Feeling depressed after my Gi appointment today

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dee007
Regular Member


Date Joined Nov 2006
Total Posts : 108
   Posted 8/23/2007 8:09 PM (GMT -7)   

Well guys I had another depressing GI visit. I dont know what to do anymore in all honesty. I asked my GI today
how much of my colon was infected. He said the whole entire thing. I said ok isnt that dangerous. He said no not
in your case because you dont have Crohns or Ulcerative colitis. I asked him what do I have ? He said its just
colitis now but it will branch into Crohns or UC with time.  We just have to give it time. He said there are a lot
of bacteria in our colon. But I have a genetic defect which is not fixable. The only way I can manage this is by
taking my medication and controling it. I asked him if there has been any medical advancements. He said no and he
said he thinks there wont be any for the time being. He said there is something in my body that is attacking me
to be ill like this. I said then why has all the tests i have done so far come back negative. He said your biopsies
came back saying chronic colitis all over the entire colon.
 
I asked him could it be parasites or an infection. He said no it cant be parasites because the biopsies came back
saying its chronic colitis. If it was a parasite the Flagyl wouldve killed it and when we did the colonoscopy the
biopsies would come back saying acute colitis. Because before anything i was given Flagyl which he gave me by
accident and it ended up working. I also told him all of this happened after I threw up 10 times after eating
shrimp and i went to the ER and they gave me Fleet to drink for i dont know what reason and i threw up even more.
He said at times gastro can cause the disease to activate.
 
I told him that when I was on Flagyl it helped and I gained a couple of pounds and he noticed it as well
since he takes my weight at every visit. Right now im at 45 kilo. He said im not suppose to loose any weight. He
told me its either because im not eating properly or I have something else. I told him well i dont eat properly
becaue i go to the bathroom and also that I cant stop urinating. I eat a piece of toast and i urinate right after.
He said that isnt normal and that cant be and he said its wierd. I showed him the place around my stomach where
my skin color has changed and he said well did you get less sun this year? I was like look its a patch its lighter.
He said its wierd. Then he said to take 5 Asacols a day instead of 4. He wrote me another prescription of Flagyl
since it worked the first time. But will it work again ?? I hope so. Then he gave me Pantaloc for I dont know
what reason. I told him that when i take Flagyl last time i was knocked out. Its really strong. He said its not
that strong and that it shouldnt have that effect. Then he couldnt remember if the dosage was 2 or 3 times a day.
So he said take this maximum dosage of 3 a day and then if you feel sick take 2.
 
He also said that when I gave in my fecal fat test there wasnt much stool in it. I told him yes thats because
I had just finished my dose of Flagyl and like i told you before it helped me and i was eating mcdonalds,
drinking milk, eating chocolate and wasnt going to the bathroom a lot. He looked at me as if i was either making
it up or there was something wrong with me.
 
Whats wierd i found about today is that he says chrons disease and UC and colitis is all auto-immune. He has not
ordered a stool culture at all for me nor do i care because i will send it to a parasite lab in the coming future
after my Flagyl. I have been doing a lot of research and it seems that crohns might be an infection and im really
hoping it is. And it seems that UC or colitis they think is an infection as well but havnt pinpointed it or it
might indeed be genetics. But i got depressed after i saw him.
 
Well let me know what you guys think. I can really use your suppose and feedback right now. He is a young intern who after every
appointment goes and asks his attending questions. and today he came back after 10 minutes.
 
Take care guys. Oh and how are all of you feeling. Anything new? Im gonna start researching again ill let you know of any new sites I come across
Tests done so far:  Parasites and occult blood - negative; Barium liquid swallow - normal; CT scan - normal; Fecal fat test 72 hours - normal: Colonoscopy with biopsy - chronic colitis; Got blood test to test if I have Crohns or UC and both came back negative.
 
Gvien Flagyl for 10 days before any test and worked then every came.
Currently not on any medication - trying chinese herbs for 3 months now 
Currently 95 pounds. I was 120 pounds a year and a half ago.
Diagnosed with Chronic Colitis in March 2007 Gi says might branch out to crohns or uc


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4034
   Posted 8/23/2007 8:27 PM (GMT -7)   
Where do you live?

I think you definitely need to find a new GI if you can. Your doctor doesn't seem to know what he's doing and if he's making you feel like you don't know what you're talking about, he is not a good doctor. And he accidently gave you Flagyl? Um, that is not something that should accidently be given out! He told you your biopsies came back chronic colitis? Then that means you have UC or Crohns as far as I've been told. Why is he telling you that you don't have UC or Crohns yet? That makes completely NO sense. I don't think colitis would "branch out" into UC or crohns if it was treated properly. I'm so sorry you're dealing with this GI. This must be so frustrating for you!

Did he ever take a stool sample from you to rule out infections/parasites?

A lot of people lose weight with this disease, so I'm not quite sure why your GI told you that's not normal...

You should try to go to a different doctor...one that will listen to you and help you. I would request a urine test to see if something else is going on to cause you frequent urination. I felt like I urinated frequently when I was flaring, too, but maybe not as much as you are.

What is your Asacol dose? I take 12 pills a day (400 mg each). 5 pills seems very low.

Hope things start getting better soon.
23 years old
Diagnosed with UC March 2007

Asacol 4 tablets 3x/day
Rowasa (generic) - 1 every few nights
Ultimate Flora probiotic (50 bil. cultures) 1/day; Chewable multivitamin; Stonyfield Farms yogurt


monidad
Regular Member


Date Joined Jun 2007
Total Posts : 54
   Posted 8/24/2007 5:34 AM (GMT -7)   
I am not a physician, and do not routinely second guess the medical opinions, but we do have a right to wonder when things just do not seem right. There are many things about what your MD said that seem strange. The first thing I thought was that the whole colon was affected, you are symptomatic, but you have colitis not UC? The branching out part is weird as well. All antibiotics do not kill all bacteria. I can go on and on. There is so much in what you say that your MD said to you that does not make sense, espcecially to people who have the disease and have done a lot of research. I agree witht he first posting. I think it is a good idea to look for a different GI to get second opinions, even if it means repeating some tests. Ask around to find one who has a special interest in Crohn's and Colitis. Too much of what was said does notmake sense. Glood Luck!

Glenn
UC diagnosed 2003
Asacol 9 tablets daily
Canasa PRN
Prednisone- 30 mg as of 6/8/07, Increased to 50mg 6/18/07, 40mg and holding!
Lialda 4 tablets daily
Multi vitamins
As of 8/3/07-  Azathioprine 50mg
1st Remicade Infusion, 8/17/07. #2 scheduled 8/31/07


expecting226
Regular Member


Date Joined Jul 2007
Total Posts : 402
   Posted 8/24/2007 9:40 AM (GMT -7)   
I agree - please get yourself a new doctor. I wasted two years of being sick on a doctor who kept telling me my problem was "stress." I finally went to a new GI and two weeks and one colonoscopy later, I had the UC diagnosis. It sounds like you need some answers.

Crohn's and Ulcerative Colitis are not infections. They are auto-immune diseases. This website might be helpful for you. www.ccfa.org. It was very helpful to me in the beginning. Good luck!

tjf
Veteran Member


Date Joined Dec 2005
Total Posts : 3238
   Posted 8/24/2007 10:48 AM (GMT -7)   
I concur on the new doc. I had a really bad first GI. I mean drove home crying after every visit. You hang in there!
Tabitha

100mg Azathioprine, 2 Fibercon, Colazal-9 a day (attempting to cut this down to 6 by slowly tapering), acidopholis pearls, just added Prilosec OTC

http://www.healingwell.com/donate
Co-Moderator UC Forum

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