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Posted 8/20/2007 4:07 AM (GMT -7)
I stumbled across this link. It's an interesting read about how one woman (a scientist!) abandoned meds and conventional wisdom and controls her colitis by other means.

http://www.theibdpages.homestead.com/home.html

I'm drawn to her quote at the top of the page that the great breakthroughs in modern science occured when people didn't take the "established view". I wonder how many experts at the time taught that what Edward Jenner was doing was crazy!

If you look somewhere and can't find a solution, maybe you need to look somewhere else. Or as the (european) Nike advert goes "First you believe. Then you succeed".

 

800 mg Asacolon twice a day

Fish Oil

Iron tablets (only for short term to build up iron stores)

Posted 8/20/2007 7:58 AM (GMT -7)
Well I see you're new to the boards.

There's nothing new in that link that hasn't been gone over and done by alot of people already. Diet has helped alot of people go symptom free and heal.
Posted 8/20/2007 8:57 AM (GMT -7)
Eric,

I know I'm new to the boards and yes I realise a lot of people have discussed these issues on here. I simply found an interesting website that I wanted to share with others.

D
800 mg Asacolon twice a day

Fish Oil

Iron tablets (only for short term to build up iron stores)

Posted 8/20/2007 10:50 AM (GMT -7)
Thanks for the link! It's always nice to have lots of good information in one spot.
Diagnosed Ulcerative Pancolitis
25mg Imuran

Probiotics
Fish Oil
Vitamin C

Slippery Elm
TURMERIC!!!

Posted 8/20/2007 11:35 AM (GMT -7)
Great reading and thanks for sharing.

I had the Rocephin shot and 2 weeks of Omnicef, this helped with my bloating and digestion. That was 4/15/07

Had Cipro and Predison for 10 & 5 days, 7/3/07

colonoscopy & Endoscopy 7/27, Left sided colitis

Colozal 4 a day

Posted 8/20/2007 11:52 AM (GMT -7)
You are both more than welcome. We hear so many bad stories about IBD I just think we don't hold onto the good ones enough!

D
15 mg Pred (yuck!)

2400 mg Asacol + 500mg suppositories as needed

Digestive Enzymes

Probiotics + Bio Yougurt

Acidophilus

Calcium

1000mg Fish Oils a day

Aloe Vera

Anti Fungal Supplements & Caprylic Acid

Nexium 20mg a day

No Stress  and a positive attitude (mostly!)

 

 

 

 

 

Posted 8/20/2007 12:38 PM (GMT -7)
Yep, thanks, interesting to read the list of herbal stuff. I've been thinking about Slippery Elm, might just try that as well! And its reminded me to take the Milk Thistle that I bought a while back
Current meds

Asacol MR 400mg x2 3times/day
Fish Oil 1000mg 1 cap
Acidophilus 2 tabs
Aloe Elite 4 caps x2
Multi Vit x1
Caprylic Acid x1
Chewable Calcium & Vit D 2 tabs
Yakult


Diagnosed '96 ?colitis?crohns (biopsies inconclusive)
Remission for 11yrs, no meds
Current flare since April 07, awaiting scope

Posted 8/21/2007 4:03 AM (GMT -7)
THANKS for this!! I've never seen this before!! I have my eye on Cat's Claw!! The diet page is great. So what are good herbal combo to take??
UC since 1986.

Asacol - six a day
6 MP - one a day.
Remicade - every eight weeks.
Ron Paul 2008

Post Edited (uc veteran) : 8/21/2007 4:14:46 PM (GMT-6)

Posted 8/21/2007 4:41 AM (GMT -7)
UC Veteran,

Yes it's an excellent site isn't. I'm very new to this site (as Eric has pointed out!) so not the best to advise. What I'm gonna do is go visit a herbalist or a homepath and show them this list and see what they say. I didn't realise how many herbalists are out there and how easy it is to get these products in health shops.
15 mg Pred (yuck!)

2400 mg Asacol + 500mg suppositories as needed

Digestive Enzymes

Probiotics + Bio Yougurt

Acidophilus

Calcium

1000mg Fish Oils a day

Aloe Vera

Anti Fungal Supplements & Caprylic Acid

Nexium 20mg a day

No Stress  and a positive attitude (mostly!)

 

 

 

 

 

Posted 8/21/2007 7:07 AM (GMT -7)
damo : I found this link helpful as well.  Thanks. 

uc veteran : Do you really think it is a good idea to list your support of political candidates in your signature?  Do you think that is appropriate and relevant at all to UC issues?  What if we all did that? 

Diagnosed UC 1999

Asacol (no effect)

Colazal (no effect)

VSL#3 (not enough difference to justify the cost)

OTC : Probiotics (Primadophillius Reuteri, 1 capsule per day), enteric coated Fish Oil (1.7g 3x per day), Metamucil (one serving 4x per day), Turmeric/Curcumin95% (1g 2x per day), Multivitamin, Caltrate 600D (2x per day), L-Glutamine (5g 2x per day, first thing in the morning on an empty stomach and before bed)

approximate current BMs : two in the a.m. (generally between 8-10 a.m.), then one around 3pm, and one around 9pm

Posted 8/21/2007 7:31 AM (GMT -7)
Interesting link! Thanks!

UC veteran- I have never heard of your candidate- I'll look him up.

KJ35- I don't have a problem with you listing your political affiliation. This is a plave where all are welcome to share thoughts and ideas. It doesn't mean we have to agree.
Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, Rowasa every other night, back to 30 mg pred.
Waiting for prometheus test to start Immuran
Prontonix once daily for acid reflux, zofran twice daily for nausea

Posted 8/21/2007 7:58 AM (GMT -7)
Kelly,
Read rule # 10 of the forum rules. No politics. We get enough of this everywhere else. No need for it in a UC forum.
Diagnosed UC 1999

Asacol (no effect)

Colazal (no effect)

VSL#3 (not enough difference to justify the cost)

OTC : Probiotics (Primadophillius Reuteri, 1 capsule per day), enteric coated Fish Oil (1.7g 3x per day), Metamucil (one serving 4x per day), Turmeric/Curcumin95% (1g 2x per day), Multivitamin, Caltrate 600D (2x per day), L-Glutamine (5g 2x per day, first thing in the morning on an empty stomach and before bed)

approximate current BMs : two in the a.m. (generally between 8-10 a.m.), then one around 3pm, and one around 9pm

Posted 8/21/2007 11:13 AM (GMT -7)
I took slippery elm for six months or so. It seemed to help pretty well. I don't bother buying it anymore because it's pretty expensive and I don't think I need it.

I'll definitely agree with diet... and I'm all for sticking to your diet as long as you can... long after you're in remission. I've been symptom-free since January of '07 but I'm staying my version of the SCD until January of '08 before I start to introduce other food back in.
Diagnosed with severe UC in July '06 (pancolitis)
Hospitalized and given IV steroids, then released on 60mg pred and Asacol
SCD since a week after hospital release.

Sept '06 Quit Asacol and started Digestive Enzymes.

Currently still on SCD.

100% Med-Free and 100% Symptom-Free since January '07.

SCD Works!!!

Posted 8/21/2007 2:15 PM (GMT -7)
Thanks for the link, damo. Good info.

I, too, have been on diet similar to SCD. I have been on anti-fungal diet and it seems to be helping/working. Just afraid to say anything positive..'cause one never knows with this disease.
Ash 39 NH, vegetarian
Diagnosed with UC July 06 (I think 6/6/6) during 10 day hospitalization
Current meds: Asacol 12, Imuran 150mg
Centrum Silver, VSL #3, olive leaf extract, DHA-Omega 3, L-glutamine

Posted 8/21/2007 2:59 PM (GMT -7)

KJ35 said...
damo : I found this link helpful as well. Thanks.


uc veteran : Do you really think it is a good idea to list your support of political candidates in your signature? Do you think that is appropriate and relevant at all to UC issues? What if we all did that?

My God I can't believe how people get so uptight over every little thing!! It's like that no matter where you go in this world. Can't believe it bothers you so much that you would say something.You need to learn to relax. I don't read anybody's sigs, you know why? Because I don't care!! I think you should be able to put whatever you want in your sig. Does my sig. affect your life in any way shape or form?? Mind your business and think about getting yourself well!! Life's too short.
UC since 1986.

Asacol - six a day
6 MP - one a day.
Remicade - every eight weeks.
Ron Paul 2008

Post Edited (uc veteran) : 8/21/2007 4:14:21 PM (GMT-6)

Posted 8/22/2007 2:26 AM (GMT -7)
I started this thread to talk about alternative healing for UC. I'm really sad it has turned into a political argument. I find UCveterans reaction very distasteful. This site is about UC. Some of us don't really care about american politics. There are much more important things in the world. Indeed some of us aren't even Americans.

<sigh>

D
15 mg Pred (yuck!)

2400 mg Asacol + 500mg suppositories as needed

Digestive Enzymes

Probiotics + Bio Yougurt

Acidophilus

Calcium

1000mg Fish Oils a day

Aloe Vera

Anti Fungal Supplements & Caprylic Acid

Nexium 20mg a day

No Stress  and a positive attitude (mostly!)

 

 

 

 

 

Posted 8/22/2007 3:15 AM (GMT -7)

damo123 said...
I started this thread to talk about alternative healing for UC. I'm really sad it has turned into a political argument. I find UCveterans reaction very distasteful. This site is about UC. Some of us don't really care about american politics. There are much more important things in the world. Indeed some of us aren't even Americans.

<sigh>

D

I agree...but I didn't start it. I was right on topic when this guy attacks my sig. Right or wrong? We're talking about alternate healing and this guy is changing the subject on something that has nothing to do with him or anybody else. Isn't that distasteful? Okay, now back to the topic. Has anybody tried Cat's Claw?
UC since 1986.

Asacol - six a day
6 MP - one a day.
Remicade - every eight weeks.
Ron Paul 2008

Post Edited (uc veteran) : 8/22/2007 4:22:33 AM (GMT-6)

Posted 8/22/2007 4:08 AM (GMT -7)

Thanks for the site!

Smiles,

29/F Diagnosed UC July 18, 2007 

Meds: 6 Asacol 400mg Tab

         6 5mg Prednisone total 30mg (down from 40mg)

         1/2 30mg Tylenol #3

         1 1000mg Canasa Suppository

         1 Calcium 500+D

         1 Cerovite Vitamin and Mineral Supplement

         1 325mg Ferrous Sulfate

 

 

Posted 8/22/2007 5:04 AM (GMT -7)
UC Veteran,

I really couldn't care less. I'd just rather talk about UC issues then try and figure out 'who started it'.
15 mg Pred (yuck!)

2400 mg Asacol + 500mg suppositories as needed

Digestive Enzymes

Probiotics + Bio Yougurt

Acidophilus

Calcium

1000mg Fish Oils a day

Aloe Vera

Anti Fungal Supplements & Caprylic Acid

Nexium 20mg a day

No Stress  and a positive attitude (mostly!)

 

 

 

 

 

Posted 8/22/2007 7:02 AM (GMT -7)

uc veteran said...

KJ35 said...
damo : I found this link helpful as well. Thanks.


uc veteran : Do you really think it is a good idea to list your support of political candidates in your signature? Do you think that is appropriate and relevant at all to UC issues? What if we all did that?

My God I can't believe how people get so uptight over every little thing!! It's like that no matter where you go in this world. Can't believe it bothers you so much that you would say something.You need to learn to relax. I don't read anybody's sigs, you know why? Because I don't care!! I think you should be able to put whatever you want in your sig. Does my sig. affect your life in any way shape or form?? Mind your business and think about getting yourself well!! Life's too short.

The reason there is a rule about no politics is because it distracts form the real reason we are here.  There are infinite sites throughout the internet to express your political views.  A forum for Ulcerative Colitis is not the place.

Diagnosed UC 1999

Asacol (no effect)

Colazal (no effect)

VSL#3 (not enough difference to justify the cost)

OTC : Probiotics (Primadophillius Reuteri, 1 capsule per day), enteric coated Fish Oil (1.7g 3x per day), Metamucil (one serving 4x per day), Turmeric/Curcumin95% (1g 2x per day), Multivitamin, Caltrate 600D (2x per day), L-Glutamine (5g 2x per day, first thing in the morning on an empty stomach and before bed)

approximate current BMs : two in the a.m. (generally between 8-10 a.m.), then one around 3pm, and one around 9pm

Romney 2008 McCain 2008 Clinton 2008 Obama 2008 Guiliani 2008 Huckabee 2008 Brownback 2008 Thompson 2008 Edwards 2008

Posted 8/22/2007 7:07 AM (GMT -7)
damo
Once again thanks for the site. Many of the herbs on this site have piqued my interest. I was looking into slippery elm
Diagnosed UC 1999

Asacol (no effect)

Colazal (no effect)

VSL#3 (not enough difference to justify the cost)

OTC : Probiotics (Primadophillius Reuteri, 1 capsule per day), enteric coated Fish Oil (1.7g 3x per day), Metamucil (one serving 4x per day), Turmeric/Curcumin95% (1g 2x per day), Multivitamin, Caltrate 600D (2x per day), L-Glutamine (5g 2x per day, first thing in the morning on an empty stomach and before bed)

approximate current BMs : two in the a.m. (generally between 8-10 a.m.), then one around 3pm, and one around 9pm

Posted 8/22/2007 7:08 AM (GMT -7)
I didn't express anything. YOUR the one who hijacked this thread!! Now, anyway we can get back to the topic at hand?
UC since 1986.

Asacol - six a day
6 MP - one a day.
Remicade - every eight weeks.
Ron Paul 2008

Posted 8/22/2007 8:05 AM (GMT -7)
He said/She said - enough of the finger pointing. Keep the post on topic or it will be locked.

 @--->--SHERRY--<---@

Left sided Uc since '92 - meds - Colazal, Canasa (when needed), 6MP (50-75mgs), Forvia, Biotin (IN REMISSION - sort of!)

Secondary Raynauds Syndrome '04  - meds - Norvasc

Fibromyalgia '06 - no meds

Severe seasonal allergies - meds - Allegra 

PLEASE HELP HEALINGWELL CONTINUE TO HELP OTHERS BY CLICKING HERE: DONATE

@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@

http://www.myspace.com/82595818

 

 

 

 


 

 

Posted 8/22/2007 8:31 AM (GMT -7)
From what I've read there are 4 levels involed in healing the body. Different herbs do different things. You must for instance detoxify the body, then you must drain it etc. It's best to talk to a homeopath or maybe a person who knows about Oriental Medicine. Apparently you don't necessarily need help at each level. I'm a sceptic myself but I'm starting to believe there is a mind/body connection with my own UC. Its worth exploring each option for ones self. Nothing to lose!
15 mg Pred (yuck!)

2400 mg Asacol + 500mg suppositories as needed

Digestive Enzymes

Probiotics + Bio Yougurt

Acidophilus

Calcium

1000mg Fish Oils a day

Aloe Vera

Anti Fungal Supplements & Caprylic Acid

Nexium 20mg a day

No Stress  and a positive attitude (mostly!)

 

 

 

 

 

Posted 8/22/2007 8:38 AM (GMT -7)
I'm a big proponent of natural supplements for healing, combined with dietary modifications. Prescription meds have their place - especially when experiencing a major flare - but it doesn't have to be either/or. Both can work together for complimentary medicine.

I take probiotics to replace good gut flora, l-glutamine for gut healing, fish oil caps for inflammation and digestive enzymes.
Diagnosed with ulcerative colitis spring 1999

Possibly misdiagnosed

 

Maintenance dose sulfasalazine

Probiotics, l-glutamine and fish oil caps

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