UC flare for over 1 year

Hey MJP. Yes I have been there. My first flare lasted for 3 years. We just couldn't get it under control at first then I couldn't get off of steroids. This flare is following the same lines but now my doc is trying different things. I am waiting to begin immuran (hopefully this week) to try to get me off of pred. I still have 5-6 bms a day. no blood, little mucus, some pain...

Were all of your colonoscopies in the past 15 months? What are they looking for? Have they deterined what kind of UC you have? What meds have they tried you on? Sorry for all the questions, just want to be able to help the best I can.

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Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, Rowasa every other night, back to 30 mg pred.
Waiting for prometheus test to start Immuran
Prontonix once daily for acid reflux, zofran twice daily for nausea

Hmmm I can honestly say my longest flare was 10 years! Of course it wasn't ALL bad in those 10 years but I always had symptoms and at that time I was in denial of having this disease. So I would constantly make excuses as to why I have this symptom or that symptom. Once I realized what the denial was doing to my body did I decide to step in and take charge of my health and life. But once I became serious about getting my health under control, my doc switched me from Asacol to Colazal, I've used steroid enemas off and on for about a year and even then I couldn't get my flare under control so then the doc put me on 6mp as well. Now I'm in remission and what a great remission it has been.

Oh and welcome to Healingwell :) I hope you get this flare settled quickly. What meds are you on at the moment? If you are not on any rectal meds, then I recommend you give them a try either Rowasa, Canasa or Cortenemas.

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 ^{@--->--SHERRY--<---@}

^{Left sided Uc since '92 - meds - Colazal, Canasa (when needed), 6MP (50-75mgs), Forvia, Biotin (IN REMISSION - sort of!)}

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I had a flare that lasted 2-3 years. At first i put it off and just dealt with it. At the time i did not have insurance and just told my self i could just deal with it. It would get worse, and finally i went to the doctor. He started with Asacol, Azasan, Pred., and may other meds and nothing really seemed to work. The Pred. worked a little, but nothing to get rid of the flare. I then just broke down and got insurance and started Remicade. Worked great. Within a few days i was so much better than i had ever been. I was working great until recently - i just started a flare in between infusions, so my doctor is going to let me go more frequently.