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MagiMae
New Member


Date Joined Mar 2007
Total Posts : 16
   Posted 8/30/2007 5:13 AM (GMT -7)   
A while back someone posted that they took a supplement for the dreaded moon face.  I have tried looking thru previous post but can't find it.
 
Does anyone remember what the supplement was?
 
Many thanks!
 
 
36 year old - UC December 2006

Prednisone

Imuran – 50mg 2x daily

Asacol – 2 x 3 daily

 

16 year old daughter diagnosed w/Crohns 30 days later.


Burli
Veteran Member


Date Joined May 2003
Total Posts : 1251
   Posted 10/3/2007 9:24 PM (GMT -7)   
Eat a lower sodium diet, drink more water and get more exercise.
 


TheLori
Regular Member


Date Joined Aug 2007
Total Posts : 277
   Posted 10/4/2007 5:07 AM (GMT -7)   
After 2 months of prednisone, Im off it as of today!!  Im hoping my moon face will "deflate"!!!
Lori
37/F
UC diagnosed 1991
Asacal, zoloft,levoxyl, prednisone 60,50,40,30, 25,20,15,10,5


princesa
Veteran Member


Date Joined Aug 2007
Total Posts : 2198
   Posted 10/4/2007 7:18 AM (GMT -7)   
There's also a great book you may want to check out: Coping With Prednisone: It May Work Miracles, but How Do You Handle the Side Effects?

http://www.amazon.com/gp/product/0312195702/ref=s9_asin_title_1/002-2375595-6142411?pf_rd_m=ATVPDKIKX0DER&pf_rd_s=center-1&pf_rd_r=1F3TJBZZ543JF53M6CF0&pf_rd_t=101&pf_rd_p=278240701&pf_rd_i=507846


Diagnosed with ulcerative colitis spring 1999
C-scope confirmed UC diagnosis 9/18/2007
No explanation for right side pain and thickening of bowel wall
 
Maintenance dose sulfasalazine, back on a pred taper for first flare in years
Probiotics, l-glutamine and fish oil caps. George's aloe vera juice and Mucosaheal.
 
 


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 10/4/2007 8:26 AM (GMT -7)   
I don't believe there is a supplement that will take it away. It's just a rotten side effect. Some people have luck with a lower sodium diet and lots of water. I ended up with moon face no matter what I did. It did start "deflating" within a couple of weeks of stopping the pred - however, I was on pred for months. After about two months, I was very pleased to see MY face again.

Best of luck!
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Rowasa and Canasa as needed
Aciphex, Effexor XR, BCP, Rhinocort nasal spray
Culturelle, Biotin, Folic Acid, Forvia, Calcium, and B12
 
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
Co-Mod for the UC forum
Keep HealingWell running smoothly:  www.healingwell.com/donate


MagiMae
New Member


Date Joined Mar 2007
Total Posts : 16
   Posted 10/4/2007 5:15 PM (GMT -7)   
Thanks for the input everyone!

 
 
36 year old - UC December 2006

Prednisone

Imuran – 50mg 2x daily

Asacol – 2 x 3 daily

 

16 year old daughter diagnosed w/Crohns 30 days later.


jellybean1887
Veteran Member


Date Joined May 2005
Total Posts : 1362
   Posted 10/4/2007 6:25 PM (GMT -7)   
I hate the moon face. I think I have it really bad right now, but people tell me my face looks healthy. I think I look like a fat chipmunk. I can't wait for it to go away!
"Of one thing I am certain, the body is not the measure of healing - peace is the measure. ~George Melton~"

Current Meds include: Purinethol, Colazal, Prednisone, Nexium and Remicade


Burli
Veteran Member


Date Joined May 2003
Total Posts : 1251
   Posted 10/5/2007 1:47 AM (GMT -7)   
We always notice more things wrong with our appearance than others do. I've known a lot of folks to take prednisone and seen some of their faces get a little "moonier" but it's never as bad as they think it is. I wouldn't worry over it.
 


barnsbury
Regular Member


Date Joined Jan 2006
Total Posts : 464
   Posted 10/5/2007 8:16 AM (GMT -7)   

I've had my moonface for 3 years now :-(

Ive been on pred the whole time though.  I was hoping now im down to a low dose (7.5mg) it would go away but it hasnt. Im really sick of it.


Back on Pred - 8mg - Steroid Dependent :-(
Azathioprine 150mg
Actonel 35mg
Predfoam Enema
VSL #3 with Activia Yoghurt
EPA Fish Oils
Various Homeopathic meds
Asacol x 9
Remicade every 8 weeks  (Stopped working)
Aloe Vera Lily of the Desert Juice  Gave me the worst D !
Primadophilus Reuteri Probiotic
Prograf Tacrolimus 4mg
 


Beth75
Veteran Member


Date Joined Jul 2007
Total Posts : 2148
   Posted 10/5/2007 11:46 AM (GMT -7)   
don't want to jinx myself but I have not gotten it yet. A little bit of puffiness some mornings around my eyes (but could be the pred making cry the night before). I am on a 1500mg a day low sodium diet and it's not that bad to follow also I have given up all caffeine (prob. nothing to do w/it) and have given up soda as well (maybe? about 300mgs of sodium I am not having anymore). I still have edema though, could be from the MCD??? I do feel puffy but have lost 4 pounds since starting the pred - not eating salt has cut down my fav foods like chips, plus have had diarreah for two weeks.
Beth, 32
UC Diagnosed March 2000
Hydrocortisone enemas 1xday
Lialda 2.4mg 1xday since 8/24/07 ;prev. Asacol 4800mg day,Calcium and Vit D 500mg 3xday.
Minimal Change Disease (Kidney Disorder) Diagnosed Sept 2007
Prednisone 60mg 1xday, Simvastatin 20mg 1xday, Diovan 80mg 1xday. Fosomax 70mg 1xweek. MCD may be from hypersensitivty to 5ASA drugs.


Seahorselover
Regular Member


Date Joined Sep 2007
Total Posts : 30
   Posted 10/6/2007 11:56 AM (GMT -7)   
I am asking a stupid question, but what is moon face?????

stm177
Regular Member


Date Joined Jul 2007
Total Posts : 90
   Posted 10/6/2007 12:27 PM (GMT -7)   
There was a teenage girl that had some pictures of her moonface in a photo album.
I can't remember her name, but it was the girl that ended up having surgery to remove
her colon.

Maybe one of the old timers remembers her name, and could find it to show you.
Proctitis - diagnosed April 2007 (symptoms starting in October 2006)

Flares treated with Rowasa enemas

Mild food diet (chicken, rice, collard greens, no sugar, no corn, no beef/pork, etc)


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 10/7/2007 8:31 AM (GMT -7)   
That was soccermandy who posted the pics.

Moon face is when your face swells up when you're on pred. Other refer to it as chipmunk cheeks. Normally I can see my jaw bones - when I had moon face, my face was so round and puffy (like the moon) that you couldn't see my jaw bones, check bones, etc. Yuck!
Pan-colitis and GERD diagnosed May 2003
 
Asacol 12 per day,  Azathioprine 75mg, Rowasa and Canasa as needed
Aciphex, Effexor XR, BCP, Rhinocort nasal spray
Culturelle, Biotin, Folic Acid, Forvia, Calcium, and B12
 
Osteopenia (hip and spine) from prednisone use.  Started Azathioprine because I was steroid dependent.
 
Co-Mod for the UC forum
Keep HealingWell running smoothly:  www.healingwell.com/donate


dakotagirl
Veteran Member


Date Joined Apr 2006
Total Posts : 3402
   Posted 10/7/2007 8:33 AM (GMT -7)   
Here's a link to Mandy's latest set of pics.
 
 

Seahorselover
Regular Member


Date Joined Sep 2007
Total Posts : 30
   Posted 10/7/2007 8:07 PM (GMT -7)   
Thank you for showing me the pictures, now I know what it is.
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