New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3437
   Posted 8/29/2007 3:06 PM (GMT -7)   
hi folks- I'm wondering if anyone on here has tried this drug yet? If so- how is it? If you haven't tried it, has your doctor mentioned it? Are you on Remicade right now? As you all porbably know, Remicade isn't doing it for me anymore. I think Humira is currently the only drug I haven't been on. Any info would be great. Thanks!
diagnosed '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
 


kb5
Veteran Member


Date Joined Jan 2007
Total Posts : 1015
   Posted 8/29/2007 3:18 PM (GMT -7)   
There was a thread on humira about three or four days ago i think. Try using the search for flipping back a bit. I remember it was pretty long...
Kelly, 29

Left sided UC diagnosed 1/98 age 19, Pan colitis diagnosed 1/07
Currently on 4x3 Asacol, Rowasa every other night, down to 20 mg pred.
75mg Imuran starting 8/23/07---fingers crossed!
Prontonix once daily for acid reflux, zofran twice daily for nausea


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3437
   Posted 8/29/2007 3:38 PM (GMT -7)   
yeah I know- but not one person in that thread has taken the drug. That's really what I'm curious about- if anyone on here has been on it yet.

diagnosed '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
 


Scrap Girl
Veteran Member


Date Joined Jan 2007
Total Posts : 653
   Posted 8/29/2007 7:25 PM (GMT -7)   
Eva, the only thing that I can tell you about it is that I had no problem getting approved for Humira. It was going to be a lot cheaper for me because you don't have to pay the infusion site, which my portion is around $75. However, my GI wanted me to try Remicade first and it seems to be working for me. He did say if the Remicade stops working or if it gets to expensive he will switch me to Humira. Personally, I think the Humira sounds better because I don't care for the whole mouse element of Remicade but I'll continue to use it as long as it works. Sorry I can't be more help. I would love to hear from some people who are on Humira as well.
Diagnosed with UC in Feb. 2005
 
Colazal (9 a day)
Folic Acid
3rd Remicade infusion


Another UC wife
Veteran Member


Date Joined Jun 2007
Total Posts : 2111
   Posted 8/29/2007 8:19 PM (GMT -7)   
Hi Eva Lou -- my Goddaughter's good friend has had UC very very bad for a long time. She has a few small children and a husband who has a job that requires him to travel quite a bit. I don't know how she has been able to raise the children with how sick she has been. (Very similar to several on the board here as well.)

She was definitely headed for surgery as nothing was helping. Humira she was put on. The results for her have been very good. So good that the surgery aspect is now not a current issue any longer. Hopefully this will continiu for her for many years to come.

Other than that I don't have any more indepth info to share. My Godchild has asked a few times if my husband should possibly inquire to the doctor about that for himself. As bad as he was for those few months this past spring I don't think he was ever as bad as she was.

I know all this info is second hand but figured I would at least post this info since it doesn't seem like there are alot of forum members who are on this medicine.

60 yr old male~Colitis 1st diagnosed Jan '05-cleared up within a few wks. Flared again in May '06 ... left sided UC now, fully involved and trying to get in remission. Acute inflammation-pancolitis-tenesmus rectal pain-granulation is showing some healing started. Osteopena of spine from prednisone DX 8/07  July 07 good days & bad days 75mg Imuran 40  mg prednisone (tapering 8/07) 12 Asacol, Lidocaine Hydrochloride Jelly 2%,multi vitamin, iron 3X day, DanActive, chewable calcium, Prilosec 20mg, enalapril 10mg, glipizide 5 mg, zocor 20 mg, baby aspirin, (Fentanyl pain patch 50mg 72 hrs  Morphine Sulf 15 mg twice daily)Colocourt enemas at night. Fosamax and mthly B12 shots folic acid 1mg


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3437
   Posted 8/30/2007 9:14 AM (GMT -7)   

It's good to hear any info! I am going to be talking with my GI doctor this afternoon, & hopefully we can get the ball rolling on the Humira- we already discussed using it, but wanted to wait until after my 4th remicade infusion to see how it "took". Which it didn't! I had the infusion 8/20, never really went symptom free, & within a week have become pretty bad- you know, can't leave the house without a diaper, up 4 times a night, lots of blood & mucus...good times! eyes   My concern was the insurance part- I have had no trouble with them paying for Remicade, so I'm hoping my dictor can get Humira approved. I'll post more tomorrow to let you guys know what he says, but I'm hoping it's a go. I don't like the mouse protein part of Remicade either...of course your body is going to make antibodies eventually! On another note, I did get the release form from my GI's office to send the surgeon my records, so it's one small step down that road. I still haven't actually called the surgeon & said "I want to make an appt." though. I'm starting to freak out a little- what if I get surgery & they have a "cure" or some fabulous new med a year later?!?!?!


diagnosed '02
meds-
Asacol- 8 tabs/day
Remicade infusions
Imuran- 100mgs/day
 


pattywatty
New Member


Date Joined Aug 2007
Total Posts : 12
   Posted 9/6/2007 5:24 PM (GMT -7)   
I started Humira Sept 4th. Four shots. I will take two in two weeks and then one every two weeks. I was hesitant to start them but really had to do something.
I was on immuran 150 mg Plus colazal 9 a day and still had a bad flare up. Them my blood work came back from Calif and My doctor told me to get off immuran and I couldnot take it again, and told me about Humira. I just a colonoscopy this morning ( this is my 5th ) since 2000 said my colon was very inflamed and did a biopsy. will call her monday for results.
diagnosed 05
colozal 9.day
metformin 3/day
predisone 20 mg/day
protonic 40mg/day
lexapro 10mg/day
caltrate-d 2/day
one a day vit
singular 1/day
New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, December 17, 2017 10:48 AM (GMT -7)
There are a total of 2,906,462 posts in 318,960 threads.
View Active Threads


Who's Online
This forum has 158300 registered members. Please welcome our newest member, sarahjaye.
319 Guest(s), 7 Registered Member(s) are currently online.  Details
PeteZa, LymeSick 🌟, suzieq521, Starlight*, Manzanita2, Progressing, iPoop