Blisters at the back of my tongue?

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Regular Member

Date Joined Feb 2007
Total Posts : 79
   Posted 8/31/2007 7:16 AM (GMT -6)   
Is this a sign of UC? I have had uc for two years now, I keep bleeding when I go to the bathroom but my specialist took my blood and said my white blood cell count was normal, so its NOT the colitis.
I have recently been taking salofalk 16 pills a day
And have had chest pains something
And now I have painful blisters at the back of my tongue
Anyone else have this too?
24 year old female with mild case of UC
Salofalk- 9 pills a day 6 pills a day (yay)
Lily of the Desert Aloe Vera Gel- 1/2 Glass a day
Bio-K Yogurt drink (50 billion active bacterial cultures.. Great drink!!) 
1 bottle a day

Regular Member

Date Joined Feb 2007
Total Posts : 79
   Posted 8/31/2007 12:33 PM (GMT -6)   
I was hoping atleast one person can reply.....

Regular Member

Date Joined Jan 2007
Total Posts : 149
   Posted 8/31/2007 1:01 PM (GMT -6)   
that has never happened to me.

i hope it gets better!!
The name is Jacquelyn, but you can just call me Jack.

Eighteen yr old female diagnosed w/ UC in 2004

-UltraInflamX 360
-EPA-DHA 6:1™ Enteric-Coated

-Prednisone (tapering)
-Mesalamine Enemas

Calcium, Iron, & One-a-day.

Veteran Member

Date Joined Jul 2007
Total Posts : 2148
   Posted 8/31/2007 1:25 PM (GMT -6)   
sorry, never had this happen to me. Maybe something you are taking? drinking? Perhaps the aloe vera gel or yogurt drink? Sometimes, things can aggravate even after having them for a long time. Dunno, that would just be what I would think if it were me........however, I have nothing to base that on.
Beth, 31
UC Diagnosed March 2000
Lialda 1.2mg 1xday 8/24/07 (prev. Asacol 4800mg day)
Calcium and Vitamin D 600 mg 2xday
Simvastatin 20 mg 1xday
Diovan 80mg 1xday (dx: hematuria w/proteinuria): I have normal blood pressure, this is for my kidney - waiting for a dx.

Old Hat
Veteran Member

Date Joined Feb 2007
Total Posts : 5154
   Posted 8/31/2007 5:37 PM (GMT -6)   
Hi, AshnaG-- I have never gotten tongue sores, but I know that heavily acidic foods/drinks can irritate my mouth-- fresh pineapple, for example. I avoid it. In general I think that mouth sores are more common to Crohn's disease than to UC. Can you phone your gastro or dentist to ask about need for treatment? Best wishes. / Old Hat (nearly 30 yrs with left-sided UC; currently on 3 X 3 Colazal daily for July flare in descending colon, which is responding)

Veteran Member

Date Joined Mar 2007
Total Posts : 4034
   Posted 8/31/2007 7:40 PM (GMT -6)   
I've never had the tongue blisters.

But why does your doctor not think it's your colitis that's making you bleed when you go to the bathroom? My white blood cell counts were always normal even while flaring.
23 years old
Diagnosed with UC March 2007

Asacol 4 tablets 3x/day
Rowasa (generic) - 1 every few nights
Ultimate Flora probiotic (50 bil. cultures) 1/day; Chewable multivitamin; Stonyfield Farms yogurt

Regular Member

Date Joined Jun 2007
Total Posts : 76
   Posted 9/4/2007 9:15 PM (GMT -6)   
you might have a type of thrush.  ask your doctor for mycelex troches.  these are tabs that disolve in the mouth.  good luck

Regular Member

Date Joined May 2007
Total Posts : 458
   Posted 9/5/2007 5:06 AM (GMT -6)   
My blood cell counts were normal when I was diagnosed and I was flaring at that time.  It was by doing a c-scope and biopsies that my GI did the final diagnoses.
I have never had blisters on my tongue, but do seem to get cold sores just before I start a flare.
Dx:  2006
Meds:  None so far. Garlic works to ease flares. My GI laughed when I told him and said it was just coincidence.
Diet:  Regular fresh garlic, Biobest yogurt daily, Omega 3 supplements, very limited junk food, carbs and processed food, low fat diet.  Lots of fresh fruit and veggies (limited potatoes).

New Member

Date Joined Sep 2007
Total Posts : 4
   Posted 9/7/2007 12:38 AM (GMT -6)   
i occasionally get mouth ulcers, sometimes at the base of my tongue. I thought I was brushing too aggressively or biting the inside of my mouth while sleeping, but I was told by various doctors that this is a symptom of the colitis.

New Member

Date Joined Sep 2007
Total Posts : 1
   Posted 9/9/2007 3:03 PM (GMT -6)   
hi i always get mouth ulscers doctor told me to do with the uc

potty girl
Veteran Member

Date Joined Dec 2006
Total Posts : 835
   Posted 9/9/2007 7:47 PM (GMT -6)   
I get them on the inside of my cheeks but not on my tongue. But I would think they could effect the tongue also. I get them when flaring.

synthroid .088 mg, lowpressor 50 mg x 2, cozaar 25mg x2, imdur 30 mg
nitroquick, proventol, plavix 75 mg, protonix 40 mg x 2, asacal 400mg x 9
carafate 1 gm x 4, zyrtec 10 mg, rhinocort aqua nose spray, fish oil,

New Member

Date Joined Aug 2007
Total Posts : 12
   Posted 9/10/2007 4:44 AM (GMT -6)   
Every since I have been diagnosed with UC I have gotten blisters. On my tounge and inside of cheeks. My doctor said they go along with UC. Now I am taking Humira Shots and one of the side effects are tounge blister. Sooo.........

Regular Member

Date Joined Jul 2007
Total Posts : 208
   Posted 9/10/2007 3:08 PM (GMT -6)   
Hi Ashna,

Have you looked into Candida yeast overgrowth? which may explain it not being colitis.
Ash 39 NH, vegetarian
Diagnosed with UC July 06 (I think 6/6/6) during 10 day hospitalization
Current meds: Asacol 12, Imuran 150mg
Centrum Silver, Primadophilus Reuteri, DHA-Omega 3, L-glutamine

Regular Member

Date Joined Jul 2007
Total Posts : 172
   Posted 9/10/2007 5:12 PM (GMT -6)   
AshnaG--did you ever talk to your doctor? I have had mouth sores with my present and most recent flare. The last time, the sores were on the inside lower lip. This time, they are on the side of my tongue. I was given a prescription cream and it is rather yucky, but does 'seal' the sore so that my tongue doesn't rub, etc. My GI told me that mouth sores could be a "crossover" of Chrones. I'd rather that not be true. It is interesting to read others with UC have mouth sores and no one that has responded said anything about the Chrones. Plus, my scope did not show Chrones. ????
Pancolitis diagnosed 5/07 during a flare
that started 3/07 through 6/30/07:  2 Lialda 1.2 mg/each per day
flare 7/24/07 through 8/1/07 and then, 4 Lialda 1.2 mg/each per day since 8/1/07 and doing good until
most recent flare: 9/9/07

Veteran Member

Date Joined Feb 2005
Total Posts : 1146
   Posted 9/10/2007 8:58 PM (GMT -6)   
With my initial flare, I had a mouth FULL of blisters by the time I started meds.  It was one of the things that made me wonder about my UC diagnosis a little bit.  Everything I read related them to CD, not UC.  Turns out my dx was wrong and I did have CD after all.  Doesn't mean that you can't have mouth sores with UC, but makes you wonder, huh?  For me, starting the Asacol and prednisone got ri of them within a couple of days.  Probably the pred that did it I would imagine.
Scopes don't always show CD even if it's there. :(
Elevated WBC's can't be used to solely determine the state of your disease.  Mine have never been elevated. 

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