Hey Ya'll!!!! [update and questions]

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justcallm3jack
Regular Member


Date Joined Jan 2007
Total Posts : 149
   Posted 8/28/2007 12:16 PM (GMT -7)   
It's me, Jackie, and I am finally able to give ya'll some sort of update-ish type deal.

As most of you may or may not already know, I have not been doing so well with the whole ulcerative colitis deal.

On July 25th at about 8:00 p.m., my grandmother forced me to go to the ER because I had a temperature of about 104.2 and she began to like wigg out and stuff. [totally understandable since I am her favorite and all that jazz]

I was admitted at like 4:30 a.m., on July 26th. I was at the hospital from the 26th to about the 31st. I had to get one unit of , my pressure dropped due to a pain medication they were giving me, they gave me (I think thats right) for pain instead, it was all pretty weird. I had to get a CAT scan or something of my abdomen. My intestines are inflamed.

I was put back on prednisone and I began mesalmine enemas. I seem to be doing better, but eh theres good days and bad days.

Urggg, I have a colonscopy scheduled for October 2nd, just so the doctor up here(New York) can see my insides for himself.

I have also began seeing a doctor that deals with Natural Health and Wellness and he has put me on some probotics.

I am taking LactoFlamX, EPA-DHA 6:1™ Enteric-Coated, and Ultrainflamx 360, (which is a medical food type thing).

I have only been doing the probotics for a couple of days but I really hope and believe that I will get my butt into remission!!!!

Oh, and I have been diagnosed with some food allergies as well.
-Whey
-Milk
-Yogurt
-Almond
-Gluten
-Wheat
-Spelt
-Egg White
-Egg Yolk

and get this ya'll, I am allergic to SUGAR CANE. (ahhhhhhh!)

I have decided that it is time to grow up and start taking control of my disease and not let it rule my life anymore. I am eighteen, legally an , I need to act responsible and 'be an for once.'

I do not get on the computer as much as I use to, so forgive me for not getting back to posts and things like that.

Peace and Love.

Jackkko
The name is Jacquelyn, but you can just call me Jack.
 
I am an eighteen year old female who has been diagnosed with ulcerative colitis since Tuesday after Easter Sunday of my freshman year, I believe that was 2004.
 
I am moving to Olean, NY to see some really good homeopathic doctor and get a new GI. I hope that this time, it will work out for good.
 
=] time to get bussssssy
 


quincy
Elite Member


Date Joined May 2003
Total Posts : 29972
   Posted 8/28/2007 1:37 PM (GMT -7)   
Hi Jackie.it's good you had testing done and are meds to help get the inflammation down.

I hope you continue to feel better each day now that you're taking supplements as well.

quincy
*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 3rd night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


lil slowpoke
Regular Member


Date Joined Sep 2006
Total Posts : 290
   Posted 8/28/2007 4:03 PM (GMT -7)   

Hi, Jaque! 

Glad you checked in. It sounds like our ' little girl ' Is growing up.

  To be allergic to sugar! uggh!

I'm sure you will feel better when you can avoid the foods you are allergic to, but it sounds like it will be hard to learn.

 I am lactose intolerant, and it took a while to get around what I can no longer eat, but you get used to it.

Keep in touch, girl.

Merry


uc since feb '05
colazol 9 day, calcium, multivitamin, fishoil
atenolol, bc pills, b-2, b-6 ( for migraine relief)
stonyfield farm yogurt
in remission


UMDTerp2001
Regular Member


Date Joined Sep 2006
Total Posts : 246
   Posted 8/28/2007 8:10 PM (GMT -7)   
Jackie it sounds like you have a great positive attitude. That'll get you through much in life. I think we all approach this at various levels based on our level of sickness and present state of mind, but I like you like to be positive and keep hope alive that with trying different things and doing what we know we should we can improve our condition. I know some however have it bad and it's just a tough disease to deal with. Thanks for the update.

 
 
__________________________________________________________________________________
- 29 y/o male living in the DC Metropolitan region
- UC diagnosed - April, 2006 - symptoms came on sudden
- GI could not determine type of UC as I was too inflamed during the colonoscopy
- Completed 3rd Prednisone taper on 4/13/07 - Tapered from early January through mid-April after being hospitalized from a bad flare with anemia & severe joint pain.
- Currently in remission
- 6 Colazal/day, 1 Multivitamin, Fish oil, Primal Defense Probiotics 2/day, Iron supplement when bleeding
- Use small dose (5-10mg) of prednisone occassionally to manage joint pain


hekela
Veteran Member


Date Joined Nov 2006
Total Posts : 731
   Posted 8/28/2007 11:45 PM (GMT -7)   
jackie!
good to hear from you!!
sorry you are going thru it so badly right now!! :(
but it sounds like you've got some docs and family there that are looking out for you and hopefully helping! sometimes that is even better than medicine!

hang in there sweetie!
aloha
28, happily married, stay at home mom to 22 month old son
UC (probably pancolitis, but no c-scope yet), diagnosed June 2006, started having major symptoms sometime in January 2006, about 3 months after childbirth. 2nd flare (minor) may 2007 after taking caprylic acid for 2 weeks.

-SCD for 4 weeks with no improvement...
-Asacol since 7/26/06
-Prednisone 8/28/06-2/28/07. and again may '07, 8 week course.
-probiotics, ground psyllium husk, fish oil, CalMag, multivitamin


Red_34
Forum Moderator


Date Joined Apr 2004
Total Posts : 23549
   Posted 8/29/2007 5:03 AM (GMT -7)   
New York huh? I bet your friends are missing you like crazy! Are you still living there or are you back in the old home state? I'm sorry that you had to deal with this but your right...the sooner you take resposibility for your own health the more in control you will feel and hopefully heal.

Take care, keep in touch and be well :)
 @--->--SHERRY--<---@
Left sided Uc since '92 - meds - Colazal, Canasa (when needed), 6MP (50-75mgs), Forvia, Biotin (IN REMISSION - sort of!)
Secondary Raynauds Syndrome '04  - meds - Norvasc
Fibromyalgia '06 - no meds
Severe seasonal allergies - meds - Allegra 
PLEASE HELP HEALINGWELL CONTINUE TO HELP OTHERS BY CLICKING HERE: DONATE
@--->--Moderator for Allergies/Asthma and Co-moderator for UC--<---@
 
 
 
 

 
 

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