Family

Is there a family guide to help family members understand uc?

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Presnidone 30mg tapering
Asacol 2x 3 times per day
Canasa suppositories 1x per day
Hydrocortisone Enema 1x per day

My GI's office usually has some decent brochures that lay out general UC information. I actually picked up one for my parents last time I was there.

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Tabitha

100mg Azathioprine, 2 Fibercon, Colazal-9 a day (attempting to cut this down to 6 by slowly tapering), acidopholis pearls, just added Prilosec OTC

https://www.healingwell.com/donate
Co-Moderator UC Forum

There's tons of information on the internet which can be printed out. Make sure you include some awesome pictures of a raw colon..etc just for impact.

Some just don't want to "get it" because that's the way they are.. It would then mean they'll have to actually become emotionally connected to someone's butt and suffering. Not all people want to go there.

quincy

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*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)

~diagnosed January 1989 UC (proctosigmoiditis)

~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)

~Bentylol (dicyclomine) 20mg as needed

~vitamins/minerals 

~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime

~Natural Factors Multi Digestive Enzymes with supper

~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)

~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)

My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

this may sound a little unorthodox, but you might want to look at some books/information on alcoholism. i have been doing some reading on the subject (my father is in recovery) and there is TONS of information on how to explain a disease to someone who doesn't consider what you have a disease (did that make sense?) i know i have trouble getting my family and friends to believe what i have is "real" and not just a weakness or being dramatic. alcoholics often have to deal with the same problems and there is so much information about alcoholics and family, you may be able to use some to help them understand UC. let me know if this is of any use to you--or what anyone else thinks about this connection. i'm very curious...

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diagnosed with cecal volvulus, 2006; two colon resections in the same year
diagnosed with colitis 2007

malrotated colon

no cecal valve, removed during surgery

probiotics