trying to see logic in blood loss!!!!!

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damo123
Veteran Member


Date Joined Jul 2007
Total Posts : 714
 		   Posted 8/20/2007 11:24 AM (GMT -6)   
When I had pancolitis I got a lot a lot a lot of mucus and diarreha. It was pretty severe. But I didn't really get much blood (that I could see). Now that I have mild inflammation near my rectum area I'm getting a lot of blood. This seems odd to me. I would have thought I'd get more blood with severe pancolitis. Have others experienced the same? Is there any logic to this?
15 mg Pred (yuck!)
2400 mg Asacol + 500mg suppositories as needed
Digestive Enzymes
Probiotics + Bio Yougurt
Acidophilus
Calcium
1000mg Fish Oils a day
Aloe Vera
Anti Fungal Supplements & Caprylic Acid
Nexium 20mg a day
No Stress  and a positive attitude (mostly!)
 
 
 
 
 

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kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
 		   Posted 8/20/2007 11:38 AM (GMT -6)   
I didn't think i had blood in my stool either (with pancolitis) turned out it was just more mixed into the stool. I had a sample tested and that's what they told me. A lot of the time the blood from high up is too dark to discern as blood.
Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, Rowasa every other night, back to 30 mg pred.
Waiting for prometheus test to start Immuran
Prontonix once daily for acid reflux, zofran twice daily for nausea

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quincy
Elite Member


Date Joined May 2003
Total Posts : 30389
 		   Posted 8/20/2007 2:03 PM (GMT -6)   
I personally think there is more blood supply and of course muscles in the rectum...and you might also have a hemorrhoid?

Many who have just ulcerative proctitis do find it's more difficult to get controlled. I believe suebear is one who was in that situation.

Could be because it is where all passes through.

You need more powerful rectal meds methinks.
 
Oh, did you recently taper down a pred dosage?

quincy

*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

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Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
 		   Posted 8/20/2007 2:16 PM (GMT -6)   
well that surprises me, that people with more of their colon affected don't have more blood. Mine is in the rectum and I can't imagine more than what I get when badly flaring. I do get quite a bit sometimes and before I was dx'd, I remember the toilet being bright red w/it. Scary stuff!! Sorry!
Beth, 31
 
UC Diagnosed March 2000
Asacol 400 mg 6 pills 2xday
Calcium and Vitamin D 600 mg 2xday
Lipitor 10 mg 1xday
Diovan 80mg 1xday (dx: hematuria w/proteinuria): I have normal blood pressure, this is for my kidney.
 

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suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
 		   Posted 8/20/2007 2:20 PM (GMT -6)   
I think the reason why you see it more when it's in the rectum is because it is either streaking the bowel movement or dripping. When your colon bleeds it gets mixed in with the fecal matter and isn't as readily apparent to the eye as it becomes a part of the formed movement.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 

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Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
 		   Posted 8/20/2007 2:36 PM (GMT -6)   
yeah, makes sense now.....
Beth, 31
 
UC Diagnosed March 2000
Asacol 400 mg 6 pills 2xday
Calcium and Vitamin D 600 mg 2xday
Lipitor 10 mg 1xday
Diovan 80mg 1xday (dx: hematuria w/proteinuria): I have normal blood pressure, this is for my kidney.
 

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damo123
Veteran Member


Date Joined Jul 2007
Total Posts : 714
 		   Posted 8/20/2007 2:47 PM (GMT -6)   
All those comments make sense. Thank you.

Yes I've tapered down from 40mg to 15mg - quite quickly actually as I don't like Pred!!
15 mg Pred (yuck!)
2400 mg Asacol + 500mg suppositories as needed
Digestive Enzymes
Probiotics + Bio Yougurt
Acidophilus
Calcium
1000mg Fish Oils a day
Aloe Vera
Anti Fungal Supplements & Caprylic Acid
Nexium 20mg a day
No Stress  and a positive attitude (mostly!)
 
 
 
 
 

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