Remicade..When Did it stop working for you?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

SGRUBB
Regular Member


Date Joined Jun 2007
Total Posts : 67
   Posted 8/25/2007 5:59 AM (GMT -7)   
Hi everyone! I have not posted on here in a while. Been on vacation here and there...anyway. I am on Remicade as one of my drugs for treatment and I get my next dose at the end of September. I now get my doses every 8 weeks. I believe I am starting to have a flare again.....just got off the prednisone about 2 weeks ago and well, I just feel the changes. I'm seeing the usual mucus, etc. I guess what I wonder is how many have had experience where the Remicade doesn't work for you and how long was it before you knew that it didn't work? I am just thinking what is the point of going in to have the infusion at the end of September when it may not be working for me?
 
Any information would be a great help.
Thanks so much!
 
UC diagnosed in 1985...22 years.
 
Had second Remicade infusion July 3rd
 
Asacol
6mp
Rowasa
Cortenemas


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3437
   Posted 8/25/2007 6:24 AM (GMT -7)   

hi there- while Remicade hasn't "stopped" working for me, per se, it's lost a LOT of it's effectiveness. I've had 4 infusions, & after the 3rd one I started to flare 3 weeks after I got the drug. So I went on cipro, & upped my Imuran dose. I held out 'til my 4th infusion, which was last week. And I wouldn't say I'm in remission now at all, I still have bad urgencies & anywhere from 6-10 bm's a day. I dunno.... Right now I'm at the "contemplating surgery" step... my GI doc recommended I go for this most recent dose of Remicade, & see how I responded to it. We both felt that my reaction would sort of indicate which direction I was going in, if the Remicade would work or not. But he also suggested I go for a surgery consult, so... He did mention Humira, we may try that. Although at this point it seems like I'm delaying the inevitable. I keep thinking though of how awesome those first infusions were! I felt great! I get infusions every 8 weeks, & have not yet scheduled another one. I don't know if I will- I'm going to see how long I get relief from the most recent dose, then go from there. If I start to flare again in like a week, I'll probably go back on steroids & call the surgeon. Sucks.


diagnosed '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
 


SGRUBB
Regular Member


Date Joined Jun 2007
Total Posts : 67
   Posted 8/25/2007 11:56 AM (GMT -7)   
Thanks for your reply. I have had UC for well, over 20 years. I would say that I am doing 4 bm's per day is ok but I still have that urgency as well. I'm scared to death to even go to far in the car. You know the drill.
Lately I have such anxiety about going anywhere without knowing there is a restroom nearby. I also have two small children....trying to get a 4 year old and a 2 year old to HURRY UP to the bathroom is sometimes impossible! LOL! It's not funny but you know, they just don't understand at this point.
I am ready to go the route to surgery as well because I'm just tired of living my life like this. I felt great when I first started remicade too...now who knows what will happen.
 
UC diagnosed in 1985...22 years.
 
Had second Remicade infusion July 3rd
 
Asacol
6mp
Rowasa
Cortenemas

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, December 11, 2017 7:51 PM (GMT -7)
There are a total of 2,904,219 posts in 318,733 threads.
View Active Threads


Who's Online
This forum has 158126 registered members. Please welcome our newest member, nicolerose14.
384 Guest(s), 10 Registered Member(s) are currently online.  Details
Erichardson234, Froggy88, Lapis_29, Rikky1, astroman, Jaybee&GG, Adagio, AZ Guy, FLBeachgal, Blu's Mama