Will bleeding stop?

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Veteran Member

Date Joined May 2005
Total Posts : 1362
   Posted 8/28/2007 8:36 AM (GMT -6)   
Hi! I usually post on the Crohn's forum, but lately my doctors have been going back and forth again as to whether I have CD or UC. Anyway, I have been bleeding for over a month, and have to go to the bathroom about ten times a day. I am tapering prednisone, but am still bleeding. I was doing Rowasa enemas, but my doctor switched me to cortifoam enemas. I haven't noticed any improvement after doing the enemas for four days. I don't see my GI again until the middle of September, and am at a loss as to what to do. Does anyone else experience continual bleeding? Thanks.
"Of one thing I am certain, the body is not the measure of healing - peace is the measure. ~George Melton~"

Veteran Member

Date Joined Feb 2006
Total Posts : 5698
   Posted 8/28/2007 9:30 AM (GMT -6)   
I bled daily for over 2 years. It was frightening at first but I adjusted to it. At about the 1.5 year mark I lost all my B-12 stores and had to get monthly injections. Shortly thereafter I was diagnosed with chronic illness anemia. Just make sure you and your doctor stay on top of the effects of blood loss. Try not to stress about it but be diligent in your treatment of UC.

dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free

Regular Member

Date Joined May 2005
Total Posts : 103
   Posted 8/28/2007 9:50 AM (GMT -6)   
Sounds like you may have to go to something stronger. When my bleeding wouldn't stop they tried me on 6mp, but I was allergic. Finally I had to do remicade. And that is the only thing that stopped the bleeding. Be careful of losing too much blood. I had to do several transfusions. And that is no fun. As long as your dr. is aware, you should be okay. I would stay on him though, I had stay on my dr. for over a year before he finally got serious with my UC. Good luck. 

9 colazal's a day
Remicade treatments every 8 weeks
B-12 shots once a month
Iron infusions once a year
Got off Prednisone in March '07, was on it for 6 months

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