I eat 30-40 grams for bean fiber a day. YES you read that right, gas producing bean fiber. Why?

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Horus
Regular Member


Date Joined Feb 2007
Total Posts : 190
   Posted 8/22/2007 4:24 PM (GMT -7)   
I believe one's goal should be to throw out the SCD diet and do almost the opposite- minus the sucrose(still gives me problems). I can eat a whole can of beans in one sitting and do so daily. Refried beans are my favorite. I chow down nachos like you wouldn't believe. Yes nachos. Can you imagine that during a flare? I still take my asacol, and still have issues with wheat in my diet but I eat so much fiber in one day it would make your head spin. Your goal should not be to avoid fiber or gas producing foods like beans per se. It should be to slowly introduce them and then make them your mainstay of your diet. Why? It produces the most butyrate per buck, is anti-inflammatory to the colon, feeds the colon wall and is anti-carcinogenic to the colon. Plus beans are the highest in antioxidants of any food besides berries you can eat. Beans, NOT casein, should be your mainstay protein and carbohydrate source in your diet. NO, I'm not a vegetarian. Eat your meat in moderation and avoid red meat. I'm even having chicken as I type this. However, the SCD diet puts too much emphasis on casein protein, which has been shown to increase colon cancer. It also assumes that bacteria are to blame when fed resistant starches and sugars. Wrong I say! I eat inulin and beans daily in high amounts, ALL FORIDDEN in the SCD diet. BLAH! Nonsense. Her ideas are outdated and not supported by recent science.

What is still interesting is how well symptoms can be controlled by paying attention to the lipid barrier of the colon wall. No one here has yet been able to squash the theory. No matter how colon inflammation starts, it will always always break down the mucus layer of the colon. Oral Inulin builds up the viscosity of the colon mucus barrier easily and so does phosphatidylcholine enemas and eating bean fiber also supplies the much needed butyrate when broken down by colonic bacteria. Eating corn flakes also breaks down into butyrate and cold rice and potatoes etc...All this talk about foods not causing UC is lacking a discussion about how food CAN HELP UC- with antioxidants, butyrate and mucus sparing properties. Name one drug that does this?

Have we not made progress yet with the idea that it might be beneficial to crowd out the lipid destroying bacteria with a diet of resistant starches? I guess I'm on the leading edge always experimenting on myself. After a couple of weeks I get barely any gas from eating that much fiber. Once you are in remission this should be ideal. Farts have become almost pleasant now. No leakage. I know that's an issue for many while in a flare. Avoiding passing gas because of the leakage factor. However no other food you can consume will do so much good for your colon and chances of avoiding colon cancer.

Post Edited (Horus) : 8/22/2007 5:30:56 PM (GMT-6)


Horus
Regular Member


Date Joined Feb 2007
Total Posts : 190
   Posted 8/22/2007 9:02 PM (GMT -7)   
Seems so counter intuitive from those that have swallowed the flawed logic of the SCD diet doesn't it? However according to those scd bible thumpers I should be in the midst of a full blown flare by now if you believe the hype. But obviously that's not the case when I consume in total about 50+ grams of fiber from various sources per day. 30 -40 grams from beans and 10 from inulin and then all the misc fiber from other foods. I feel no pain, I have some mild mild gas. I have no painful bowel movements. I go once a day. My stools are formed and I have no bleeding. Still only take asacol.

Contemplate this over some boba tea with tapioca.

quincy
Elite Member


Date Joined May 2003
Total Posts : 29843
   Posted 8/23/2007 12:37 AM (GMT -7)   

seems like the same road, different scenery scenario.

 


*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Post Edited (quincy) : 8/23/2007 1:47:31 AM (GMT-6)


Eric704
Regular Member


Date Joined Jan 2006
Total Posts : 261
   Posted 8/23/2007 1:26 AM (GMT -7)   
People who have yeast and are trying to get rid of it shouldn't do anything like that kind of diet. I think the reason why SCD works for alot of people is because they have yeast they don't know about and are starving it.

I don't do the SCD diet, but it's somewhat like it minus more yeast/mold based foods. I do this because I did a lab test and it shows I have dividing yeast.

Things work for some as they do others. You are pretty out of context when you call people SCD bible thumpers because you don't agree it with.

Also, for as long as I've known you, you've always said you've been in remission. That's more than a year I've been seeing you on various forums. So, there it is again. You're telling people what they should try or do with random ideas you have when you yourself aren't going through what they are, but have gone through it before.

People in remission trying something and having fun with it, doesn't mean people in a flare or active disease should try it based off your recommendation.

My 2 cents..

UCinGV
Regular Member


Date Joined Mar 2007
Total Posts : 388
   Posted 8/23/2007 5:22 AM (GMT -7)   
Though I'm glad people are discussing a possible diet for UC, I'm confounded with trying to control every thing I eat, and half the time still flaring, and then eating whatever I want and half the time still flaring.

If diet has anything to do with flaring, it's certainly a loose relationship.
12 Asacol
100 mg Imuran
6 or 9 fish oil pills
4 Acidophilus pills
4 Caprylic Acid pills


Eric704
Regular Member


Date Joined Jan 2006
Total Posts : 261
   Posted 8/23/2007 9:02 AM (GMT -7)   
It's because you really have to a stick to it. You can't try it a week or two and come to a conclusion it isn't working.

quincy
Elite Member


Date Joined May 2003
Total Posts : 29843
   Posted 8/23/2007 11:17 AM (GMT -7)   
My take on some things.....if anyone has symptoms after "straying" from their supposed diet....the inflammation and fragility in the colon isn't being dealt with very well.

quincy
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2198
   Posted 8/23/2007 11:30 AM (GMT -7)   
Horus said...
Seems so counter intuitive from those that have swallowed the flawed logic of the SCD diet doesn't it? However according to those scd bible thumpers I should be in the midst of a full blown flare by now if you believe the hype.
You destroy your credibility when you come on a forum claiming to have the secret that works for everyone. You make it worse when you attack a contradictory viewpoint, calling it "flawed logic" and the people who have benefited from it "bible thumpers." Then you make a statement that is untrue... not all beans are disallowed on the diet.
 
There is no one magic solution that works for everyone. We all have different symptoms and are at different points in our path toward healing. Some of us (myself included) aren't even sure of our diagnosis. Gut problems can stem from a variety of causes... antibiotic use, imbalance of good/bad gut bacteria, overgrowth of candida, food allergies/sensitivities, undiagnosed celiac disease... and the list goes on.
 
If you want to be taken seriously, present your ideas and personal experience in a moderate, respectful way.


Diagnosed with ulcerative colitis spring 1999
Possibly misdiagnosed
 
Maintenance dose sulfasalazine
Probiotics, l-glutamine and fish oil caps
 
 

Post Edited (princesa) : 8/23/2007 12:58:31 PM (GMT-6)


Horus
Regular Member


Date Joined Feb 2007
Total Posts : 190
   Posted 8/23/2007 12:24 PM (GMT -7)   
quincy said...
seems like the same road, different scenery scenario.



If it takes having to look at it from all angles for some to get the idea then so be it. If the cause is genetic, viral, bacterial, or what have you the colon mucus will still be thin, absent and not the right viscosity due to inflammation. You will still need butyrate REGARDLESS of any of the causes of IBD. You still need to concern yourself with major ways of stopping the colon cancer caused by IBD. You can't run away from these things. You either face them now or face the consequences on the operating table.

Food via the SCD diet follows the mentality of old science that is outdated and unproven and has shown so in this forum and others. Everyone here would be on the SCD diet if it worked. In her book she even admits that for UC it's affects may take a LONG time and is more effective for those with
crohns. Anyone that believes that the super tiny amount of small traces of possible sugar contamination in a vitamin pill could effect your remission possibilities like she does is silly science. I see people buy forvia vitamins and shake my head. Sugar may be bad but resistant starches are your friend. She slams undigestible starches and her logic for doing so is flawed and dated and unsupported and wrong. She ignores the benefits of butyrate and alternate protein sources and the higher risk of casein and colon caner. She pins all her hopes on bacteria and ignores current thinking about genetics and lipids and even chances of other unfound pathways of inflammation. Time for her to update her book.

Post Edited (Horus) : 8/23/2007 2:00:53 PM (GMT-6)


Eric704
Regular Member


Date Joined Jan 2006
Total Posts : 261
   Posted 8/23/2007 12:32 PM (GMT -7)   
Horus said...
 Everyone here would be on the SCD diet if it worked.
Not true. Alot of people would like to belive diet doesn't help because they have weak will power to stick to a diet.

I used to be that way and I would feel better when others chimed in "Diet doesn't help we're all different." So I wouldn't even give it a shot because it was too hard to get away from foods that you find everyday so easy to get. You don't want to stop eating breads and snack foods because they're everywhere.

Some people choose that diet isn't the answer after like a week trying it and start having cravings for things they used to eat.

ediekristen
Veteran Member


Date Joined Apr 2007
Total Posts : 1366
   Posted 8/23/2007 12:45 PM (GMT -7)   
Horus said...
Everyone here would be on the SCD diet if it worked.
Nah... I looked into it because everyone was saying it worked for them, but I had no interest whatsoever in trying it. Sugar and pasta and breads are some of my favorite things. Even if you said it could potentially cure me if I ate like that for the rest of my life, I wouldn't do it.

I pretty much just eat what I want, what tastes good. If I know it will hurt my stomach, I don't eat it often but things like ice cream I just can't cut out of my diet completely because I love it so much, even if it gives me burning stomach pain. And nachos... mmm. I'm not the best or most compliant patient, but I'm just not going to let it run my life completely anymore. It ruined enough of my childhood, and if it means I'll die sooner or bleed more often because I have a margarita once in awhile or enjoy a giant plate of spaghetti and meatballs, so be it. We've all gotta go sometime, right?
Female, 22, Ulcerative colitis (pancolitis) since 1999; GERD; gastritis; osteopenia in hip & lumbar region of spine from long term prednisone use

Current Meds:
Primadophilus Reuteri
40 mg Citalopram (for depression/social anxiety)
125mg Imuran
10meq Potassium Cl
 


Horus
Regular Member


Date Joined Feb 2007
Total Posts : 190
   Posted 8/23/2007 1:01 PM (GMT -7)   
Eric704 said...
People who have yeast and are trying to get rid of it shouldn't do anything like that kind of diet. I think the reason why SCD works for alot of people is because they have yeast they don't know about and are starving it.

I don't do the SCD diet, but it's somewhat like it minus more yeast/mold based foods. I do this because I did a lab test and it shows I have dividing yeast.

Things work for some as they do others. You are pretty out of context when you call people SCD bible thumpers because you don't agree it with.

Also, for as long as I've known you, you've always said you've been in remission. That's more than a year I've been seeing you on various forums. So, there it is again. You're telling people what they should try or do with random ideas you have when you yourself aren't going through what they are, but have gone through it before.

People in remission trying something and having fun with it, doesn't mean people in a flare or active disease should try it based off your recommendation.

My 2 cents..



Erik/scooter,

So where's my public apology you owe me? If you want to comment on my postings have the decency to apologize like you said you would. I'm waiting...

I still take my phosphatidylcholine enemas as needed. Nothing has changed at all. My goal is to get my asacol down to 800 mg per day. I'm almost there with all the things I do. Of course I'm in remission. As you clearly missed in my above post I recommend SLOWLY adding beans and resistant starches to the diet. I had a ton of gas when I was in a full blown flare. What is it to add just a tiny amount of inulin and beans and resistant starch to the diet and build slowly, slowly up from that? Name another way to add butyrate to the diet without doing enemas with it? you can't. You MUST use resistant starches period end of story. Butyrate should be your preferred fuel source for the colon, NOT glucose or fructose like the SCD. The colon use and needs butyrate first. It also needs antioxidants in abundance because of all the oxidation going on. It also needs the mucus barrier to be of a specific viscosity to keep the irritants and bacteria from breaching into the colon wall iteself. You also need to learn about how to prevent colon cancer through food. Beans do all of this. Most of the recommended food in the scd diet miss all this. Could you be following a diet that increases your risk of colon cancer? One that ignores butyrate, antioxidants, and lipids could I think. Her diet is incomplete and wrong and needs a revision in my opinion.

You cling onto yeast as the end all be all of causes for IBD symptoms. You will NEVER EVER be able to EVER avoid yeast period. There is no point in trying a diet that is devoid of yeast. Yeast extracts I avoid in my food as they are immune stimulating, yet yeast is all over us and our food and there is no way to clean it off or avoid it. You cannot sterilize your food of yeast. You wouldn't feel the effects of yeast if you had a proper mucus barrier in your colon. Yeast are opportunistic and frequently give aids patients thrush and people with cancer get thrush also. Yet almost none of them spontaneously develop IBD. Do yourself a favor and drop the yeast connection. It's a dead end. It's mainly hyped by people pushing supplements.

People in a flare or active disease should try every so slowly to add resistant starches to their diet. You mistaken the assumption that people should start consuming 50 grams of fiber a day right off the bat. Wrong. Start out with mabye 2-4 grams. Then as pain and symptoms permit slowly increase this over the weeks and months till you can get up to 40 - 50 grams. Butyrate not glucose should be your road to remission. Avoiding resistant starches in the colon sets up a lack of butyrate and that can lead to colon cancer. No one here needs that increased more than they already have. Butyrate producing foods in your diet decreases many inflammatory molecules. No one with mad gas will notice a bit more gas from some tiny amounts of bean fiber.
I was getting my butyrate from psyllium husk and inulin before. Bean fiber is a much better choice.

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 8/23/2007 1:09 PM (GMT -7)   
Foods and special diets never relieved my UC symptoms or induced a flare. I ate a varied diet full of fresh fruits, vegetables and legumes and never suffered because of the food but because of the disease. Everyone is different and what works for one person may not work for the next.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 


tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 8/23/2007 1:17 PM (GMT -7)   
Horus...I have kept my mouth shut w/ some of your posts lastely but feel the need to post now. If you have a problem w/ any of my comments feel free to hit the admin alert and let Peter our founder know.

You post things that will encourage debate. I like debate. Especially intellectual one. But I think you are missing the point of what a true debate is. Just like everyone else you have strong feelings about your beliefs. On the other hand, believe it or not, other members feel adamently about their beliefs. If you don't want to hear other opinions then don't post these types of topics.


If you are going to continue to post debate type topics I encourage you to a. expect others to both agree and disagree. b. don't be petty and put other people down and c. remember we are ALL entitled to our individual opinions and should be allowed to post w/out the fear that you will disparage what we say.
Tabitha

100mg Azathioprine, 2 Fibercon, Colazal-9 a day (attempting to cut this down to 6 by slowly tapering), acidopholis pearls, just added Prilosec OTC

http://www.healingwell.com/donate
Co-Moderator UC Forum


jwogie
Regular Member


Date Joined Aug 2007
Total Posts : 35
   Posted 8/23/2007 1:21 PM (GMT -7)   
I agree with Ediekristen -- I do better when I'm eating things I like and not being super-strict with sugar and bread.  Is it really life if you're not enjoying what you're eating??  I can't stick with a diet of bland food either, Ediekristen, and I just ate some ice cream because it is so darn hot here, and boy did it taste great!!  :-) :-) :-)
- 45 year old; female
- diagnosed with UC in Sept 1991
- appendectomy and 7 years remission
- almost constant flare-ups in past 5 years
- currently on 9 mg Entocort, fish oil--feeling good!
- Lialda started 8/21, 2 pills per day


KJ35
Regular Member


Date Joined Jun 2007
Total Posts : 62
   Posted 8/23/2007 1:53 PM (GMT -7)   
Horus,
I don't care if you're tactful or not. You provide good information, present a well researched perspective and get people thinking. That is more beneficial towards getting to the root causes of this disease than being sweet and nice all the time. I think you may be on to something here with the resistant starch approach.

http://lowcarbdiets.about.com/od/nutrition/a/resistantstarch.htm

http://news.nationalstarch.com/NewsStory.asp?newsItemId=358
Diagnosed UC 1999
Asacol (no effect)
Colazal (no effect)
VSL#3 (not enough difference to justify the cost)
OTC : Probiotics (Primadophillius Reuteri, 1 capsule per day), enteric coated Fish Oil (1.7g 3x per day), Metamucil (one serving 4x per day), Turmeric/Curcumin95% (1g 2x per day), Caltrate 600D (2x per day), L-Glutamine (9g 2x per day), LifeSource Multivitamin
 


Jjc2007
Regular Member


Date Joined Apr 2007
Total Posts : 194
   Posted 8/23/2007 1:56 PM (GMT -7)   
As a person living with UC for 45 years and being diagnosed at a time when the medical community believed UC was caused by stress and bad diet (neither of which fit my 15 year old life....I had normal teen stress but a rather healthy diet as my parents were always into fruits and vegetables and there were not a plethora of fast food things around...and my mother never fried food), I would like to share my view.

So for the first two years my parents were told:
no beef, day old bread, no fried or spicy food; no fresh fruit or vegetables.
Often for lunch I would take baby food to school. Bland and mushy was my life for years. When I got older I was told NO ALCOHOL except for drinks made with heavy cream.

I remained in flares for the better part of 15 years. Finally I moved away from home and had to find new doctors. After my first colonoscopy, my new GI said there was no "special diet" and use the "if it bothers you, don't eat philosophy."
The first thing I wanted was an apple.....a bright read, crunchy apple. It tasted SO GREAT and I kept adding more and more fruits and vegetables to my diet. And while I cannot say flares were getting better immediately they did NOT get worse and so I was happy to have the things I loved (fruits and veggies) back in my life. Plus I felt my overall nutritional health improved.

Maybe it is not related or maybe it is but once I got a lot of fresh fruits and vegetables back in my diet, I seemed to improve slowly. Over the years, whether it is age, or a better diet, or menopause or all three, my digestive system seems to be improved. And in fact, for me, the reality is the WORST THINGS for me are milk and dairy, creamy sauces etc.
I do better with green beans than kidney beans, and find that when I am in a flare my best comfort healing meal is fish (baked), green beans and white rice.
In fact a friend who was diagnosed recently (in his sixties) and is having a miserable time, nothing working (of course he drinks a lot even in bad flares), does not believe I REALLY have UC. According to him, I am not sick enough to really have UC. If I had not ripped up all the years of pics of me as a teen with my moon face, and weighing barely anything, I could prove it. But, you know how we are....I hated those pics so I shredded them all one day when I was in my twenties. I doubt I would have spent a month in a hospital and gotten six blood transfusions for faking it. Oh well.

Anyway, I do believe that even though we all share symptoms, I believe our individual body chemistry, how we digest, how much or little we eat, and probably some genetics over which we have no control, make it impossible to say that just one way works. The things that comfort and soothe are symptoms are as frustrating as the disease because it varies.

Just my opinion after 45 years as a UC person.
diagnosed with UC in 1962
regualr meds:
Asulfadine (500mg tablets, 6 daily)
Folic Acid
Zantac as needed
open heart surgery in 2005 for removal of aortic root aneurysm


Horus
Regular Member


Date Joined Feb 2007
Total Posts : 190
   Posted 8/23/2007 3:10 PM (GMT -7)   
To princesa,

For all your statements I see no evidence to contradict what I've said. You tell me WHY and I'll listen to your points if they have merit. Where is your logic and reason? What points support your thesis? I've been attacked by SCD fanatics before and they certainly do deserve the title of bible thumpers in my opinion. They are rabid in their devotion and strangely so for none of them have ever put up any kind of supporting evidence to back themselves. It's really funny to watch really.

Thinking that there have been no further understanding of IBD since her 1978 degre is laughable. That was so 30 years ago. Would you drive a 30 yr old car that had 30 yr old brakes? I don't trust my life on information about ibd that is 30 yrs old. Look at the progress since then. If anyone should be getting the "everyone is different and everyone reacts differently" it should be Ellaine Gottschall.

For those that have blind faith in the SCD diet your time is up you've had your say and for far too long. It's time to toss aside your stale ideas unfounded in any published science papers and approach this with eyes wide open and with science to back it up. It's time for you to sit down and be quiet and learn. Some of you we will have to drag kicking and screaming into the 21st century.

I have the book right here princesa so any time you want to debate what she says about being fanatical about complex carbs, resistant starches and bacteria/yeast go ahead and post away. Try to use a source OTHER than her book to back up any claims of fact. Her book is theory and should be treated as such. Time for a new theory. She's had 30 years to prove it and failed.

Yes I know all about white beans. That is my point. She is contradictory in her suggestions. Her recommendations make no sense when her goal is to AVOID sugars from getting into the colon where she thinks it will be fermented into volatile fatty acids that aren't good for the colon. WRONG. Someone should have introduced her to the term butyrate and it's importance to the colon wall. Just look at how haphazard she is in recommending this sugar and not that etc...http://www.breakingtheviciouscycle.info/legal/legal_illegal_a-c.htm

I understand what she is going for but see her logic as flawed if she wants to avoid sugars going into the colon. Bean starch will go directly to the colon even if beans are soaked overnight. Beans are her accidental saving grace. It's the butyrate from the lentils and beans that are the magic of her diet more than anything else. For that is a true contradiction when you tell people to avoid complex carbs because they may ferment in the colon and then advocate beans and lentils in the same diet. She can't have it both ways. Here is a quote from her about how she feels about glucose, ATP and the need to keep sugars from going into the colon, "For those of you who have had any biochemistry or cellular nutrition, the molecule of glucose has the potential of allowing each cell to manufacture 38 molecules of cellular energy or ATP (adenosine triphosphate). If we do not absorb the glucose molecules (from starch, disaccharides, or even monosaccharides) from our absorptive small intestine, they go down to the microbial world. There, very INEFFICIENT anerobic bacteria get only 2 molecules of the possible 38 and pass the rest off as volatile fatty acids. What is happening to these volatile fatty acids. Are we passing them out as diarrhea contents? Are some being absorbed through the ileum wall and colonic wall? I do not know. I would doubt it very much if much of them are being absorbed. Once you change the digestive process by starving out the critters and absorbing the legal sugars more efficiently, you will then be getting our HUMAN DIGESTION working correctly and our cells will get 38 molecules of ATP from one molecule of glucose."

Her mistake is that she believes not only that lack of ATP is to blame but also that all resistant sugars get turned into a bad volatile fatty acid.

http://en.wikipedia.org/wiki/Resistant_starch

http://www.ncbi.nlm.nih.gov/sites/entrez?cmd=Link&db=PubMed&dbFrom=PubMed&from_uid=14988436

http://www.ncbi.nlm.nih.gov/sites/entrez?Db=pubmed&Cmd=ShowDetailView&TermToSearch=17044771&ordinalpos=4&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum

http://www.ncbi.nlm.nih.gov/sites/entrez?Db=pubmed&Cmd=ShowDetailView&TermToSearch=12221249&ordinalpos=2&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum

That should give you enough to chew on for awhile.

princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2198
   Posted 8/23/2007 3:16 PM (GMT -7)   
Horus said...

I still take my phosphatidylcholine enemas as needed. Nothing has changed at all. My goal is to get my asacol down to 800 mg per day. I'm almost there with all the things I do. Of course I'm in remission.
Beans, beans, the miracle fruit, huh? Yet you're on a fairly high dose of asacol and are taking enemas? That doesn't sound like remission to me.
 
I never eat beans, yet I've been in remission with only occasional mild symptoms for six years. I'm on a low, maintenance dose of Azulfadine. I haven't had to have an enema in years.
 
There may be some merit to your approach, but it's not the be-all, end-all and the way you express yourself violates forum rules and Internet etiquette.
 
Your post to me appeared after I wrote the above.
 
Dude. I am not an SCD fanatic. People who follow the SCD and claim it's the miracle cure for everyone are just as wrong as you are. I have no desire to argue theories with you. It works for some folks and works very well. For some people, it doesn't. Everyone should educate themselves and be informed patients. If they have a positive experience to share, then by all means, but it's not a black/white deal. It took a combination of things to work for me. I'm happy to tell people about it, but I don't come on here preaching my way as the only way. I know better. And you should, too.


Diagnosed with ulcerative colitis spring 1999
Possibly misdiagnosed
 
Maintenance dose sulfasalazine
Probiotics, l-glutamine and fish oil caps
 
 

Post Edited (princesa) : 8/23/2007 4:17:49 PM (GMT-6)


Horus
Regular Member


Date Joined Feb 2007
Total Posts : 190
   Posted 8/23/2007 4:21 PM (GMT -7)   
KJ35 said...
Horus,
I don't care if you're tactful or not. You provide good information, present a well researched perspective and get people thinking. That is more beneficial towards getting to the root causes of this disease than being sweet and nice all the time. I think you may be on to something here with the resistant starch approach.

http://lowcarbdiets.about.com/od/nutrition/a/resistantstarch.htm

http://news.nationalstarch.com/NewsStory.asp?newsItemId=358




Why thank you. You see sanity does exist on this board. LOL Good links. I couldn't have said it better myself. Makes alot of sense when you read it. Then when you realize you don't need
an ambulance after you've eaten 40 grams of it is exciting. So many health benefits to bean fiber it's hard to imagine life without them. I posted about resistant starches (inulin) before for those that don't want
to try the phosphatidylcholine enemas since it does somewhat thicken the colon mucus. You can't ignore your colon mucus viscosity and butyrate. You will always feel symptoms if you ignore these two things.

Let's not forget about the antioxidants in beans also. 1/2 cup of red beans has more antioxidants per serviing than 1 whole cup of blueberries.

http://en.wikipedia.org/wiki/Oxygen_radical_absorbance_capacity

Horus
Regular Member


Date Joined Feb 2007
Total Posts : 190
   Posted 8/23/2007 4:39 PM (GMT -7)   
Eric704 said...
It's because you really have to a stick to it. You can't try it a week or two and come to a conclusion it isn't working.



Kindof like how someone only tried the phosphatidylcholine enemas for a week or two then gave up.

Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4034
   Posted 8/23/2007 5:01 PM (GMT -7)   
Thanks for the info. Horus. I love beans and used to eat a lot of them before getting UC so I'm glad to hear they may help with my symptoms. Are there certain kinds that are better than others? I mostly eat garbanzo (chickpeas) and black beans...sometimes kidney beans as well. And where do you get inulin? I know it's in Stoneyfield Farms yogurt, but where else can you get it? Do you have any links where I can read more about the benefits of butyrate and inulin? I had never heard of this before your post and would like to learn more.

I appreciate your posts. Thank you.
23 years old
Diagnosed with UC March 2007

Asacol 4 tablets 3x/day
Rowasa (generic) - 1 every few nights
Ultimate Flora probiotic (50 bil. cultures) 1/day; Chewable multivitamin; Stonyfield Farms yogurt


Horus
Regular Member


Date Joined Feb 2007
Total Posts : 190
   Posted 8/23/2007 6:38 PM (GMT -7)   
Hello Sara,



First off I think you should understand what "resistant starch" is. http://en.wikipedia.org/wiki/Resistant_starch

Cut and paste that into your browser and read up.

You can buy fiberchoice sugar free with vitamins and minerals.

The choice of beans is up to you. You can find on the internet various places that show resistant starch levels of various beans. I'd concentrate on ones that have high resistant starch AND
high in antioxidants.


http://members.shaw.ca/duncancrow/inulin_prebiotic_probiotic.html

AKB
Veteran Member


Date Joined Mar 2006
Total Posts : 992
   Posted 8/23/2007 6:57 PM (GMT -7)   
Horus is speaking truth-- there are tons of studies on the positive effects of butyrate (and other short chain fatty acids) on colitis. It's a darn shame most of our doctors don't prescribe butyrate enemas instead of resorting to steroids. They work especially well in combination with 5-ASA enemas, according to studies.

As for how to get resistant starch-- bananas provide half as much resistant starch as a 1/2 cup of beans (e.g., navy) and double that of 1/2 cup of lentils... so if you don't want to deal with beans, eat bananas-- the greener, the better (for this purpose).
Dx:

Left-sided UC, Jun 2005. Flex-sig only... clear for first 20cms, then inflamed through next 30cms.

Therapies:

Pharmaceutical: Pentasa 3G/day, hydrocort 1x every 7 days
Probiotics: Acidophilus Pearls, Primadophilus Bifidus
Naturals: Caprylic Acid, Methylated B-12, Vit ACDE, Zinc (w/copper), Selenium, Turmeric, Bromelain, Luteolin
Killer Foods: Soda, Fried Food (especially french fries!), Beer, Red Wine, Pepperoncinis


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4034
   Posted 8/23/2007 8:05 PM (GMT -7)   
Thanks for the links.

Why do certain foods (i.e. potatoes and pasta) need to be cold to include the resistant starch?
23 years old
Diagnosed with UC March 2007

Asacol 4 tablets 3x/day
Rowasa (generic) - 1 every few nights
Ultimate Flora probiotic (50 bil. cultures) 1/day; Chewable multivitamin; Stonyfield Farms yogurt

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