trying to see logic in blood loss!!!!!

damo123

Veteran Member

Joined : Jul 2007

Posts : 714

Posted 8/20/2007 10:24 AM (GMT -7)

When I had pancolitis I got a lot a lot a lot of mucus and diarreha. It was pretty severe. But I didn't really get much blood (that I could see). Now that I have mild inflammation near my rectum area I'm getting a lot of blood. This seems odd to me. I would have thought I'd get more blood with severe pancolitis. Have others experienced the same? Is there any logic to this?

15 mg Pred (yuck!)

2400 mg Asacol + 500mg suppositories as needed

Digestive Enzymes

Probiotics + Bio Yougurt

Acidophilus

Calcium

1000mg Fish Oils a day

Aloe Vera

Anti Fungal Supplements & Caprylic Acid

Nexium 20mg a day

No Stress and a positive attitude (mostly!)

kb5

Veteran Member

Joined : Jan 2007

Posts : 1015

Posted 8/20/2007 10:38 AM (GMT -7)

I didn't think i had blood in my stool either (with pancolitis) turned out it was just more mixed into the stool. I had a sample tested and that's what they told me. A lot of the time the blood from high up is too dark to discern as blood.

Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, Rowasa every other night, back to 30 mg pred.
Waiting for prometheus test to start Immuran
Prontonix once daily for acid reflux, zofran twice daily for nausea

quincy

Elite Member

Joined : May 2003

Posts : 31250

Posted 8/20/2007 1:03 PM (GMT -7)

I personally think there is more blood supply and of course muscles in the rectum...and you might also have a hemorrhoid?

Many who have just ulcerative proctitis do find it's more difficult to get controlled. I believe suebear is one who was in that situation.

Could be because it is where all passes through.

You need more powerful rectal meds methinks.

Oh, did you recently taper down a pred dosage?

quincy

*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)

~diagnosed January 1989 UC (proctosigmoiditis)

~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)

~Bentylol (dicyclomine) 20mg as needed

~vitamins/minerals

~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime

~Natural Factors Multi Digestive Enzymes with supper

~Ranitidine,Pariet (reflux) Effexor XR 75mg; Pulmicort/Airomir (asthma)

~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)

My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!

Beth75

Veteran Member

Joined : Jul 2007

Posts : 2148

Posted 8/20/2007 1:16 PM (GMT -7)

well that surprises me, that people with more of their colon affected don't have more blood. Mine is in the rectum and I can't imagine more than what I get when badly flaring. I do get quite a bit sometimes and before I was dx'd, I remember the toilet being bright red w/it. Scary stuff!! Sorry!

Beth, 31

UC Diagnosed March 2000

Asacol 400 mg 6 pills 2xday

Calcium and Vitamin D 600 mg 2xday

Lipitor 10 mg 1xday

Diovan 80mg 1xday (dx: hematuria w/proteinuria): I have normal blood pressure, this is for my kidney.

suebear

Veteran Member

Joined : Feb 2006

Posts : 5698

Posted 8/20/2007 1:20 PM (GMT -7)

I think the reason why you see it more when it's in the rectum is because it is either streaking the bowel movement or dripping. When your colon bleeds it gets mixed in with the fecal matter and isn't as readily apparent to the eye as it becomes a part of the formed movement.

Sue

dx proctitis in 1987

dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free

Beth75

Veteran Member

Joined : Jul 2007

Posts : 2148

Posted 8/20/2007 1:36 PM (GMT -7)

yeah, makes sense now.....

Beth, 31

UC Diagnosed March 2000

Asacol 400 mg 6 pills 2xday

Calcium and Vitamin D 600 mg 2xday

Lipitor 10 mg 1xday

Diovan 80mg 1xday (dx: hematuria w/proteinuria): I have normal blood pressure, this is for my kidney.

damo123

Veteran Member

Joined : Jul 2007

Posts : 714

Posted 8/20/2007 1:47 PM (GMT -7)

All those comments make sense. Thank you.

Yes I've tapered down from 40mg to 15mg - quite quickly actually as I don't like Pred!!

15 mg Pred (yuck!)

2400 mg Asacol + 500mg suppositories as needed

Digestive Enzymes

Probiotics + Bio Yougurt

Acidophilus

Calcium

1000mg Fish Oils a day

Aloe Vera

Anti Fungal Supplements & Caprylic Acid

Nexium 20mg a day

No Stress and a positive attitude (mostly!)

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trying to see logic in blood loss!!!!!

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