Asacol newbie

Hi, I am new to this forum.  I have been reading through many of the topics and have found some valuable information in dealing with UC.  I was diagnosed in December 2006 with proctitis (got that flare into remission using Salofalk suppositories) and have been relatively symptom free since until about 2 weeks ago when I started what has turned into a fairly bad flare.  I did not start Asacol as prescribed by my doc after I went into remission in January and I quit using the rectal meds also. 

Well...I decided I needed to try the Asacol yesterday (along with the rectal meds I have been using again for about 5 days) since this flare is getting worse instead of better.  I took one 800mg around 3pm yesterday and by 8pm I felt completely stoned off the stuff.  Glazed eyes, giggles, the works.  Is this a normal reaction??  I was in the grocery store and could barely manage to keep my wits about me to get what I needed and get home.  It seemed to wear off by bedtime so I took another one before bed.  My dogs woke me up in the middle of the night and I was completely drugged and then by this morning I felt a bit dizzy and had a slight headache.  I definitely can't take this stuff and function at work.  Anyone else have a similar reaction to Asacol?   

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Sandra, age 34

Diagnosed December 2006 with UC (proctitis)

Asacol (800mg x 2), Salofalk suppositories

Multivitamin

Vitamins E, B complex, magnesium

Omega 3/6 supplements (500mg x 2)

Probiotic x 2

I agree. I have been on asacol for years (on a much higher dose than you) and have never had a problem. I would contact your Gi and let them know.

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Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, Rowasa every other night, down to 20 mg pred.
75mg Imuran starting 8/23/07---fingers crossed!
Prontonix once daily for acid reflux, zofran twice daily for nausea

never happened to me and I take it on an empty stomach in the morning.
I take 2400mg twice a day (maximum dosage).

I felt fine, did not take my meds like I was supposed to and got a great big flare because of that.

I am now on week 8 of taking my Asacol as prescribed and I am slowly getting there, I am much better now though still have some bleeding for some bm's. but not like before.

Maybe your body is feeling it and you being sensitive to your body are maybe reacting and not understanding how you are feeling.......not a doc, just my 2 cent opinion. My advice try not to think about it and just take it.

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Beth, 31

UC Diagnosed March 2000

Asacol 400 mg 6 pills 2xday

Calcium and Vitamin D 600 mg 2xday

Simastavin 20 mg 1xday

Diovan 80mg 1xday (dx: hematuria w/proteinuria): I have normal blood pressure, this is for my kidney - waiting for a dx.

Beth: You are right, I am very aware of my body and what it is telling me. I very rarely take meds of any kind (including OTC), so my body is definitely not used to being medicated. You make a really good point about my mental reaction to my body's response to it. I will see how it goes over the weekend taking my meds 2x per day as I'm supposed to and decide on Monday if I can handle it or not. In the meantime, I guess I'll just enjoy the buzz! :P

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Sandra, age 34

Diagnosed December 2006 with UC (proctitis)

Asacol (800mg x 2), Salofalk suppositories

Multivitamin

Vitamins E, B complex, magnesium

Omega 3/6 supplements (500mg x 2)

Probiotic x 2

I never knew that Asacol came in a suppository form! I take it orally and have never had any side effects.

SCM...no, never had that reaction.but I'm OK with salicylates.

Are you eating enough food and especially protein?

How much vitamin B are you taking...and are you taking it in the morning?

q

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*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)

~diagnosed January 1989 UC (proctosigmoiditis)

~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)

~Bentylol (dicyclomine) 20mg as needed

~vitamins/minerals 

~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime

~Natural Factors Multi Digestive Enzymes with supper

~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)

~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)

My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

SDM and TracyZ - When I first started Asacol I was in a really bad flare. My doc also put me on Flagyl at the same time so I'm not sure if these symptoms were from Asacol or Flagyl, but I was extremely dizzy, nauseous, had mild annoying headaches straight for about a week and a half (I've never had any of these things before). After a week and a half my body started getting used to the meds. I also got bad, sharp chest pains off and on for about 3 months...my docs said they didn't know why, but I'm pretty sure it was from the meds. Sometimes I still get dizzy and sort of nauseous, but it usually passes after a little while. I've never felt stoned though...lol.

I would talk to your doctor about your symptoms and see what he/she thinks. Maybe your body just needs to get used to it.

TracyZ - My first GI always told me my above posted symptoms weren't med side effects, too, but they never happened to me before.

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23 years old
Diagnosed with UC March 2007

Asacol 4 tablets 3x/day

Rowasa (generic) - 1 every few nights

Ultimate Flora probiotic (50 bil. cultures) 1/day; Chewable multivitamin; Stonyfield Farms yogurt

Hi...SDM...start eating protein!!

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*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)

~diagnosed January 1989 UC (proctosigmoiditis)

~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)

~Bentylol (dicyclomine) 20mg as needed

~vitamins/minerals 

~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime

~Natural Factors Multi Digestive Enzymes with supper

~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)

~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)

My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!