Is a CURE just around the corner?

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FosterDad
Regular Member


Date Joined Aug 2007
Total Posts : 97
   Posted 8/28/2007 3:22 PM (GMT -6)   
Hi all....
I just wanted to share, with you all, a little meeting I just had with a very nice 80 year old gentlman who has had colitis for 45 years.  After having colitis for the first 15 years he went into a very major flare 30 years ago.  His doctor was out of town and the oncall doctor did not read his chart and put him on a Sulpha drug.  He was allergic to Sulpha drugs.  His doctor just happend to catch him as he lay in the hospital, literally at deaths door, and gave him an emergency Illiostomy.  His doctor told him later that he was within 3 hours of death.  He is doing very well now and is a great guy.  It just so happens thats this man is the Founding President of THE UNITED OSTOMY FOUNDATION VICTORIA CHAPTER and is still active.  He travels to all the seminars in the States and across Canada.  They also send over Ostomy products to third world countries.  So needless to say, he knows quite a bit about IBD and hears alot of inside information at all these seminars and meetings.
According to him there is a new drug that has just come from China and is awaiting FDA approval in the States that (in their words) "CURES" both Crohns and Colitis.  His source would not reveal the name of the drug as of yet but it apparently is suppose to be coming out in the States very soon and then coming up to Canada soon after.  Now this is just hear say, but is coming from quite reliable sources.  That would be unbelievable.
 
Another thing that he was saying is in regards to Prednisone.  I also confirmed this with my Naturalpath and a doctor, and am no sure why I havent heard this from my doctor.  If you have to take Pred. take it rectally.  Im not sure if they actually make a Pred. supository, but I talked with a pharmasist and they can make them up no problem, in whatever does you need.  My friend made his own by crushing the pills and making a Cocao Butter supository and sprinkling the Pred. in it before it hardened.  Now thats inginuity at its best.  When he took these there were not different doses back then and when he was suppose to take them orally it was 10 pills, when he switched to rectally he only needed to crush 1 pill (by his doctors advice)  Thats 9 less he had to take.  By taking them rectally he had NO side effects, less meds needed, and it is less invasive to your other organs.
 
I just felt that I needed to put this information up because it was new to me.  It gave me a little more hope and made me feel a little easier about taking Pred. if it ends up I have to.
 
If anyone finds out any information regarding this new medication, please keep us posted.


Just diagnosed Aug. 14/07
Asacol 2 x 4 (5-Aminosalicylic Acid 400mg)

Post Edited (FosterDad) : 8/28/2007 3:24:50 PM (GMT-6)


UCinGV
Regular Member


Date Joined Mar 2007
Total Posts : 396
   Posted 8/28/2007 3:36 PM (GMT -6)   
They do have a prednisone foam made to be taken rectally, but the problem is it's hard to get it on all parts of the intestine where you need it. I would consult several doctors before mixing up anything like that on my own.

As for a cure right around the corner, that's what I pray for every day. However if someone tells you news like that, and for some strange reason they won't say the name of it, that's a red flag telling you not to hold your breath.
12 Asacol
100 mg Imuran
6 or 9 fish oil pills
4 Acidophilus pills
4 Caprylic Acid pills


FosterDad
Regular Member


Date Joined Aug 2007
Total Posts : 97
   Posted 8/28/2007 3:48 PM (GMT -6)   
Like I said....this is just what he found out at one of his Ostomy seminars in the states about 6 months ago and it was in clinical trial stage or whatever its called for FDA approval.  It actually isnt that strang that they wouldnt give out the name if it was not approved yet because I think that would be some form of insider trading or something to reveal a new drug to outsiders before it is on the market.  Anyways, just telling you what I am finding out.  I too dont want to fill myself full of false hope, but false hope (i think) is better than no hope.

Just diagnosed Aug. 14/07
Asacol 2 x 4 (5-Aminosalicylic Acid 400mg)


schrek-chewbacca hunk
Veteran Member


Date Joined Jun 2005
Total Posts : 2666
   Posted 8/28/2007 3:52 PM (GMT -6)   

Thank you for such a wonderful post about future cure possibilities  --  I know that someday a cure will come - I hope and pray in my lifetime to relieve the suffering of millions worldwide.  A wonderful wish we should all embrace.

As for self medicated, I strongly urge the community to seek out medical advice before concocting and ingesting any drug or supplement.

love to all

bob

 


potty girl
Veteran Member


Date Joined Dec 2006
Total Posts : 835
   Posted 8/28/2007 4:20 PM (GMT -6)   
I hope there is a cure very soon especially for all the young people who have this d.d. So I hope your friend is right in what he heard keep us posted.thank you
Rona

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,
potassium.


blankslatejoe
Regular Member


Date Joined Jun 2006
Total Posts : 71
   Posted 8/28/2007 5:31 PM (GMT -6)   
i too am not getting my hopes up that the cure is coming to us THIS soon.... my GI did tell me not long ago that he was confident a cure was coming in anywhere from 3 to 30 years--but it WILL be in my lifetime.

here's hoping!

blankslatejoe
Regular Member


Date Joined Jun 2006
Total Posts : 71
   Posted 8/28/2007 5:38 PM (GMT -6)   
could this be what your friend was referring to, fosterdad?
http://www.lifesciencesworld.com/news/view/38531

FosterDad
Regular Member


Date Joined Aug 2007
Total Posts : 97
   Posted 8/28/2007 7:13 PM (GMT -6)   
blankslatejoe said...
could this be what your friend was referring to, fosterdad?
http://www.lifesciencesworld.com/news/view/38531
Thanks for the link.  Im not sure if thats the one or not but that one also sounds good.  I also pray that something is found soon.  It breaks my heart to hear of the really young having to suffer with this.
Just diagnosed Aug. 14/07
Asacol 2 x 4 (5-Aminosalicylic Acid 400mg)


Cfromutah
Regular Member


Date Joined Mar 2007
Total Posts : 369
   Posted 8/28/2007 8:47 PM (GMT -6)   
yes, a cure is just around the corner and i know this for a fact.

blankslatejoe
Regular Member


Date Joined Jun 2006
Total Posts : 71
   Posted 8/28/2007 8:58 PM (GMT -6)   
cfro---I checked some of your other posts...you seem pretty adamant about this cure...which is hopeful.

If you cant tell us what it is, can you tell us HOW you know? were you part of a clinical trial? Also, are YOU cured?

Post Edited (blankslatejoe) : 8/28/2007 9:40:38 PM (GMT-6)


Sara14
Veteran Member


Date Joined Mar 2007
Total Posts : 4241
   Posted 8/28/2007 10:24 PM (GMT -6)   
Cfro - How do you know this for a fact?

That link just sounded like another drug, not a cure. If a cure were right around the corner, I'm sure there would be lots of media attention surrounding it. If it was something already in clinical trials, it wouldn't be kept a secret. Not trying to take your hope away, though...hope is good.
23 years old
Diagnosed with UC March 2007

Asacol 4 tablets 3x/day
Rowasa (generic) - 1 every few nights
Ultimate Flora probiotic (50 bil. cultures) 1/day; Chewable multivitamin; Stonyfield Farms yogurt


AKB
Veteran Member


Date Joined Mar 2006
Total Posts : 992
   Posted 8/29/2007 3:58 AM (GMT -6)   
the only thing coming from china in late stage trials is the link posted above. This drug is just andrographis, an herb you can get today at any vitamin shop.
Dx:

Left-sided UC, Jun 2005. Flex-sig only... clear for first 20cms, then inflamed through next 30cms.

Therapies:

Pharmaceutical: Pentasa 3G/day, hydrocort 1x every 7 days
Probiotics: Acidophilus Pearls, Primadophilus Bifidus
Naturals: Caprylic Acid, Methylated B-12, Vit ACDE, Zinc (w/copper), Selenium, Turmeric, Bromelain, Luteolin
Killer Foods: Soda, Fried Food (especially french fries!), Beer, Red Wine, Pepperoncinis


Eric704
Regular Member


Date Joined Jan 2006
Total Posts : 261
   Posted 8/29/2007 4:52 AM (GMT -6)   
AKB said...
the only thing coming from china in late stage trials is the link posted above. This drug is just andrographis, an herb you can get today at any vitamin shop.

Not sure where you read that. I read another article saying they looked at hundreds of herbs and took the best and concentrated the most efficent etc. into western medicine style.

UCinGV
Regular Member


Date Joined Mar 2007
Total Posts : 396
   Posted 8/29/2007 6:37 AM (GMT -6)   
blankslatejoe said...
could this be what your friend was referring to, fosterdad?
http://www.lifesciencesworld.com/news/view/38531


While I love the idea of a better treatment, that article sounds like it's a few percentage points better than Asacol (mesalazine), not a cure.
12 Asacol
100 mg Imuran
6 or 9 fish oil pills
4 Acidophilus pills
4 Caprylic Acid pills


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5698
   Posted 8/29/2007 7:03 AM (GMT -6)   
Let's talk treatments and not cures. Since scientists haven't even settled on a cause of UC I seriously doubt there is a cure.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 


Harpo
Regular Member


Date Joined Jul 2007
Total Posts : 262
   Posted 8/29/2007 7:12 AM (GMT -6)   
Cfromutah said...
yes, a cure is just around the corner and i know this for a fact.


Well give it up dude.. What are you in the secret service?
Male 36yrs old. Indeterminate Colitis 6 yrs.

100 mg 6-mp
Lialda 2 a day

Protonix
multi vitamin


Paul L
Veteran Member


Date Joined Dec 2005
Total Posts : 647
   Posted 8/29/2007 7:34 AM (GMT -6)   
I doubt very much that a cure is just around the corner (less than 3 or 4 years), especially out of China. There are a lot of bad products coming from China lately. Even if they found a cure it doesn’t mean it would work for everyone.
Paul
Diagnosed in 2000 at age 43 with UC extending half way across transverse colon.
Allergic reaction to Asacol, Pentasa and Dipentum - can’t take any more 5ASAs.
Prednisone - worked well for 1 month, then side effects became unbearable.
6-MP - blood tests showed not metabolizing properly.
Flagyl, Ciprofloxin, VSL#3, Adacolumn Apheresis – all had no effect
Corticosteroid enemas in both liquid and foam - no effect
Methotrexate with Remicade - 7 infusions with no improvement
Folic Acid and B12 injections.
 


kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 8/29/2007 7:41 AM (GMT -6)   
I agree with suebear. If they haven't figured out the cause of the disease I don't think they can cure it. But I sure hope they do!
Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, Rowasa every other night, down to 20 mg pred.
75mg Imuran starting 8/23/07---fingers crossed!
Prontonix once daily for acid reflux, zofran twice daily for nausea


Reef08
Regular Member


Date Joined Dec 2005
Total Posts : 267
   Posted 8/29/2007 9:44 AM (GMT -6)   
There's a drug in trials right now for MS called Revimmune, which is basically a very powerful immunosuppressant. It works like a stem cell transplant by killing your immune system to allow a new one to grow back within a couple of weeks.

The company claims it has cured many autoimmune diseases and they've acquired the rights to use it for pretty much every autoimmune condition. I know Crohn's is one of the diseases but am not sure whether they will test it on UC patients since it's a risky treatment and UC can technically be cured by surgery (even though it's not really a cure).

Stem Cell transplants do cure most people with autoimmune conditions (allogenic are more effective than autologous), or at least put them into remission for several years. So this could cure UC in theory.

http://www.medicalnewstoday.com/articles/64250.php

jeffereyr123
Regular Member


Date Joined Jul 2007
Total Posts : 65
   Posted 8/29/2007 9:56 AM (GMT -6)   
They have a prednisone enema under the brand name colocort and as stated before if you have colitis throughout the colon it may not be as effective as oral prednisone.

tats
Regular Member


Date Joined Aug 2007
Total Posts : 54
   Posted 8/29/2007 10:42 AM (GMT -6)   
I really hope they come up with a cure for UC..I cant wait till that day..thanks for a bit of hope.

tats
diagnosed with ulcerative colitis 6/05
 
currently on remicade-every 6weeks
asacol 6pills a day


AKB
Veteran Member


Date Joined Mar 2006
Total Posts : 992
   Posted 8/29/2007 10:50 AM (GMT -6)   
eric, read the full study results-- unless they've changed the formulation, it's a concentrated extract of andrographis:

Here's a short blurb from their recruiting for trials:
http://louisville.edu/medschool/medicine/gastro/cru%20-%20crohns.htm

"HMPL-004 is a widely used plant in Chinese, Indian and Scandinavian medicine. It is an ethanol extract from the plant andrographis paniculata, taken orally inhibits tumor-necrosis factor-A (TNF-A). It was effective in chemically induced colitis model in rats."
Dx:

Left-sided UC, Jun 2005. Flex-sig only... clear for first 20cms, then inflamed through next 30cms.

Therapies:

Pharmaceutical: Pentasa 3G/day, hydrocort 1x every 7 days
Probiotics: Acidophilus Pearls, Primadophilus Bifidus
Naturals: Caprylic Acid, Methylated B-12, Vit ACDE, Zinc (w/copper), Selenium, Turmeric, Bromelain, Luteolin
Killer Foods: Soda, Fried Food (especially french fries!), Beer, Red Wine, Pepperoncinis


Eric704
Regular Member


Date Joined Jan 2006
Total Posts : 261
   Posted 8/29/2007 5:10 PM (GMT -6)   
Reef08 said...
There's a drug in trials right now for MS called Revimmune, which is basically a very powerful immunosuppressant. It works like a stem cell transplant by killing your immune system to allow a new one to grow back within a couple of weeks.

The company claims it has cured many autoimmune diseases and they've acquired the rights to use it for pretty much every autoimmune condition. I know Crohn's is one of the diseases but am not sure whether they will test it on UC patients since it's a risky treatment and UC can technically be cured by surgery (even though it's not really a cure).

Stem Cell transplants do cure most people with autoimmune conditions (allogenic are more effective than autologous), or at least put them into remission for several years. So this could cure UC in theory.

http://www.medicalnewstoday.com/articles/64250.php
That's actually a nice link. Interesting stuff.

ithurtsmom
Regular Member


Date Joined Nov 2006
Total Posts : 289
   Posted 9/5/2007 7:27 AM (GMT -6)   
I contacted the UOFVC and they didn't know what I was talking about.
Joan
 
Daughter 5, UC
Pentasa 2X2 daily
Omega 3
Folic Acid 1000mcg.
Fiber
Probiotics
 


damo123
Veteran Member


Date Joined Jul 2007
Total Posts : 714
   Posted 9/5/2007 7:47 AM (GMT -6)   
If the doctors tell us they dont know the cause of UC then how are they gonna cure the thing? If indeed UC is related to genes then wldnt this involve gene therapy....and wouldnt there be a difference for ppl who have the genetic marker but for which the disease isnt activated and those whose gene is activated....presumbly such a cure would come first for the former.

And wouldn't any such breakthrough drug require 7-10 years clinical trials before being available for public use?

The people who find cures for their UC (and i mean cures and not remission) are those who look to themselves for the cure, who supplement themselves via herbs and allow their mind and body to do the rest. I'm a bit tired of every website and GI claiming that UC is not related to food, stress etc when they can't tell you what the cause is.

I'm not trying to find a cure for UC - I'm trying to find a cure for MY UC. What we see in UC is inflammation. I think we have a lot going on in our bodies and minds before the inflammation arises. The cause and cure lies somewhere or someplace before the inflammation takes place. Medical science seems to only want to deal with the inflammatory response.

Sorry for the vent!
3200 mg Asacol + 500mg suppositories as needed
Digestive Enzymes
Acidophilus
Calcium
Aloe Vera Juice
Anti Fungal Supplements
No Stress and a positive attitude (mostly!)
 
 
 
 
 

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