Prednisone-sleeplessness-help please!

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Regular Member

Date Joined Apr 2007
Total Posts : 116
   Posted 8/20/2007 10:33 AM (GMT -6)   
I am tapering off prednisone and am now down to 10 mg.  However, I am still having tons of sleeping problems.  I always thought that at lower doses this side effect would go away.  This is my first time on prednisone and it would be great if some of you veterans out there could let me know the point at which you started sleeping well again.  I am about to go crazy!

-currently having a flare
-prednisone (tapering), rowasa enema, Lialda (4 pills 1 time a day), canasa, probiotic, multivitamin, calcium with vitamin d, iron

Post Edited (perach) : 8/20/2007 9:45:44 AM (GMT-6)

Regular Member

Date Joined Oct 2006
Total Posts : 90
   Posted 8/20/2007 3:53 PM (GMT -6)   
How long have you been on prednisone and at what dose did you start?

I was on it for four months last fall and started at 60 mg and stayed there for almost two months. I was WIDE awake at 2 am every night. If I recall correctly, I believe I started sleeping through the night again around 15-20 mgs. At this point I was not flaring at all and my UC was really under control. I did a very slow taper once I got to 15 mgs and tapered at 2.5 mgs every 5 days. If I noticed any flare than I stayed at my current dosage until everything stablized. Even though I started sleeping better before I was fully off the prednisone it took much longer for all the other side effects to go away. I'm still dealing with some of them.

Also, at what time are you taking the prednisone? I assume if you are not doing this already that taking it in the morning should help.
Diagnosed UC - 1993
31 year old female

Current Meds:

Colazal (3 pills two to three times a day)
Flax oil and fish oil capsules occasionally

Regular Member

Date Joined Jul 2007
Total Posts : 77
   Posted 8/20/2007 4:26 PM (GMT -6)   
I am taking Ambien every night. When I try to sleep without it I wake up all night with my heart racing, and I am usually a very sound sleeper. Now I feel nice and rested in the morning. I would ask your doc for a presription and try it. You can just stop taking it when you taper off Pred more.
31 year old female
diagnosed 2007
currently on 40 mg Prednisone, 12 Asacol tabs for UC
also take Probiotics, Multivitamin, Effexor, Claritin, Albuterol, Advair. . . . . 

Regular Member

Date Joined Apr 2007
Total Posts : 116
   Posted 8/20/2007 4:56 PM (GMT -6)   
Thanks for the advice and replies. I am taking it in the morning, though I wasn't when I first started, wish my doc had given me this advice earlier! I started at 40 mg and have been on since the middle of June. I was originally tapering by 10 and then by 5, but both were too fast. Tapering by 2.5 seems to be working for me (fingers crossed). I have Ambien, but I am afraid to take it for more than a few nights in a row, I worry about dependency. Maybe now is the time to give in and just take it until I'm off the Pred. I hate the other side effects, but the lack of sleep just intensifies all of them and makes it really difficult to concentrate at work.
-currently having a flare
-prednisone (tapering), rowasa enema, Lialda (4 pills 1 time a day), canasa, probiotic, multivitamin, calcium with vitamin d, iron

Deb McG
Regular Member

Date Joined May 2007
Total Posts : 33
   Posted 8/20/2007 8:17 PM (GMT -6)   
I'm lucky, a 1/2 to full dose of Simply Sleep is usually enough to give me just the little bit of help I need. There's nothing worse that laying in bed at night, heart racing from the Prednisone. As someone else mentioned, taking the heavier portion of your Prednisone earlier in the day with help also. Good Luck.
UC - 20+ years
6 MP
Prednisone (UGH)
Folic Acid/Calcium/Magnesium

Regular Member

Date Joined Dec 2006
Total Posts : 185
   Posted 8/20/2007 8:40 PM (GMT -6)   
a zanex before bed will do the trick.

- 5.0>

<FONT color=purple>Asacol 1200mg-3x a day,

<FONT color=#800080>Probiotic=metagenics ultra flora plus DF

<FONT color=blue>Heart meds

<FONT color=blue>Lipitor,Toprol, aspirin 81

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