I just wanted to share, with you all, a little meeting I just had with a very nice 80 year old gentlman who has had colitis for 45 years. After having colitis for the first 15 years he went into a very major flare 30 years ago. His doctor was out of town and the oncall doctor did not read his chart and put him on a Sulpha drug. He was allergic to Sulpha drugs. His doctor just happend to catch him as he lay in the hospital, literally at deaths door, and gave him an emergency Illiostomy. His doctor told him later that he was within 3 hours of death. He is doing very well now and is a great guy. It just so happens thats this man is the Founding President of THE UNITED OSTOMY FOUNDATION VICTORIA CHAPTER and is still active. He travels to all the seminars in the States and across Canada. They also send over Ostomy products to third world countries. So needless to say, he knows quite a bit about IBD and hears alot of inside information at all these seminars and meetings.
According to him there is a new drug that has just come from China and is awaiting FDA approval in the States that (in their words) "CURES" both Crohns and Colitis. His source would not reveal the name of the drug as of yet but it apparently is suppose to be coming out in the States very soon and then coming up to Canada soon after. Now this is just hear say, but is coming from quite reliable sources. That would be unbelievable.
Another thing that he was saying is in regards to Prednisone. I also confirmed this with my Naturalpath and a doctor, and am no sure why I havent heard this from my doctor. If you have to take Pred. take it rectally. Im not sure if they actually make a Pred. supository, but I talked with a pharmasist and they can make them up no problem, in whatever does you need. My friend made his own by crushing the pills and making a Cocao Butter supository and sprinkling the Pred. in it before it hardened. Now thats inginuity at its best. When he took these there were not different doses back then and when he was suppose to take them orally it was 10 pills, when he switched to rectally he only needed to crush 1 pill (by his doctors advice) Thats 9 less he had to take. By taking them rectally he had NO side effects, less meds needed, and it is less invasive to your other organs.
I just felt that I needed to put this information up because it was new to me. It gave me a little more hope and made me feel a little easier about taking Pred. if it ends up I have to.
If anyone finds out any information regarding this new medication, please keep us posted.
Just diagnosed Aug. 14/07
Asacol 2 x 4 (5-Aminosalicylic Acid 400mg)
Post Edited (FosterDad) : 8/28/2007 3:24:50 PM (GMT-6)