What an unpredictable way to live sometimes.....we just take what we can get and live in the moment.
That's the point I think...enjoying the days of feeling well and living in the moment and not ruining those times by fearing tomorrow.
I try to keep things in perspective, but not by saying I could be worse off or that someone else is worse than I am..so buck up. I've had that shoved down my throat for so long by others, that it was just a way for others to say I don't want to hear it..you don't look sick.
Ever notice how guilt seems to get in the way a lot?
I don't know what my "tomorrow" is going to be... and I certainly won't use any one else's suffering for my measuring stick of how I should feel.
I know my emotional state and situation at eny given moment can either have me totally elated or depressed. It's amazing how the mind goes when having a feeling crappy day.
I do have to allow myself the "state" and then kick myself in the butt to move on because it can get rather comfy in the depressed department.
Ever notice how our crappy days don't seem to mesh with every one else's? Which is a good thing..because at least we know there will be someone to have words to keep us going.
I think we will always struggle with something. But...it seems we all have a survivor attitude..from what I see from all the members who have come and gone. Scary, indeed...dealing with something that will be with us for the rest of our lives. But, we do have choices in our care, and taking some of that responsibility and not totally depending on our doctors or families and friends does tend to give us empowerment. Keeping in mind that we can get sicker as we age...it is wiser for us to look after ourselves the best way we can. Improving our ways of functioning and seeking options is at least something we can do for ourselves...regardless of what we have to deal with.
Oh...and life happens anyway with all the "other" stuff such as loved ones getting sick and the horrific loss it can cause.
No guarantees ... so, I agree it's good to live in the moment, learn from the past and prepare for the future. Imagine all the experience we're gaining daily. whew!
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg; Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS" worth it !!!
Post Edited (quincy) : 8/22/2007 2:07:42 PM (GMT-6)