words he could not focus or comprehend what I was saying. It broke my heart to see him this way and so helpless and unable to make things better. I'm a person used to fixing things and making things "perfect" and this just threw me for a loop.

When this first manifested itself I was a basket case. We have been together for 39 years total and fortunately for us we have not had any real problems in all those years to affect our marriage. We had the usual problems dealing with aging and ill parents and their deaths and some occasional screwy problems we could always solve as a team with no arguments. So for him to even look at me cross eyed was enough to make me cry let alone yell or be short tempered with me.

I knew deep down this other personality that I was seeing for the first time was due to this and tried to overlook it and just go in another room or on the computer. He would apologize immediately thereafter and keep telling me he is not yelling at me but just so frustrated and angry at the UC.

Fortunately he is not in the kind of out of his mind pain any longer and showing signs of improving. It is a slow process. For many months he was housebound (toilet bound) and stayed in bed. He still requires a lot of rest like today. We went out and did a few things yesterday but it seems the next day he is wiped out. But that is ok - we do what we can when we can until such time things get even better.

You are a young couple with a young child so I am sure it is even tougher. Please have your wife spend a little time with this forum and even set up her own ID to post and ask questions. As I said before no question is too silly or embarrassing to ask here.

60 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 ... left sided ulcerative colitis now & fully involved and trying to get in remission. Acute inflammation-pancolitis-tenesmus rectal pain-granulation is showing some healing started. Osteopena of spine from prednisone DX 8/07  July 07 starting to feel somewhat normal 75mg Imuran 40  mg prednisone (tapering 8/07) 12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 3X day, DanActive, chewable calcium, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 20 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs  Morphine Sulf 15 mg twice daily)Colocourt enemas at night.


Bennie
Veteran Member


Date Joined Nov 2006
Total Posts : 552
   Posted 8/17/2007 6:39 PM (GMT -7)   
I totally agree with kb5 and another UC wife. This can be a great forum for her to ask questions and vent (along with you). And the people here are wonderful! They kept me sane many a time.

--Mom of bratcat (16 years old)--
bratcat was diagnosed with pancolitis October 2006
Current meds:
Asacol - 4 pills/3Xday
Rowasa - 7/07 tapering slowly
hydrocortisone enema - alternating with Rowasa; 3/3 - began to taper off hydrocortisone sloowwly! No more hydrocortisone enemas!
11/14 - started prednisone; 1/28 - finished prednisone!
Keeping our fingers and toes crossed!!

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