Trying to straighten something out...

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FosterDad
Regular Member


Date Joined Aug 2007
Total Posts : 97
   Posted 8/19/2007 7:16 PM (GMT -7)   
Ok...Im getting a little confussed....
 
From what Ive read here it sounds like when people are having a flare up, they are having diarrhea with mucos and blood and everyone is trying to eat food that is a bulker.
 
Now, if thats the case then Im confussed...because I think I actually become slightly constipated (or very slow moving) and just get more frequent blood and mucos discharge, like the food is actually pushing it through me.  Then I will get marble size poops with a little bit of loose come through.  So I dont think I need a bulker food.
 
Is there a normality to this or is there anyone else with flare ups like this?


Just diagnosed Aug. 14/07
Asacol 2 x 4


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 8/19/2007 7:26 PM (GMT -7)   
Uc can range from D to constipation, there never hardly seems to be a middle ground at times. What you are experiencing is a form of constipation and actually fiberous foods or supplements can actually make the stool bulk together easier so you can eliminate it easier. Are you drinking enough fluids? Are you on any rectal meds? If not, then you should ask your doctor about them such as Rowasa. Asacol treats almost the entire colon but sometimes it fails to reach the rectal area. The rowasa targets the rectum or slightly higher.


 @--->--SHERRY--<---@
Left sided Uc since '92 - meds - Colazal, Canasa (when needed), 6MP (50-75mgs), Forvia, Biotin (IN REMISSION - sort of!)
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FosterDad
Regular Member


Date Joined Aug 2007
Total Posts : 97
   Posted 8/19/2007 7:40 PM (GMT -7)   
So it sounds to me the UC is very close to IBS except there is a little more mucos and some bleeding.  I am drinking my 8 glasses of water a day.  I am not on any rectal meds yet as both my doctors left for vacation the same day they diagnosed me and wont be back until the end of the month.
 
So, it sounds to me that I should be eating more foods to make me poop rather than foods to slow things down. hhhmmm.
 
Rectal meds......oh joy.
Just diagnosed Aug. 14/07
Asacol 2 x 4


Jjc2007
Regular Member


Date Joined Apr 2007
Total Posts : 194
   Posted 8/19/2007 9:01 PM (GMT -7)   
In my lifetime with UC, I have run the gamut from excessive diarrhea to constipation. Again, all of our bodies seem to react differently from others and different over time.

In a flare I will get cramps like I have to go, and get there and nothing except blood and mucous. That can happen a lot. So over time, for me anyway, what has worked is eating to create bulk.
But the last time, the constipation was so bad, and passing the marbles so painful, I was in tears.

I started on fiber (metamucil) twice a day (two tablets) and Collace stool softners (no laxative though). As well I started on the probiotics. I have been feeling the best I have felt in years and having the most normal bowel movements in years.

It is a crazy disease and who knows if this will work for others. But for me, it has helped a lot.
diagnosed with UC in 1962
regualr meds:
Asulfadine (500mg tablets, 6 daily)
Folic Acid
Zantac as needed
open heart surgery in 2005 for removal of aortic root aneurysm


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 8/19/2007 9:16 PM (GMT -7)   
You can have various symptoms with IBD, you don't necessarily have to have D in order to be flaring.


:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


quincy
Elite Member


Date Joined May 2003
Total Posts : 29860
   Posted 8/19/2007 9:33 PM (GMT -7)   
Hi FosterDad...it seems you're still flaring...and yes, you should be on rectal meds. But that can wait till the docs get back.

What kinds of foods are you eating in general? Bulking up the stool is what we all need. Certain foods help as well as fibre supplements

The rectal meds aren't so bad. devil
quincy scool
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4034
   Posted 8/19/2007 9:54 PM (GMT -7)   
Hi,
 
You may consider asking your doctors for a higher dose of Asacol if you're still bleeding (when they get back from vacation). I can understand why they might have wanted to start out somewhat low, but when I was still bleeding a month and a half after first getting diagnosed, my GI bumped my dose up to 12 pills/day. He also put me on rectal meds, which sound really horrible but they aren't that bad after the first few times doing it.
 
I don't know anything about IBS, but UC can involve lots of things...you can lose extreme amounts of blood and you can also have no bleeding and still be in a flare. I had excruciating abdominal pain before I was on meds. I also had a lot of mucous and D. As far as foods go, I would just try different things out and see what works for you...aim for a well-balanced diet, but maybe go easy on raw veggies, nuts and spicy foods that may possibly irritate your colon while flaring. My GI told me I could eat whatever I want, but a lot of people with UC and other GIs disagree with that...so I don't really know.
23 years old
Diagnosed with UC March 2007

Asacol 4 tablets 3x/day
Rowasa (generic) - 1 every few nights
Ultimate Flora probiotic (50 bil. cultures) 1/day; Chewable multivitamin; Stonyfield Farms yogurt


FosterDad
Regular Member


Date Joined Aug 2007
Total Posts : 97
   Posted 8/19/2007 10:14 PM (GMT -7)   
quincy said...
Hi FosterDad...it seems you're still flaring...and yes, you should be on rectal meds. But that can wait till the docs get back.

What kinds of foods are you eating in general? Bulking up the stool is what we all need. Certain foods help as well as fibre supplements

The rectal meds aren't so bad. devil
quincy scool

Hi....I actually just ate for the first time in 3 weeks tonight.  For the last 3 weeks all Ive been living on is Ensure Plus and broth.  But today I just couldnt take it anymore and had a cup of white rice for lunch and some plain pasta and a peice of white bread with peanut butter.  I needed to get some protien in me.  Ive lost 25 lbs in the last 3 weeks so I figured I better get something in me and see how it sits over the next couple of days.
Just diagnosed Aug. 14/07
Asacol 2 x 4


quincy
Elite Member


Date Joined May 2003
Total Posts : 29860
   Posted 8/19/2007 10:25 PM (GMT -7)   
Yes, start eating eggs at least. Better yet...eat!! more often and smaller meals. You should have a protein with at least 3 of them.

There is NO benefit to eat what you have been. Was it your idea to not eat or did that come from your doctor?

Where in your colon is your UC limited to?

q
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


birdiem
Regular Member


Date Joined Aug 2007
Total Posts : 326
   Posted 8/20/2007 8:27 AM (GMT -7)   
also wildwood baked tofu is a good protein "bland" food but tastes delicious. i eat it with hummas when i flare.
diagnosed with cecal volvulus, 2006; two colon resections in the same year
diagnosed with colitis 2007
malrotated colon
no cecal valve, removed during surgery
 
 
probiotics


tenoch
Regular Member


Date Joined Apr 2007
Total Posts : 31
   Posted 8/20/2007 8:37 AM (GMT -7)   
my doc told me to avoid peanus or any nuts because they are high in fiber , just fyi
Tenoch
28 years old
Male

Diagnosed March 2007
2.4 g Lialda (type of 5-ASA) per day
Upped it to 4.8 g Lialda per day
Tried the Enamas - put me in remission for 1-2 months
Flaring up again now trying Colozal 9 X 750mg per day


HNW
New Member


Date Joined Aug 2007
Total Posts : 16
   Posted 8/20/2007 12:37 PM (GMT -7)   
FosterDad said...
So it sounds to me the UC is very close to IBS except there is a little more mucos and some bleeding.  I am drinking my 8 glasses of water a day.  I am not on any rectal meds yet as both my doctors left for vacation the same day they diagnosed me and wont be back until the end of the month.
 
So, it sounds to me that I should be eating more foods to make me poop rather than foods to slow things down. hhhmmm.
 
Rectal meds......oh joy.

I cried like a little kid when I had to do my first enema....probably cuz I didn't really know what was happening with me yet and was really scared.  Its actually not bad at all.  You get used to it real fast so don't stress to much about it!
 
 
Diagnosed with Ulcerative Colitis: August 7, 2007 at age 24
 
Meds so far: Asacol 3 pills 3 times a day
                 Mesalamine Enemas every night


FosterDad
Regular Member


Date Joined Aug 2007
Total Posts : 97
   Posted 8/20/2007 12:39 PM (GMT -7)   
quincy said...
Yes, start eating eggs at least. Better yet...eat!! more often and smaller meals. You should have a protein with at least 3 of them.

There is NO benefit to eat what you have been. Was it your idea to not eat or did that come from your doctor?

Where in your colon is your UC limited to?

q

So far all I know is when I came outta my colonoscopy sleep, the nurse handed me a peice of paper that the surgeon wrote on and it says, "Colitis up to transverse colon.- I left prescription for Asacol."  Thats it, and he was gone on vacation.
 
I didnt think that there was much benefit from eating what I was because there is no real protien or vitamins in any of that, but thats what most people were saying they eat when flaring, so I figured ok, I'll give it a try.  That goes the same with the peanut butter, just wanted some protien and I think I need the fiber because I have UC with constipation.  I was going to start on egg too but wasnt sure about the egg yolk.  Should I just be having the egg white?
 
Yes...it was mainly my idea with influences from another UC sufferer to just stick with Ensure and broth until the bleeding stopped.  But from the looks of it, the bleeding isnt going to stop any time soon.  It starts to be almost gone and then the next morning **SURPIRSE** its there again.  So, I am going to start to eat little bits at a time.
 
Im also feeling quite nauseous today.
 
Thanx
 


Just diagnosed Aug. 14/07
Asacol 2 x 4 (5-Aminosalicylic Acid 400mg)

Post Edited (FosterDad) : 8/20/2007 3:01:55 PM (GMT-6)


quincy
Elite Member


Date Joined May 2003
Total Posts : 29860
   Posted 8/20/2007 8:12 PM (GMT -7)   
Hi...for you to just consume Ensure and broth until you stop bleeding is not in your best interests. Very few of us would follow such a diet regimen. My opinion, clearly....but it's not based on anything that will help your flare. Besides that, you could bleed for months (which can be normal)while you're healing. It's good you have figured out that point.

What did you normally eat before you got diagnosed?

Eggs (that means the whole egg....that's where all the vitamins and minerals are.

What is it you "want" or are craving to eat?

quincy
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 8/20/2007 8:49 PM (GMT -7)   
Both my mom and a friend of mine have UC, they will do liquid diets for a couple of days at a time to rest their bowels, their GI's have recommended they do this during severe flares...this won't necessarily stop the bleeding, you need to see your GI about the bleeding so he can prescribe some rectal meds like cortifoam, this won't necessarily stop the bleeding in it's tracks either, it could still take some time...bowel rest is fine for a few days at a time, it won't hurt anything.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


quincy
Elite Member


Date Joined May 2003
Total Posts : 29860
   Posted 8/20/2007 8:59 PM (GMT -7)   
Not for weeks, and certainly not for any longer than a day or two at the very most. If you're nauseated and cannot eat, it's not going to hurt. At least the intake of something is better than nothing.

It can,however, become a habit for some...believing it will heal the bowel.

It's not usually recommended for UC unless you're going an unusual amount of times. I was going almost 20 times a day, the doc didn't suggest bowel rest. He did, however, suggest dicyclomine to help slow things a bit...it helped with the spasming and cramping.

But...I was also given rectal meds.
 
And the docs should try people on the 5ASA enemas before the steroid enemas...or use the steroids to bump up the 5ASA if needed.  There's no shortage of suggestions or options regarding rectal meds..and should be part of every UCer's regimen.

quincy


*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


pb4
Elite Member


Date Joined Feb 2004
Total Posts : 20577
   Posted 8/20/2007 10:16 PM (GMT -7)   
No, I never said for weeks...although it's been known to happen for UCers as well to have to go into the hospital for bowel rest (tube feeding) to help the bowels rest as this can be healing, sometimes for a few weeks, under supervision of course (hence, being in the hospital).

Never, never starve yourself, liquid diets with some nutrients won't hurt, starving for a day or more is not recommended, you need to constantly get nurishment.

:)
My bum is broken....there's a big crack down the middle of it!  LOL  :)


AKB
Veteran Member


Date Joined Mar 2006
Total Posts : 992
   Posted 8/21/2007 1:54 AM (GMT -7)   
fosterdad, glad you're eating again. It takes a while to 'learn' with this illness- and the education never stops. My opinion on not eating is that it does little to no good-- you're hungry, miserable, depriving the body of nutrients, and you STILL end up bleeding.

Especially drinking Ensure all the time-- YUCK. It is pure crap (look at the ingredient list), full of sugars and other baddies. I got D from Ensure, big time, and now avoid it like the plague.

Find what foods you can tolerate, and eat them! Consider taking some oils (olive, fish, flax, coconut) to get your calorie count back up. I'm giving that a shot myself now.
Dx:

Left-sided UC, Jun 2005. Flex-sig only... clear for first 20cms, then inflamed through next 30cms.

Therapies:

Pharmaceutical: Pentasa 3G/day, hydrocort 1x every 7 days
Probiotics: Acidophilus Pearls, Primadophilus Bifidus
Naturals: Caprylic Acid, Methylated B-12, Vit ACDE, Zinc (w/copper), Selenium, Turmeric, Bromelain, Luteolin
Killer Foods: Soda, Fried Food (especially french fries!), Beer, Red Wine, Pepperoncinis


FosterDad
Regular Member


Date Joined Aug 2007
Total Posts : 97
   Posted 8/21/2007 10:19 AM (GMT -7)   

Wow....thank you guys so much for all the input.

Well, I guess its my bad for dragging out this liquid diet (fast)  Usually about 2 times a year I will go on a 3 - 4 day fast just to let my body have a break, but never this long.  I guess my thinking was that because when I eat I get somewhat constipated and with the flare going on, its like sending a tennis ball wrapped with sand paper through my gut.  I just wanted to lessin that.  I guess Im going to have to find something to soften things up for me instead. Without Laxitives.

Yesterday, I had white toast and peanut butter and white toast and scrambled egg. (best darn egg Ive had in ages....lol)

What am I craving?  Cheese burger, hotdogs, fries, BBQ chicken and Ceasar Salad, chocolate cake, stir fries, fish and chips, and Chinese food. (lots of veggies in all that too)  That is probably the bulk of my diet up to approx. 3 months ago. 

Thanks again guys for all your help, keep it coming its greatly appreciated. yeah   


Just diagnosed Aug. 14/07
Asacol 2 x 4 (5-Aminosalicylic Acid 400mg)


AshNH
Regular Member


Date Joined Jul 2007
Total Posts : 208
   Posted 8/21/2007 2:28 PM (GMT -7)   
Of course, everyone's body is different, but I, too, avoid Ensure now. Just full of sugar that I don't need. I have some in the fridge that have been sitting there for months.

Egg omelette with veggies seems to work best for me. Try to get organic eggs or, at least, the ones with Omega-3. They normally come with 200mg of Omega-3 per egg. Some up to 300mg but much more expensive.

Personally, I would avoid greasy stuff, as it'll be hard to digest. Try to have much veggies as you can..steamed or stir-fried with olive oil. I would avoid sweets as well.

...my two cents..hope that helps.
Ash 39 NH, vegetarian
Diagnosed with UC July 06 (I think 6/6/6) during 10 day hospitalization
Current meds: Asacol 12, Imuran 150mg
Centrum Silver, VSL #3, olive leaf extract, DHA-Omega 3, L-glutamine


ucRick
Regular Member


Date Joined Jun 2007
Total Posts : 75
   Posted 8/21/2007 2:49 PM (GMT -7)   
FosterDad,

I'm sorry you have to deal with this disease. For me, when I first started on medication for this disease, it took a few weeks for the symptoms to be controlled with the meds. I initially took azulfadine and then later Asacol. It may take a little while for the meds to begin working. The last bad flare I had was in the early 90's, when I had the bright idea of tapering off the Asacol and trying to do without meds, and I lasted about 4 months without symptoms. When I flared, my doc put me on a temporary round of prednisone along with the Asacol and that brought my symptoms under control pretty quickly. Prednisone doesn't work for everybody, though, and it can have some bad side-effects.

I wish you the best.

Rick
53 yr old male, UC since 1978
800mg Asacol x 3 daily
Multivitamin
Forteo(for osteoporosis)
600mg calcium + 200 iu Vit. D x 3 daily
Advicor(for cholesterol)

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