My new theory (after not sleeping for about 40 hrs)

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Mildewval
Veteran Member


Date Joined Dec 2004
Total Posts : 1229
   Posted 8/18/2007 3:42 PM (GMT -6)   
I've been thinking that if food doesn't effect UC (as Quincy says, and I agree) why is it that almost immediately after eating some things does it cause me discomfort or symptoms. And I think it has more to do with chemical reactions happening immediately in the stomach. When the food hits the stomach all these reactions happen to break it down and it may cause these enzymes or other chemicals to travel to the colon (through the blood stream?) When they get to the colon it immediately reacts. Or maybe people with UC have some chemical(s) in the stomach that others don't have. Reactions or chemicals science hasn't uncovered.

From what I've read it seems that science if focused on the colon itself and not other parts or systems of the body. There seems to be some knowledge of this but has not been developed further. For example, when I"m having a flare, my pulse is faster. My doc has said that this is pretty common with UC because the digestive tract is so influential on cardiovascular function. So going even further, maybe this is really a cardiovascular issue with symptoms developing in the colon. And what you eat definitely effects the heart.

Or maybe it is a fungus or parasite, like the one that is affecting my vision and they just haven't found the connection.

And maybe this is why diets like SCD can be so helpful for people. Or why yogurt and probiotics seem to help me....

This is my new theory, after not sleepig for about 40 hours (severe insomnia since returning from a business trip). Maybe it makes no sense at all.

So if I could just figure out what the heck I'm eating that is causing this!!!!! Of course it could be that I permanently changed my chemical make up and am now doomed.

If anyone can chime in or develop further that would be awesome. I'm took drunk from lack of sleep to think much more about it. (I haven't been drinking at all). Oh, and if you have any ideas for getting me to sleep that would be awesome! Insomnia is not fun!
Pancolitis since October 2004
Currently experiencing symptoms- blood and mild pain. Have started ANOTHER round of enemas.
My drugs of choice: Asacol 2-3 times a day (if I remember), Imuran, Canasa suppositories every other day, probiotics, fish oil, Iron, multi-vitamin
My other therapies of choice: Yoga, walking, my animals, and whining.


Eric704
Regular Member


Date Joined Jan 2006
Total Posts : 261
   Posted 8/18/2007 3:59 PM (GMT -6)   
It's simple. Food does effect UC. Your colon wall is exposed to everything unlike a healthy colon which is protected.

I used to always think food didn't effect it. But certain foods can cause yeast and fungus build up because of the state your colon is in. Which is what happened to me. I had a lab test done recently that said I had diving/pathology yeast. So now I'm on a yeast free diet trying to kill it off. Only on it about 3 weeks along with yeast killing supplements and I have much less urgency. Only getting better.

Also I've noticed I used to always have a sort of white buildup on my tounge. Ever since I started this diet my tounge is always a nice healthy red/pink with no residue.

cagio1
Regular Member


Date Joined Mar 2007
Total Posts : 56
   Posted 8/18/2007 6:23 PM (GMT -6)   

HI

Sorry that you are not sleeping.  The only thing that helped me during those times was Lunesta but... who wants to take another pill right.  Anyway... I am not Lunesta free.

Food definately affects my UC.  I have recently started a new "health craze" in my home to help myself and inturn I have helped my husband lose weight and my son eat better.  We are all doing well.  I am approaching the amazing level of REMISSION. 

I bought the SCD diet book and have incorporated alot of it into our diet along with other thintgs and so far so good.  You are absolutely on the mark when you talk about foods affecting you. 

 I read an article recently that talked about studies of UC patients and they spoke about flares starting with a high intake of complex carbs. (ie. potatoes, breads etc)  When I think back on some of the flares (I have been in flares for years now) I was eating alot of complex carbs before I flared.  I would call some of them comfort foods and continue eating them during the flare... and then wondered why I would not rebound.  I have eliminated some things from my diet but not all.  I still eat potatoes and breads but not much.  I do not drink milk or certain cheeses (see the SCD diet) and I am doing really well.  I enjoy my food because I know that I will not be running to the bathroom as soon as it goes in my mouth.

The complex carbs give your body more work to do.  I read labels, buy foods low in carbs and incorporate alot of  veggies and fruits into our diet.

I hope you get some sleep soon.  There is nothing worse than lack of sleep and then UC symptoms. 

I hope my comments validate your theory.  Good luck.

cagio



DX with (pan colitis) UC 9/02 while pregnant
meds:  Sulfasalazine 6 pills a day
Colazal - made me sicker (nausea, diarreha, etc)
Rowasa (when needed)
Boniva
Calcium
multivitamin
Iron (when issues appear)
Mild bronchial asthma too
Prednisone 30mg
6MP 50mg started beginning of July


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 8/18/2007 9:39 PM (GMT -6)   
People with IBD have messed up immune systems, of course food is related somehow, could simply be the bacteria via the food, but it's not known for sure regarding food, this is still being researched...I wouldn't rule anything out, how can you when much still needs to be learned...and they do know that bacteria definitely plays it's role with IBD.


:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


quincy
Elite Member


Date Joined May 2003
Total Posts : 30389
   Posted 8/19/2007 12:48 AM (GMT -6)   
Val....Did your doc check your blood pressure?

Do you think that the imuran might be responsible for some of your symptoms?

I was sick this week on Monday...some virus I would think, but I had a fever, pain in my left ear and along my face, severe nausea and rapid heartrate. Blood pressure was fine, go figure.

I couldn't eat very well, because the more nausea I felt, the more my heartrate went up. In turn, making me more uncomfortable, nauseated and anxious because I was worried maybe my liver is starting to be affected. I didn't feel any dicomfort in my butt, however....but took gravol 4 times that day.

Wouldn't you know it...I did end up at the doctor that morning at the start of the symptoms. She took blood tests for thyroid, magnesium and B12.

Now that I'm starting to have reflux symptoms, I'm wondering if that's part of it.

I sure hope you're able to get some sleep. Maybe the sominex or whatever else like that would help. They are antihistamines...maybe wouldn't hurt to try. Take them early enough in the evening so that any effects can be worn off before you go out.

Do check out the imuran side effects...

Keep us posted. I do think your insomnia has you thinking in a cool way, however.

quincy
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


quincy
Elite Member


Date Joined May 2003
Total Posts : 30389
   Posted 8/19/2007 12:51 AM (GMT -6)   
My only comment on this is....as soon as you eat, the food is NOT in the colon. It'll be a while before it gets there.

But, once you take a bite of something, the digestive process starts. It's all supposed to happen in a natural movement that what comes in eventually goes out after it's "processed". Too bad that poop isn't turned into gold.

If any part of the digestive system is inflamed, there will probably be a blip (large or small) in the process. Not all our body parts necessarily work well together when they're doing the independent thing of their own.

As well, for many of us, we have IBS. Albeit a separate dysfunction, there can be spasming, cramping, excessive mucus production, pain, urgency, etc.

Food won't cause flares, but food will create its own or exacerbate symptoms...put the two together and if they don't have you feeling good, it should be dealt with by either changing foods, adding meds or soothing products.

I had some very unappealing strawberries after supper. I have a stomach ache and some nausea (which I've had off and on this week). I rarely would have that symptom from strawberries, but maybe it's because reflux is an issue lately, and strawberries are the last thing I ate that is "memorable".

Everyone needs bacteria for the proper floral and enzyme balance to break down food. Our bodies don't produce all the enzymes either...we need certain foods to help with the process. If there's no intake of certain foods when we eat them, then I wouldn't doubt we'd have symptoms of some kind.

Imagine what's happening when people stop eating many foods, yet consume foods that the body doesn't produce on its own.

The effect from foods on UC or on the digestive tract is either discussed in a general sense or specificly direct. I don't support the specific direct idea.

Don't also miss the possibility of anxiety and emotional/mental control of foods.....for some I believe it's more that than the foods themselves.

quincy
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


damo123
Veteran Member


Date Joined Jul 2007
Total Posts : 714
   Posted 8/19/2007 3:57 AM (GMT -6)   
Ok heres my take on it. I think UC has to do with having digestive problems (brilliant sherlock/horatio!!)

Somewhere along the passage of food something is going wrong, whether it be in the mouth (not chewing food) in the stomach (not having sufficint enzymes) in the small intestine or whatever. But some process fails at some point along the way. And then the colon gets the brunt of the effect. Because of problems elsewhere the colon is being asked to do something it wasnt meant to do or cant do. Over time the problem becomes chronic, you end up in a vicious cycle with problems in the colon feeding your other issues.

I'm tempted to gather together every scrap of information I can about what constitutes healthy digestion - from proper chewing to probiotics, from stress to food choices and implement these into my life. UC is a chronic problem and I'm sure it will take a long time to fully heal. I've said this before but I don't think our doctors stress enough to us that getting to remission is a healing process. And healing takes time and will be affected by non-UC things.

I know that UC is caused by the immune system attacking the body. The body is such a wonderful wonderful object - as Baz Luhrmann says in the Sunscreen song 'it's the greatest instrument you'll ever own.' I just cant bring myself to believe the body would attack itself without a cause. It's illogical. There are a lot of illogical things in life. I dont think the human body is one. We'd have never gotten this far in evolution if it was.
800 mg Asacolon twice a day
Fish Oil
Iron tablets (only for short term to build up iron stores)


UCJuly2007
Regular Member


Date Joined Aug 2007
Total Posts : 95
   Posted 8/19/2007 11:23 AM (GMT -6)   

I don't know if I am more confused now or what after reading this post...but thanks again for all your input anything is better than what I knew before.

 


Smiles,
29/F Diagnosed UC July 18, 2007 
Meds: 6 Asacol 400mg Tab
         6 5mg Prednisone total 30mg (down from 40mg)
         1/2 30mg Tylenol #3
         1 1000mg Canasa Suppository
         1 Calcium 500+D
         1 Cerovite Vitamin and Mineral Supplement
         1 325mg Ferrous Sulfate
 
 


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4034
   Posted 8/19/2007 12:15 PM (GMT -6)   
quincy said...
Too bad that poop isn't turned into gold.
Lol. I'd be rich by now. =)
23 years old
Diagnosed with UC March 2007

Asacol 4 tablets 3x/day
Rowasa (generic) - 1 every few nights
Ultimate Flora probiotic (50 bil. cultures) 1/day; Chewable multivitamin; Stonyfield Farms yogurt


Kevster
Regular Member


Date Joined Jul 2005
Total Posts : 86
   Posted 8/19/2007 12:46 PM (GMT -6)   
 
What I get from reading this is a reminder of the fact that nobody truly knows the full-extent of how UC works.  However, different foods certainly do affect it.  For example, high-fibre foods tend to clog my gut and leave me constipated.  Plus, there is a specific type of apple called a 'Pink Lady' that I simply cannot break-down in my body.  The result is a scraping of the apple bits on the wall of my colon and it can be very painful.
 
 
Age 24
-----------
Diagnosed at age 22
-----------
Symptoms since age 21
-----------
Pancolitis


birdiem
Regular Member


Date Joined Aug 2007
Total Posts : 326
   Posted 8/19/2007 2:14 PM (GMT -6)   

First of all "Too bad that poop isn't turned into gold." is my new favorite quote ever! also, i do believe food related to both UC and sleep. i know it sounds cliche but have you tried warm milk? i can't do dairy, so i do warm vanilla soymilk--it helps me. also bananas, but i think that they are just my comfort food. :)

good luck and keep us posted

p.s. when i have insomnia (always) i get up and write for a few hours. once i do that, it is much easier to go back to sleep.  


diagnosed with cecal volvulus, 2006; two colon resections in the same year
diagnosed with colitis 2007
malrotated colon
no cecal valve, removed during surgery
 
 
probiotics

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