tired tired and more tired why?

JOVIGIRL71

Veteran Member

Joined : Sep 2003

Posts : 662

Posted 8/25/2007 3:09 PM (GMT -7)

Hello,

Well I have been in this flare up for months now. Imuran seems to have stopped working Remicade is the next step.

I have thalsema (Not sure how its spelt it) so I can't take iron pills to help

with the tiredness.

Anyone else going through this?

I don't work because of my colitis so I don't set my alarm to get up each morning, maybe i should though.

Any surgestions on how to up my immune system? I am sick of being

so darn tired. I could sleep for days. I force myself to get up each

day. I don't want to sleep my life away.

Its depressing me badly.

Any help would be wonderful.

Thanks for listening

~~ Donna ~~

Diagnosed with UC in 1987 at age 16

Imuran ~ 2 1/2 pills a day,Colazal 3~3x a day

Lexapro ~ 20 mgs daily for sanity

UCinNC

Veteran Member

Joined : May 2007

Posts : 528

Posted 8/25/2007 4:02 PM (GMT -7)

have you tried B12 shots? I know some people get those monthly and it seems to really help w/ energy.

29/Female/NC
Pancolitis dx 3/07.
Currently on 12 Asacol a day.
*100mg Imuran b/c steroid dependent.
*back on prednisone while Imuran kicks in. Down to 5 mg on 8/13.
Various vitamins, probiotics, fish oil.
Engaged: June 1, 2007

JOVIGIRL71

Veteran Member

Joined : Sep 2003

Posts : 662

Posted 8/25/2007 4:39 PM (GMT -7)

I haven't , I think at my next appointment I will meantion those.

~~ Donna ~~

Diagnosed with UC in 1987 at age 16

Imuran ~ 2 1/2 pills a day,Colazal 3~3x a day

Lexapro ~ 20 mgs daily for sanity

ccpooper

New Member

Joined : Dec 2006

Posts : 2

Posted 8/30/2007 10:07 AM (GMT -7)

I started on Remicade in January and finally I'm not as burnt out anymore. I no longer get up 10 times a night. I'm still tired but nothing like before. Just remember that Remicade lowers your imune system. Its working for me and I have my life back again which is really nice.

Chantal

ledaebel

Regular Member

Joined : Jul 2006

Posts : 339

Posted 8/30/2007 11:33 AM (GMT -7)

I had sever fatigue for 18monts in and out of remission. I started on Lialda July 5, and by July 15 the fatigue lifted like a heavy blaket around me. I get tired but not to the extnet that I looked forward to passing my bed to just lay down for awhile.

My GI says fatigue is part of the disease process when flairing. It just robs you of energy.

^LINDA

Prescriptions: Lialda (on a study) ~~asacol~~, hycosamine, protonix, synthroid, zyrtec, avalide, nasocort, Miacalcin spray and Trazadone for sleep.

OTCs: Usana multivitamins and multiminerals, Usana Procosa, Usana Mega Antioxidants, Omega 3, Vit. E, Healthy trinity probiotics, Calcium Citrate

flash123

Regular Member

Joined : May 2007

Posts : 34

Posted 8/30/2007 12:05 PM (GMT -7)

I was diagnosed with UC earlier this year. I am now back at work full time and it was fine for a few weeks.

Last week i noticed i was virtually unable to keep my eyes open and it lasted for about 4 days. I noticed my joints were more achy than usual and i was getting restless legs when i went to bed. The tiredness is the hardest to take because i never nap during the day, but it was all i seemed to do. I have episodes of feeling fine, then out of the blue i get so tired, just the thought of washing a single dish is out of the question.

The doctor said it is part and parcel of UC and said i was having a flare. Sometimes i do feel a little nauseous with it too and i know when i am having a flare because my stomach and my mouth feel different.

I hope you feel better real soon. I have started taking Omega 3 fish oil capsules and they are helping with the joints and the tiredness.

tats

Regular Member

Joined : Aug 2007

Posts : 54

Posted 8/31/2007 7:58 AM (GMT -7)

Oh man,,i'm always tired. But when i go to my doc for remicade infusions,,he usually does vitamins thru an iv rite after,,like 2 packs..So yea ask ur doc about vitamin shots/iv,,or any type of vitamins that u can take over the counter. I know how u feel. Tiredness and the bathroom thing really makes me feel like i have no life..i hardly ever wanna go outside..good luck.

diagnosed with ulcerative colitis 6/05

currently on remicade-every 6weeks

asacol 6pills a day

JOVIGIRL71

Veteran Member

Joined : Sep 2003

Posts : 662

Posted 8/31/2007 7:26 PM (GMT -7)

Thanks so much everyone for your responses. Its so great to have

everyone on here to talk too. Its been hard for me this past months again. To know I can come here and we all talk about it. Makes me

feel better.

I will ask my doctor about vitiams also when I see him on Sept 11th.

Its like you are so burnt out you want to crawl in a ball all day. Then

you want to attempt to go out and do something then you have

an accident. Its just horrible. I get so sick of being sick.

Thanks again everyone

~~ Donna ~~

Diagnosed with UC in 1987 at age 16

Imuran ~ 2 1/2 pills a day,Colazal 3~3x a day

Lexapro ~ 20 mgs daily for sanity

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