Funny you should post the question today of all days. I am two weeks into the final taper of Prednison (alternating days of 5 mg and 0 mg) and was going to be off it completely in a couple of days, but over the last three weeks I had been having blood on and off, and lately more on, and my mornings have been getting bad again, again, just sporadic, still much better than before the Remicade. Like, Monday lots of D, today, almost normal.
So I called the GI and he wants me to continue the Pred at the current dose, go back to Rowesa nightly (ugh) and see him in a week or two.
I am about a month from the last Remicade, which is when thing deteriorated last time. I don't want to think I need it monthly, but it DOES work for a few weeks each time. So I have an appointment a week from Friday and we'll see how it goes. Hopefully the Rowesa will do the trick and I'll just be on the Prednisone at this low dose until my next Remi infusion.
Diagnosed UC April 27, 2006
Remicade: 1st infusion 7/21/07; 2nd infusion 8/18/07
Colazal three 750 mg capsules 3X day; Protonix;
Prednisone 4/27/06-present; failed at every taper attempt until Remicade infusion. Currently alternating 5/0 mg;
Xanax; Rowesa; Asacol; [2/22/07 started Imuran, off within two weeks due to bad reaction]