new to this message board and questions about imuran

Hi, 

I have just spent a few hours reading through these postings.  Very helpful.  Thanks to all who have been so open and honest about the struggles of UC.  I was officially diagnosed with UC 2 1/2 years ago and have tried all kinds of conventional and alternative treatments as well as special diets, VSL, probiotics, fish oil etc. etc. etc.

 

I finally decided to go on imuran which I started 12 weeks ago. It seems like it is just kicking in however I have developed mouth sores and an inflammed tongue.  I am on a high dose of 200 mg which seems like alot to me as I am not a large person.  I am also on 10 mg of pred. and hopefully will be able to get off of it premanently.

 

Has anyone ever had mouth sores etc. from the imuran and also how do you understand the dosing to be determined?

 

Also for those whose UC is in remission, do you still suffer from fatigue?  I have read that even when the UC is in remission, most with UC still feel fatigued. I have always had so much energy and it is so diffcult to accept my lack of energy. 

I am fatigued all the time. I get so tired of saying "I'm tired." For me I think it is a combo of the UC and the meds. I really hate this part of the disease.

I do get mouth sores frequently. I have not linked them to Imuran though. I'm thinking you may want to call your GI or their nurse about the inflamed tongue. Not sure about that one.

Oh and Welcome!!! We are glad to have you here!

---

Tabitha

100mg Azathioprine, 2 Fibercon, Colazal-9 a day (attempting to cut this down to 6 by slowly tapering), acidopholis pearls, just added Prilosec OTC

https://www.healingwell.com/donate
Co-Moderator UC Forum