tired tired and more tired why?

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JOVIGIRL71
Veteran Member


Date Joined Sep 2003
Total Posts : 660
 		   Posted 8/25/2007 5:09 PM (GMT -6)   
Hello,
Well I have been in this flare up for months now. Imuran seems to have stopped working Remicade is the next step.
I have thalsema (Not sure how its spelt it) so I can't take iron pills to help
with the tiredness.
Anyone else going through this?
I don't work because of my colitis so I don't set my alarm to get up each morning, maybe i should though.
Any surgestions on how to up my immune system? I am sick of being
so darn tired. I could sleep for days. I force myself to get up each
day. I don't want to sleep my life away.
Its depressing me badly.
 
Any help would be wonderful.
Thanks for listening :-)
 
~~ Donna ~~
 
Diagnosed with UC in 1987 at age 16
Imuran ~ 2 1/2 pills a day,Colazal  3~3x a day
Lexapro ~ 20 mgs daily for sanity  :-)
 

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UCinNC
Veteran Member


Date Joined May 2007
Total Posts : 528
 		   Posted 8/25/2007 6:02 PM (GMT -6)   
have you tried B12 shots? I know some people get those monthly and it seems to really help w/ energy.
29/Female/NC
Pancolitis dx 3/07.
Currently on 12 Asacol a day.
*100mg Imuran b/c steroid dependent.
*back on prednisone while Imuran kicks in. Down to 5 mg on 8/13.
Various vitamins, probiotics, fish oil.
Engaged: June 1, 2007

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JOVIGIRL71
Veteran Member


Date Joined Sep 2003
Total Posts : 660
 		   Posted 8/25/2007 6:39 PM (GMT -6)   
I haven't , I think at my next appointment I will meantion those.
~~ Donna ~~
 
Diagnosed with UC in 1987 at age 16
Imuran ~ 2 1/2 pills a day,Colazal  3~3x a day
Lexapro ~ 20 mgs daily for sanity  :-)
 

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ccpooper
New Member


Date Joined Dec 2006
Total Posts : 2
 		   Posted 8/30/2007 12:07 PM (GMT -6)   
I started on Remicade in January and finally I'm not as burnt out anymore. I no longer get up 10 times a night. I'm still tired but nothing like before. Just remember that Remicade lowers your imune system. Its working for me and I have my life back again which is really nice.

Chantal
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ledaebel
Regular Member


Date Joined Jul 2006
Total Posts : 339
 		   Posted 8/30/2007 1:33 PM (GMT -6)   
I had sever fatigue for 18monts in and out of remission. I started on Lialda July 5, and by July 15 the fatigue lifted like a heavy blaket around me. I get tired but not to the extnet that I looked forward to passing my bed to just lay down for awhile.

My GI says fatigue is part of the disease process when flairing. It just robs you of energy.
  • LINDA
         
Prescriptions: Lialda (on a study) asacol, hycosamine, protonix, synthroid, zyrtec, avalide, nasocort, Miacalcin spray and Trazadone for sleep.
OTCs:  Usana multivitamins and multiminerals, Usana Procosa, Usana Mega Antioxidants, Omega 3, Vit. E,  Healthy trinity probiotics, Calcium Citrate

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flash123
Regular Member


Date Joined May 2007
Total Posts : 34
 		   Posted 8/30/2007 2:05 PM (GMT -6)   
I was diagnosed with UC earlier this year.  I am now back at work full time and it was fine for a few weeks.
 
Last week i noticed i was virtually unable to keep my eyes open and it lasted for about 4 days.  I noticed my joints were more achy than usual and i was getting restless legs when i went to bed.  The tiredness is the hardest to take because i never nap during the day, but it was all i seemed to do.  I have episodes of feeling fine, then out of the blue i get so tired, just the thought of washing a single dish is out of the question. 
 
The doctor said it is part and parcel of UC and said i was having a flare.  Sometimes i do feel a little nauseous with it too and i know when i am having a flare because my stomach and my mouth feel different. 
 
I hope you feel better real soon.  I have started taking Omega 3 fish oil capsules and they are helping with the joints and the tiredness.
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tats
Regular Member


Date Joined Aug 2007
Total Posts : 54
 		   Posted 8/31/2007 9:58 AM (GMT -6)   
Oh man,,i'm always tired. But when i go to my doc for remicade infusions,,he usually does vitamins thru an iv rite after,,like 2 packs..So yea ask ur doc about vitamin shots/iv,,or any type of vitamins that u can take over the counter. I know how u feel. Tiredness and the bathroom thing really makes me feel like i have no life..i hardly ever wanna go outside..good luck.
diagnosed with ulcerative colitis 6/05
 
currently on remicade-every 6weeks
asacol 6pills a day

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JOVIGIRL71
Veteran Member


Date Joined Sep 2003
Total Posts : 660
 		   Posted 8/31/2007 9:26 PM (GMT -6)   
Thanks so much everyone for your responses. Its so great to have
everyone on here to talk too. Its been hard for me this past months again. To know I can come here and we all talk about it. Makes me
feel better.
I will ask my doctor about vitiams also when I see him on Sept 11th.
Its like you are so burnt out you want to crawl in a ball all day. Then
you want to attempt to go out and do something then you have
an accident. Its just horrible. I get so sick of being sick.
Thanks again everyone :-)
~~ Donna ~~
 
Diagnosed with UC in 1987 at age 16
Imuran ~ 2 1/2 pills a day,Colazal  3~3x a day
Lexapro ~ 20 mgs daily for sanity  :-)
 

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